{"id":3681,"date":"2015-11-13T19:53:21","date_gmt":"2015-11-14T03:53:21","guid":{"rendered":"https:\/\/jacksangelsfoundation.com\/?p=3681"},"modified":"2015-11-13T19:53:21","modified_gmt":"2015-11-14T03:53:21","slug":"2015-advocacy-report","status":"publish","type":"post","link":"https:\/\/jacksangelsfoundation.com\/?p=3681","title":{"rendered":"2015 Advocacy Report"},"content":{"rendered":"<h3>For partnering organizations, groups, individuals.<\/h3>\n<h3>Jack\u2019s Angels Foundation:\u00a0 <a href=\"https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2015\/04\/AdvocacyReport.pdf\" target=\"_blank\">Advocacy Report<\/a>\u00a0and General Update for Collaborative Individuals, Groups, and Organizations<\/h3>\n<p><a href=\"https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2015\/09\/BLUE1.png\"><img loading=\"lazy\" decoding=\"async\" class=\" size-full wp-image-3526 alignleft\" src=\"https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2015\/09\/BLUE1.png\" alt=\"BLUE1\" width=\"216\" height=\"268\" srcset=\"https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2015\/09\/BLUE1.png 216w, https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2015\/09\/BLUE1-121x150.png 121w\" sizes=\"auto, (max-width: 216px) 100vw, 216px\" \/><\/a>\u201cWhat your money\u2019s been doing.\u201d<\/p>\n<p>&nbsp;<\/p>\n<p><em>General Description:<\/em>\u00a0 This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and more awareness can be raised to the inequities in research funding for our children with cancer in the United States.\u00a0\u00a0 Brief summaries of organizational business for contributing or potentially collaborating organizations or individuals.<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<h1>1\u00a0\u00a0\u00a0\u00a0\u00a0 Why DIPG?\u2014the silence of death.<\/h1>\n<p>I personally experienced losing a child to DIPG as a particularly dark and isolating experience.\u00a0 We began the 2015 \u201cJust Say It!\u2014DIPG, getting a National Day\u201d campaign with the obvious goal of seeing DIPG<a href=\"#_ftn1\" name=\"_ftnref1\">[1]<\/a> Awareness fulfill this seemingly impossible task\u2014achieving a National Awareness Day\u2014but also to research the conditions surrounding the fact that this disease has been largely fought in silence and darkness for the past 40+ years.\u00a0 What has strongly inspired the campaign has been the outrage experienced by so many parents, being told over and over again how rare the disease is\u2014mostly to excuse the lack of solutions developed\u2014only to find out, before or after the death of their child, that DIPG is in fact prevalent, with a steady stream of new cases each year, and is responsible for the majority of pediatric brain tumor deaths annually in the US.\u00a0 Learning that brain tumors are the leading cause of cancer-related death in children exacerbates the outrage, along with the knowledge that cancer kills more children in our country than any other disease.\u00a0 \u201cRare\u201d certainly does not mean irrelevant, not for us.<\/p>\n<p>So, why the silence?\u00a0 Why is it that almost every case of terminal pediatric cancer on the news this year has been DIPG, but no one really knows it?\u00a0 DIPG is rarely mentioned; for example, at the 2015 ESPY Awards this year, collegiate basketball hopeful Lauren Hill, who had succumbed to the disease in April, was honored for her bravery, but there was no mention of what she was fighting.\u00a0 My experience as a parent of a child diagnosed with and lost to DIPG, has been this:\u00a0 DIPG is the \u201cGreat Embarrassment\u201d.\u00a0 Not only has nothing significant been done about it in decades, but it exemplifies so perfectly the experience of most childhood cancers.\u00a0 The disease is marginalized as rare, and receives little to no research funding.<\/p>\n<blockquote><p>It points to the fact that research funding is first and foremost for profit for the investor.\u00a0 Medical research is a business first, and we\u2019ve neglected our children for decades.\u00a0 Of course no one wants to talk about that.<\/p><\/blockquote>\n<p>The expression on the doctors\u2019 faces says it all; not even meeting our eyes, we were seeing the helplessness, embarrassment, and years of the heartache of prior cases.\u00a0 But we parents, those who are directly affected, experience this as a concrete reality: \u00a0to our system our children are just a number, and we hear, \u201cthe numbers aren\u2019t great enough for research investors.\u201d I did, from several parties.<\/p>\n<p>With the advent of social media, parents are becoming less and less accepting of this reality.