{"id":2563,"date":"2014-10-26T13:45:19","date_gmt":"2014-10-26T20:45:19","guid":{"rendered":"https:\/\/jacksangelsfoundation.com\/?p=2563"},"modified":"2015-01-26T13:45:42","modified_gmt":"2015-01-26T21:45:42","slug":"awareness-runs-2014","status":"publish","type":"post","link":"https:\/\/jacksangelsfoundation.com\/?p=2563","title":{"rendered":"Awareness Runs 2014"},"content":{"rendered":"
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Awareness Walks &\u00a0Runs<\/h1>\n<\/header>\n
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\"helpfightDIPG\"<\/a>\u2026for DIPG Awareness! \u00a0Press Release<\/a>\u00a0(click link)<\/strong><\/p>\n

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\"John<\/a><\/p>\n

\u2013Why is it important?<\/p>\n<\/div>\n

Pediatric Cancer research as a whole is underfunded\u2013only 4% of the NCI\u2019s annual budget for cancer research goes to pediatric cancers. \u00a0DIPG is an example of a pediatric cancer that has been marginalized as rare, yet is a common pediatric brain tumor, responsible for 80% of pediatric brain tumor deaths annually in the US. \u00a0We are running for awareness of this fact, and also for the unacceptable reality that governs decision-making for research investment: \u00a0short-term corporate profits \u00a0tend to precede our children\u2019s lives as matter of priority.<\/em><\/p>\n

\"Elena<\/a><\/p>\n

Why are we running?<\/strong>\u00a0\u00a0AWARENESS for DIPG and pediatric brain tumors, and the unacceptable reality that the leading cause of cancer-related death in children (brain tumors) remains one of the least-funded areas of cancer research. \u00a0DIPG has no survivors, and no significant progress to that effect in over 30 years.<\/p>\n

\"Talin<\/a><\/p>\n

The Washington D.C.\u00a0RUN\u00a0for DIPG Awareness <\/strong>will be on Wednesday, September 17th at 4pm starting at the Capitol Building!\u2013<\/em><\/p>\n

Click MAP<\/a> to see!<\/p>\n

AND the Walk,\u00a0Saturday September 20th,<\/strong><\/em> begins at the White House at 2pm travelling to the National Stadium, and then the return begins at 6pm to the White House for the Vigil at 7:30pm. \u00a0More details TBA right here, September 12th.<\/strong><\/p>\n

\"Aimee<\/a><\/p>\n

For Whom are we \"angelrunner\"<\/a>walking\/running?<\/strong> \u00a0 John Bradley Thompson, Naithan Sizemore,\u00a0James-William \u201cJack\u201d Demeter, Cole Marshall, and Jessie Rees, Aimee Dickey; a partial list can be found below. \u00a0All of these children have succumbed to the current fate that DIPG children face with their families, hence the angel wings are worn.<\/p>\n

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\"Naithan<\/a><\/p>\n

Orange<\/em>\u2013John Bradley Thompson \u00a0www.thinkjohnbradley.com<\/span><\/p>\n<\/div>\n

