{"id":3983,"date":"2016-02-10T05:28:10","date_gmt":"2016-02-10T13:28:10","guid":{"rendered":"https:\/\/jacksangelsfoundation.com\/?p=3983"},"modified":"2016-02-10T06:14:27","modified_gmt":"2016-02-10T14:14:27","slug":"congressman-knight-celebrated-as-hero-for-children-with-cancer","status":"publish","type":"post","link":"https:\/\/jacksangelsfoundation.com\/?p=3983","title":{"rendered":"Congressman Knight Celebrated as “Hero for Children with Cancer”"},"content":{"rendered":"

Congressman Knight Attends Santa Clarita Event 2\/13 Celebrating HRes586, Chad and Jack\u2019s DIPG Resolution<\/strong><\/h2>\n

\u201cMore still needs to be done for our kids; while I was hopeful of Moonshot, I also noticed that it continues to marginalize childhood cancer, where it should be front and center of the Initiative,\u201d said Demeter, \u201cespecially when scientists often concede that prioritizing childhood cancer for research is the pathway to a cure, yet they continue to be neglected because investment in the research doesn\u2019t appear to be immediately profitable.\u00a0 This is an unacceptable reality.\u201d<\/p><\/blockquote>\n

\"10917362_664275753698875_8949163438455545349_n\"<\/a>Feb. 10, Santa Clarita\u2014<\/em><\/strong>Congressman Steve Knight(R-CA-25), known primarily for his legislative work supporting veterans and small business, is now being heralded as \u201cHero for Children with Cancer\u201d by Jack\u2019s Angels, a Santa Clarita charity for pediatric brain tumor awareness and support, which states that the leading cause of cancer-related death in children, brain cancer, is historically one of the least-funded areas of cancer research both for the private sector and our National Cancer Institute. \u201cIf anyone really needed a Moonshot, it\u2019s our children with brain cancer,\u201d relates Janet Demeter, President of the foundation.\u00a0 HRes586 was introduced January 13, 1016, the day after the Moonshot Initiative introductory speech by Vice President Biden at the State of the Union Ceremonies for 2016.\u00a0 Congressman Knight\u2019s office worked with Jack\u2019s Angels, Dr. Monje of Stanford University, and NCI representatives to coordinate important information into the drafting of this bill.\u00a0 Demeter explained, \u201cParents of children with DIPG, the deadliest brain tumor, are told that there are no solutions for their child because \u2018the numbers aren\u2019t great enough for investors,\u2019 which is essentially being told that their child\u2019s life doesn\u2019t matter to \u2018the system\u2019.\u201d<\/p>\n

HRes 586 calls for more consideration of low survival rates and years of life lost in the NCI research grant process.\u00a0 It also designates the 4th<\/sup> week in May as \u201cDIPG Awareness Week,\u201d and calls for more awareness and research for pediatric brain tumors, and pediatric cancer in general.<\/p>\n

\"\"<\/a>Knight will attend the \u201cSkip for Jack!\u201d(9:45am) at the Santa Colorita 5k Fun Run<\/a> this weekend at Castaic Lake Recreation Area, a portion of the running event which begins at 8am.\u00a0 The Skip benefits Jack\u2019s Angels Foundation, and memorializes little Jack Demeter(8-30-08 \u2013 7-30-12), a Santa Clarita resident who perished to DIPG in 2012.\u00a0 HRes.586 is named for Jack and also Chad Carr of Ann Harbor MI, who was the inspiration for the ChadTough Foundation, just recently benefiting from Coach Beilin\u2019s win of the Infinity Coaches Charity Challenge with a gift of $100,000, designated to DIPG research.<\/p>\n

\u201cRaising awareness for DIPG is long overdue, and this resolution will help bring us one step closer to ending childhood cancer once and for all,\u201d\u00a0<\/em><\/strong>said Rep. Knight.\u00a0\u201cNothing hurts parents more than knowing there\u2019s nothing they can do to keep their children from suffering. I am extremely grateful for all of the work Janet has done on this issue and look forward to bringing this cause to the national stage.\u201d<\/em><\/strong><\/p>\n

Knight was joined by Representative Jackie Speier (D-CA-14) in introducing H. Res. 586, along with six other original cosponsors, including both Chairs of the Congressional Caucus for Childhood Cancer, Reps McCaul (R-TX-10) and VanHollen (D-MD-8).\u00a0 The resolution was referred to the House Energy and Commerce Committee, where it will be considered in the coming months.<\/p>\n

\u201cMore still needs to be done for our kids; while I was hopeful of Moonshot, I also noticed that it continues to marginalize childhood cancer, where it should be front and center of the Initiative,\u201d said Demeter, \u201cespecially when scientists often concede that prioritizing childhood cancer for research is the pathway to a cure, yet they continue to be neglected because investment in the research doesn\u2019t appear to be immediately profitable.\u00a0 This is an unacceptable reality.\u201d<\/p>\n

To participate in the Skip for Jack! and the Santa Colorita 5k Run, registration is still open at www.santacolorita.com<\/a>.\u00a0 Along with Congressman Knight, Jack\u2019s Angels guests of honor include \u201cKatherine the Brave\u201d(Katie King, 6) and Natalie Avila(3), both diagnosed with DIPG.\u00a0 Contributing to the fun of the event is the Children\u2019s Fun Area sponsored by Mountasia, Complete Fit Kid and Tonka Toys. \u00a0The Santa Colorita 5k is hosted by the Santa Clarita Valley Chamber of Commerce which, according to Demeter has been one of the greatest supports to Jack\u2019s Angels mission. \u00a0\u201cIf it weren\u2019t for Terri, the Staff and the Board, Jack\u2019s Angels wouldn\u2019t have the voice it does today.\u00a0 I remain forever obliged.\u201d\u00a0 For more information about Jack\u2019s Angels, their activities and programs, visit www.jacksangels.org<\/a>.\u00a0 To support and follow the progress of HRes586, visit bit.ly\/HRes586-follow<\/a>\u00a0.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Congressman Knight Attends Santa Clarita Event 2\/13 Celebrating HRes586, Chad and Jack\u2019s DIPG Resolution \u201cMore still needs to be done for our kids; while I was hopeful of Moonshot, I also noticed that it continues to marginalize childhood cancer, where it should be front and center of the Initiative,\u201d said\u2026<\/p>\n

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