\u00a0 The more we discover that we are not alone, and that DIPG is not some freakish, rare thing\u2014as if that were an excuse to not try to save our kids!\u2014that other families with not just DIPG, but most cancer-diagnosed children are discovering that childhood cancer as a whole receives only 4% of our National Cancer Institute\u2019s budget for research<a href=\"#_ftn2\" name=\"_ftnref2\">[2]<\/a>, we are reaching a critical mass of outrage. \u00a0Change is inevitable, and it is on the horizon.\u00a0 We see it, and we\u2019ll fight for it to the death because we\u2019ve got nothing to lose.\u00a0 We have everything to fight for to make our child\u2019s life count:\u00a0 be part of the solution\u2014help those fighting now and those to come.\u00a0 It\u2019s horrible watching others go through it, knowing almost exactly what they\u2019re experiencing; I personally can\u2019t do it without attempting to be an effective force for positive change.<\/p>\n<h1>2\u00a0\u00a0\u00a0\u00a0\u00a0 DIPG Awareness as fulcrum for leveraging equity in funding for childhood cancer research<\/h1>\n<p>I feel we have an extraordinary opportunity here.\u00a0 Of course this problem of \u201cmoney before people\u201d is not going to be solved overnight.\u00a0 It is a pervasive and underlying problem throughout the world of human beings today.\u00a0 Whether or not you agree with that, the issue of our children is something upon which all of us, or at least most of us, can come together.\u00a0 Our children are our future, and the future of our planet.\u00a0 We need to start looking further into the future for \u201cpayback\u201d than the next quarterly report.\u00a0 Most scientists agree that attaining a greater understanding of and finding solutions to some of these most resistant childhood cancers will not only save lives, and bring our understanding of biology to a whole new level, but invariably create new industry, jobs, and economy.\u00a0 Resistance to change is the biggest factor for us to overcome.\u00a0 There is invariably fear of loss somewhere to those who value strongly the idea of being \u201cin control\u201d or \u201cin power.\u201d\u00a0 This is where stressing the solution is vitally important.\u00a0 We do not wish, or have the authority for that matter, to blame or \u201cpoint the finger\u201d at any one institution, group, or person.\u00a0 We do feel that raising awareness to the problem, the neglect of our children with cancer, is urgent, and this will create inspirations for possible courses of action that we have not been able to imagine.\u00a0 It also creates a responsibility; to do nothing in the face of injustice to our most vulnerable citizens is unconscionable, and there are too many of us willing to raise the banner as a reminder for it to be ignored.<\/p>\n<p>Again, why DIPG?\u00a0 Brainstem gliomas originating in the pons area have been (diffuse intrinsic pontine glioma) identified since the 1950s, with a regular and steady stream of new cases each year.\u00a0 Karen Armstrong, Neil Armstrong\u2019s baby daughter, died of DIPG.\u00a0 The exact nomenclature came later, perhaps not until the 80s, but the condition has certainly been known of for that long.\u00a0 DIPG has a 0% survival rate, and parents are told there\u2019s nothing they can do.\u00a0 In fact, doctors have been reported saying that they cannot give the families any hope on account of avoiding a lawsuit.\u00a0 Imagine finding out your child has this, they have no idea why, and there are no solutions because it\u2019s too rare for companies to invest in the research.<\/p>\n<p><strong>For forty-plus years, these children, with their families, have been facing death with a bravery and desperation that cannot possibly be imagined.\u00a0 It is time for them to be honored as well, after fighting so long in the dark with literally no help in sight but God on the other side.\u00a0 <\/strong><\/p>\n<p>We parents must wait until we die to see our children again when something <em>could<\/em> be done, but we\u2019re just not doing it.\u00a0 No, a decision must be made to prioritize these children and their families who have faced death so bravely, with a 0% survival rate, for so many years neglected.\u00a0 We know also that this research invariably helps all cancer research and our understanding of medicine and biology.\u00a0 The more one knows, the more impossible it is to turn away, and a decision must be made.<\/p>\n<h1>3\u00a0\u00a0\u00a0\u00a0\u00a0 Relationship with the Administration and Congress<\/h1>\n<p>With no real pre-planning or \u201cdeciding\u201d ahead of time that I would be an advocate and activist for DIPG children, I was drawn to attend CureFest in Washington DC in 2014, not knowing how in the world I would ever get there, but it happened. \u00a0\u00a0More important than CureFest was the Summit for the Congressional Caucus for Childhood Cancer, led by co-chairs Congressman McCaul (R-TX-10) and Congressman VanHollen (D-MD-3).