Camouflage, Gator\u2019s orange and blue-<\/em>-Naithan Sizemorehttp:\/\/www.caringbridge.com\/visit\/natedog<\/a><\/div>\n
Yellow<\/em>\u2013James-William \u201cJack\u201d Demeter 08\/30\/08\u20137\/30\/12<\/div>\n
Red<\/em>\u2013Cole Marshall<\/div>\n
Light Blue<\/em>\u2013Jessie Rees http:\/\/www.jessie.org<\/a><\/div>\n
Pink<\/em>\u2013Aimee Dickey http:\/\/www.aimeesarmy.com<\/a><\/div>\n
Deep Pink<\/em>\u2013Tiara Caleb<\/div>\n
Dark Blue<\/em>\u2013Chase Kerr<\/div>\n
Blue<\/em>\u2013Chase Cross 5\/30\/01\u20134\/25\/12; he was 10<\/div>\n
Very Orange\u2013<\/em>Sammy<\/div>\n
Sparkly Pink\u2013<\/em>Elena (Inspired The Cure Starts Now<\/a> Foundation)<\/div>\n
Yellow\u2013<\/em>Talin Tye \u2013loved gold and yellow<\/div>\n
Green\u2013<\/em>Sam<\/div>\n
Orange\u2013<\/em>Nicole<\/div>\n
Blue\u2013<\/em>Brandon<\/div>\n
Yellow\u2013<\/em>Paul Coleman<\/div>\n
Cinderella Blue, turquoise blue-<\/em>– Tatumn (was just 4 when she passed)<\/div>\n
Chloe-Marie<\/em>\u2013pink and purple<\/div>\n
Zoey\u2013<\/em>pink, purple, and red<\/div>\n
Kera Noelle Goar\u2013purple<\/div>\n
**All of these precious children died of DIPG, Kera Noelle Goar 5\/25\/14\u2013and John Bradley Thompson\u00a0April 9, 2014, among many others this year. \u00a0He was diagnosed and first treated at Children\u2019s Hospital Boston, under the care of Dr. Mark Kieran,<\/a> director of the neuro-oncology center, before his treatment began at St. Jude\u2019s Children\u2019s Hospital. \u00a0John was beloved by his family, community, and the world online community viahttp:\/\/www.thinkjohnbradley.com<\/a>. \u00a0His story remains an inspiration, and we walk with them in their grief. \u00a0 We will be running with an orange flag for John\u2013his favorite color.<\/div>\n
\u00a0The Boston Run was dedicated to John 6\/8\/2014. \u00a0This run in Washington is for all.<\/div>\n
DONATIONS<\/strong><\/div>\n
We are not running for money! \u00a0However, if you would like to support DIPG research\u00a0at your regional children\u2019s research hospital, near whichever city we are running, simply let us know in the memo. \u00a0 \u00a0We encourage the support around the country of children\u2019s research hospitals with active research in neuro-oncology, hopeful to initiate and\/or support already existing funds for DIPG research. \u00a0We are based in Los Angeles County, and support the DIPG research fund at Children\u2019s Hospital Los Angeles.<\/div>\n
<\/div>\n
If we are running in your city, and you want to help fight DIPG, contact us and\/or donate with the memo for the pediatric research institution you wish to support, or, if you already have that information, donate directly. \u00a0For those institutions without a fund specific to DIPG research, we encourage the formation of such a fund.<\/div>\n
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Our first Awareness Runs and Walks<\/strong><\/p>\n

\"IMG_1950\"<\/a>The \u201cFirst Ever\u201d Jack\u2019s Angels City\u00a0Run\u00a0\u00a0for DIPG Awareness was the Boston Run Sunday June 8, 2014, to make a start, with the hopes of traveling to Washington D.C. for Childhood Cancer Awareness Month in September.<\/p>\n

\"IMG_1241\"<\/a>The Los Angeles City Walk\u00a0for DIPG<\/strong> awareness traveled\u00a0from the Federal Building on Wilshire Blvd, to end \u00a0at\u00a0 the Santa Monica Pier<\/strong>, on Saturday August 30th. \u00a0This just happens to be Jack\u2019s birthday, Jack\u2019s Angels\u2019 namesake, and we celebrated with cake and playing at Pacific Park on the Pier!<\/p>\n

 <\/p>\n

Boston Run<\/strong><\/p>\n<\/div>\n

http:\/\/snippets.mapmycdn.com\/routes\/view\/embedded\/433767644?width=600&height=400&&line_color=E60f0bdb&rgbhex=DB0B0E&distance_markers=1&unit_type=metric&map_mode=ROADMAP&last_updated=2014-06-03T11:14:23-07:00<\/a><\/p>\n

Create Maps<\/a> or search<\/a> from 80 million at MapMyRun<\/a><\/div>\n
Time of Run:<\/strong>\u00a0 Sunday, June 8, 5pm Eastern Standard Time\/ \u00a0 Who\u2019s Running?<\/strong> \u00a0Janet Demeter, and possibly some runners from a local running club\u2013hoping anyway! \u00a0Starting at:<\/strong>\u00a0 44 Commonwealth Ave, right above Berkeley St. in front of the Public Gardens, and finishing at:<\/strong> \u00a0Boston Marathon Finish at Copley. \u00a0Distance<\/strong>, approximately 5.1 miles.<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Awareness Walks &\u00a0Runs \u2026for DIPG Awareness! \u00a0Press Release\u00a0(click link) \u2013Why is it important? Pediatric Cancer research as a whole is underfunded\u2013only 4% of the NCI\u2019s annual budget for cancer research goes to pediatric cancers. \u00a0DIPG is an example of a pediatric cancer that has been marginalized as rare, yet is\u2026<\/p>\n

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