\u00a0 Francis Collins, Director of the NIH spoke, as well as the CEO of Anderson Medical Center in Texas, and finally Amrit Ray, the CMO of Janssen, global component of Johnson and Johnson.\u00a0 Earlier that year, in February, it was first reported that only 4% of the NCI research budget was targeting pediatric research at the NIH Conference \u201cFocus on Childhood Cancer\u201d, Feb. 14 2014 in Bethesda MD.\u00a0 And so, at that point, the 4% was only referred to very defensively.\u00a0 In fact, Dr. Ray was so bold as to say that only 1% of all hospital patients are children so 4% is actually very generous.\u00a0 The room was quietly horrified.\u00a0 I decided this was the last time I would be quietly horrified, with my 4% is not enough sign, angel wings and halo, which I decided was an absolute necessity for the Summit, everyone else in silent attire.\u00a0 I thought I was lucky they let me in.\u00a0 The consensus of those who attended the White House Briefing for Childhood Cancer last year, with Dr. Varmus, then Director of the NCI, was that there was little to no willingness to converse about this issue.\u00a0 In fact, Dr. Varmus said that it simply \u201cwould not be discussed at this time.\u201d \u00a0I was ecstatic when I heard earlier this year 2015 that Varmus was \u201cstepping down.\u201d\u00a0 I had written many an angry letter to the President about it, so at least my thoughts were resonating appropriately, hesitant to suspect having had any personal effect.<\/p>\n<p>I had made contact with the offices and aides of my own Congressional and Senate Representatives, as well as those of the Caucus Chairs when in Washington in 2014, and kept in touch with them over the last year, so that when I returned there had already been a relationship established for our cause. \u00a0\u00a0Though we lost money on our 2015 Music and Art Festival for Children \u201cArt for Jack\u201d event, donations from the <em>Agua Dulce Royal Court<\/em>, <em>ADK Sorority<\/em>, and <em>Vasquez High School<\/em> made it possible for us to cover expenses and keep functioning.\u00a0 I appealed to my Facebook friends in a Kickstarter campaign to cover travel expenses in part, and was given a personal donation paid for \u00bd of my airfare.\u00a0 The 2015 trip to Washington DC has been most favorable and has indeed helped pave the way for possible new legislation, the details of which are not yet public; I cannot stress the importance of these donations from local groups and organizations, and friends.<\/p>\n<p>The primary goal for the September 2015 trip to Washington was to elucidate, if possible, the decision-making process regarding the prioritization of research within the NCI.\u00a0 My Kickstarter campaign(to help fund the trip) was in its conception a promise to create a journalistic piece documenting my quest to get a National Day for DIPG, and to also bring to light the reasons for its silence\u2014hence the name \u201cJust Say It!\u201d\u2014because it seemed no one would.\u00a0 I began by reaching out to NCI officials in the hope of scheduling an interview.\u00a0 Where no one would grant one, I was eventually pointed to the OAR\u2014Office of Advocacy Relations, and I spoke with Robin Rinker, then Advocacy Relations Manager, and we scheduled a phone meeting together with her partner-in-training.\u00a0 They weren\u2019t able to adequately answer my questions about this decision-making, except to point me to their \u201cPeer Review\u201d process, where experiments are valued for potential effectiveness by several different scientists although what other affiliations they may have is not clear, nor was there any word or reference to an overseeing committee responsible to Congress or any guidelines for these decisions whatsoever.\u00a0 They also educated me about NCI history; it was President Nixon that created this government agency, which is in theory directly responsible to the President of the United States.\u00a0 I met both ladies at the 2015 White House Childhood Cancer Awareness Briefing.\u00a0 A Congressional aide I met with at length was wary of the idea that the NCI is directly responsible to the President, in reality.<\/p>\n<p>Although the messages from different parties of our Government\u2014OAR, Congress, White House\u2014were mixed, and no one seemed to have a definitive answer for us, there was a willingness for conversation on my trip that I found relieving and most hopeful.\u00a0 Relations with Congressional Offices were particularly encouraging, giving me new faith in our system.\u00a0 I had actually been invited to the Briefing as a result of the contacts I made from my trip last year.\u00a0 While I had the opportunity to voice certain concerns I knew many of us had, such as the fact that in our experience as parents we are made to feel insignificant\u2014that our children\u2019s lives do not matter for all practical purposes\u2014to which there was a sincere expression that it doesn\u2019t reflect the intentions of the White House, the reality remains that there are no provisions in place to account for the allocation of funds, or the prioritization of this process\u2014at least none that are responsible to the public, or to Congress. \u00a0There was mention of DIPG\u2014to which I gave my utmost thanks; I insisted on posing the question about a provision for those cancers with a 0% survival rate.\u00a0 \u00a0Many parents thanked me afterward for speaking up for them, and some mocked my wearing the angel wings with ribbons for DIPG children.\u00a0 I was there for all those kids who have no voice; that\u2019s why I wore the wings.\u00a0 I went to Washington for them, and those currently fighting, not me.<\/p>\n<p>The Office of Congressional Relations at the NCI, to Congress, gives the same information basically that the Office of Advocacy Relations gives to advocates(parents), that they use \u201cpeer review\u201d of experiments and \u201csteering committees\u201d.\u00a0 Again, the public and Congress don\u2019t really know who these people are and what other commercial affiliations they might have.\u00a0 The argument is made that 50% of the research budget goes to general science, which of course then benefits other fields, trickling down to pediatrics\u2014so it\u2019s really more than 4%, they insist.\u00a0 At that rate, we\u2019ll have answers for these families in another 50 years. \u00a0This is why progress has been so slow in pediatric brain cancer research; we\u2019re simply not targeting it.\u00a0 Raising awareness is the first step in the process of affecting accountability, transparency, and change.<\/p>\n<h1>4\u00a0\u00a0\u00a0\u00a0\u00a0 What Can We Do?<\/h1>\n<p>In reviewing the events that Jack\u2019s Angels Foundation has created and funded over the past 3 years, we have learned a few things.\u00a0 Awareness is still quite low in the general population regarding the 4%, and of course DIPG, but it is definitely growing.\u00a0 Having no personal ties to the circles of individuals and businesses in our community that could help us, or sponsor events, I have not gained the sponsorships that our organization needs to survive in the long term.\u00a0 I have, of course, made it top priority to do my best in an attempt to make such connections as the Holidays of 2015 approach, and we have an event coming up with the Santa Clarita Valley Chamber of Commerce that shows some promise of supporting our cause at least through the Spring 2016, namely <a href=\"http:\/\/santacolorita.com\">the Santa Colorita 5k Fun Run and \u201cSkip for Jack!\u201d<\/a>\u00a0 Our music and art festivals for children have not received the support necessary for us to continue on that route into the next two years so we are changing gears, so to speak.<\/p>\n<p>To raise more awareness with events, we\u2019re looking at relay races for the next 2 years.\u00a0 I have been using running as a tool in activism and have met many others along the way; \u201cRelay for Life\u201d grosses $1-$3M alone in its annual event in Santa Clarita.\u00a0 The American Cancer Society, like most other large cancer charities in the US, give less of a percentage of their research funding than our US government to pediatrics.\u00a0 So, the idea here is \u201cRELAY FOR KIDS!\u201d\u2014exclusively benefiting pediatric brain tumor research.\u00a0 I feel it\u2019s very important for us to remain strongly allied with the Childhood Cancer Awareness Movement, brain tumors being the leading cause of cancer-related death in children.\u00a0 I\u2019m also hoping to meet with ACS representatives here to see if they like the idea and want to be involved in any way. \u00a0We also hope to meet with the Pediatric Brain Tumor Foundation, so see if they would like to partner with us.<\/p>\n<h2>4.1\u00a0\u00a0\u00a0 Funding Creativity<\/h2>\n<p>In raising awareness for the urgent need for this research, I would like to introduce a concept to the philanthropic community\u2014most likely not new, but I feel it needs some new heralding.\u00a0 More detailed information on this subject can be found at <a href=\"http:\/\/fundingcreativity.weebly.com\/\">http:\/\/fundingcreativity.com<\/a>, but basically the premise is this:\u00a0 let us create research funds for our Pediatric Brain Tumor Consortium members, and their graduate students working with them, to target this disease.\u00a0 Many favorable hypotheses are abandoned, and some researchers change direction with their work because there simply isn\u2019t any funding for the research.\u00a0 The idea here is simply to help speed up the process of finding solutions collaboratively to this disease.\u00a0 Already, according to Dr. Michelle Monje of the Monje Laboratory at Stanford University, devoted to DIPG research, the implications of what their research is already demonstrating has widespread possibilities for application in cancer research.\u00a0 In the long term, funding this kind of research makes sense.\u00a0 For Jack\u2019s Angels, we would begin with Dr. Dhall at Children\u2019s Hospital Los Angeles, for which there is already a DIPG research fund opened, Dr. Monje at Stanford University, and for the PBTC members at UCSF.\u00a0 All top DIPG researchers, right here in California.\u00a0 We would like to promote the relay races using this as a goal: $1M for each research group.\u00a0 Let\u2019s change the 0% survival rate for DIPG.<\/p>\n<h2>4.2\u00a0\u00a0\u00a0 General Summary of the State of Jack\u2019s Angels INC<\/h2>\n<p>The report with all of its details will be out shortly, but I can summarize to say that donations began, in our first year, with approximately $6000 from private individuals and diminished to roughly $2500 in the second year, and down to $1000 in the third.\u00a0 The reason for this is that our biggest donor has ceased giving due to financial duress.\u00a0 We received donations of material items our first year that turned out to have no significant value, thus having us amending our bylaws and adding new provisions regarding what we can accept as a donation.\u00a0 The \u201cArt for Jack\u201d events generally cost $2500, all things considered, and we simply cannot afford to put on another event of this kind without having costs covered by other parties.\u00a0 Our first 2 \u00bd years we have given approximately $5000 to the DIPG Research Fund at Children\u2019s Hospital Los Angeles, have attracted other donations directly for that fund, and have spent approximately $1000 for Project Angel Box, and another $1200 at least in gifts and promotional items, and another $2000 for printing, and PR needs.\u00a0 IT, communications, travel, insurance, and other professional fees are also significant.\u00a0 Basically, we\u2019re trying to run a business on very little income, and initial plans for this failing; our idea was to have a coffee house\/art gallery but we didn\u2019t have the capital or a partner with the capital to do this.\u00a0 This year, 2015, we\u2019ve been operating on less than $3500, and the end of that has been in sight for quite some time.\u00a0 We clearly need a new direction in fundraising, hence the relay race events and a more aggressive campaign to attract sponsors.\u00a0 My previous efforts had not been focused in that arena and I am seeing now that if I do not, our organization may cease, with two officers leaving and no one confirmed yet to replace them.<\/p>\n<h3>4.2.1\u00a0\u00a0\u00a0 For 2016-17\u2014this may be revised in the December Report:<\/h3>\n<p>In our Financial Report and \u2018Amendments to Bylaws\u2019 coming out in December 2015, we will be noting maximum amounts of all grants specified for research, and proceeds from events benefiting research, of different levels to benefit Jack\u2019s Angels.\u00a0 5% maximum of $0-$9,999, 4% maximum $10,000-$99,999, 3%maximum $100,000 to $999,999, and 1% over $1M, and all three officers must agree that Jack\u2019s Angels retains no more than immediate needs\u00a0\u00a0 None will be retained if there is no need for our survival as an organization, and none will be retained by request of donor for any specified fund.<\/p>\n<h1>5\u00a0\u00a0\u00a0\u00a0\u00a0 Final Thoughts<\/h1>\n<p>We cannot thank enough those individuals and groups who have supported us and who continue to support us.\u00a0 We feel we owe a detailed account of our advocacy activities to the public as part of raising awareness for what we do, and so that one can see concrete, actual results from our efforts.\u00a0 The focus of this essay is our advocacy work, and not our events, although they are important to mention as they serve of as a vehicle thereof.\u00a0 Where a small, unsponsored organization may fail at a music and art festival, a larger more established one may flourish and enjoy community involvement.\u00a0 We have fond hopes for this in the future, as these events\u2014though not lucrative, were an incredibly inspiring and enjoyable experience for attendees and performers alike, and embodied the light and joy that Jack inspired in us.<\/p>\n<p>\u201cRELAY FOR JACK!\u201d is slated for May 28, 2016, and DIPG Awareness Week in California is May 25-31<sup>st<\/sup>, if you\u2019re not already aware; the Santa Barbara shootings overshadowed the press in 2014.\u00a0 This was our accomplishment of 2014, and the DIPG Research Fund\u2019s opening was the accomplishment of 2013.\u00a0 2015 promises the attempt at National Legislation, and a breakthrough in advocacy and raising awareness to DIPG.\u00a0 We are currently seeking sponsors and\/or partners in our first Relay Race to support pediatric research exclusively.<\/p>\n<p>Jack\u2019s Angels Foundation<\/p>\n<p>Janet Demeter, President<\/p>\n<p>32520 Wagon Wheel Rd.<\/p>\n<p>Santa Clarita, CA 91390<\/p>\n<p>661-977-3125 office \/ 818-400-2724 mobile \/ <a href=\"mailto:jacksangels1@gmail.com\">jacksangels1@gmail.com<\/a><\/p>\n<p>Main website:\u00a0 <a href=\"http:\/\/jacksangels.org\">http:\/\/jacksangels.org<\/a><\/p>\n<p>Funding Creativity:\u00a0 <a href=\"http:\/\/fundingcreativity.com\">http:\/\/fundingcreativity.com<\/a><\/p>\n<p>Relay for Kids:\u00a0 <a href=\"http:\/\/RelayforKIDS.org\">http:\/\/RelayforKIDS.org<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><a href=\"#_ftnref1\" name=\"_ftn1\">[1]<\/a> Diffuse intrinsic pontine glioma(DIPG), an almost exclusively pediatric brain cancer characterized by its diffusely infiltrating location in the pons area of the brainstem, is responsible for the majority of pediatric brain tumor deaths annually in the United States, with virtually no survivors, and no progress to that effect in over 35 years.<\/p>\n<p><a href=\"#_ftnref2\" name=\"_ftn2\">[2]<\/a> February 14, 2014 NIH Conference \u201cFocus on Pediatric Cancer\u201d at the NCI, Bethesda, MD<\/p>\n","protected":false},"excerpt":{"rendered":"<p>For partnering organizations, groups, individuals. Jack\u2019s Angels Foundation:\u00a0 Advocacy Report\u00a0and General Update for Collaborative Individuals, Groups, and Organizations \u201cWhat your money\u2019s been doing.\u201d &nbsp; General Description:\u00a0 This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and\u2026<\/p>\n<p class=\"continue-reading-button\"> <a class=\"continue-reading-link\" href=\"https:\/\/jacksangelsfoundation.com\/?p=3681\">Continue reading<i class=\"crycon-right-dir\"><\/i><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[335],"tags":[151,119,30,358,357,349,152,356,345,288,337,293,320,78,319,284,283,37,9,313,343,246,340,348,324,353,223,344,268,267,305,352,171,338,355,59,354,306,342,57,360,359,339,310,61,94,361,23,341,346,347,336,118,322,351,148,350],"class_list":["post-3681","post","type-post","status-publish","format-standard","hentry","category-organizational-report","tag-art-for-jack-music-and-art-festival-for-children","tag-skip-for-jack","tag-30","tag-adk-sorority","tag-agua-dulce-royal-court","tag-amrit-ray","tag-art-for-jack","tag-biology","tag-brainstem-gliomas","tag-campaign-for-a-national-day-for-dipg","tag-cancer-research","tag-collegiate-basketball","tag-congressional-caucus-for-childhood-cancer","tag-congressman-mccaul","tag-congressman-vanhollen","tag-curefest","tag-curefest-2015","tag-diffuse-intrinsic-pontine-glioma","tag-dipg","tag-dr-varmus","tag-economy","tag-espy-awards","tag-federal-government","tag-francis-collins","tag-funding-creativity","tag-getting-a-national-day-for-dipg","tag-janssen","tag-jobs","tag-just-say-it","tag-just-say-it-campaign","tag-karen-armstrong","tag-kickstarter","tag-lauren-hill","tag-medical-system","tag-medicine","tag-national-cancer-institute-nci","tag-ncs","tag-neil-armstrong","tag-new-industry","tag-nih","tag-office-for-congressional-relations-nci","tag-office-of-advocacy-relations","tag-pediatric-brain-cancer","tag-pediatric-brain-tumor","tag-pediatric-brain-tumor-foundation","tag-pediatric-cancer-research","tag-peer-review","tag-pharmaceutical-industry","tag-president-nixon","tag-relay-for-jack","tag-relay-for-kids","tag-research","tag-santa-colorita-5k-fun-run","tag-summit-for-the-congressional-caucus-for-childhood-cancer","tag-the-president-of-the-united-states","tag-vasquez-high-school","tag-white-house-briefing-for-childhood-cancer"],"_links":{"self":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/3681","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=3681"}],"version-history":[{"count":0,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/3681\/revisions"}],"wp:attachment":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=3681"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=3681"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=3681"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}