{"id":5453,"date":"2017-02-19T04:44:17","date_gmt":"2017-02-19T12:44:17","guid":{"rendered":"https:\/\/jacksangelsfoundation.com\/?p=5453"},"modified":"2017-02-19T04:44:17","modified_gmt":"2017-02-19T12:44:17","slug":"help-end-obscurity-for-dipg-and-pediatric-cancer","status":"publish","type":"post","link":"https:\/\/jacksangelsfoundation.com\/?p=5453","title":{"rendered":"Help End Obscurity for DIPG and Pediatric Cancer"},"content":{"rendered":"

Rally-On for H.Res.69!\u00a0 Help End Obscurity for DIPG and Pediatric Cancer<\/strong><\/p>\n

\"\"<\/a>

Rep. Steve Knight at 2016 “Skip for Jack”<\/p><\/div>\n

February 19, 2017, Agua Dulce, CA\u2014<\/em>Jack\u2019s Angels Foundation is calling on the Childhood Cancer Community for support in rallying Congress for the 2017 National DIPG Awareness Resolution, H.Res.69.\u00a0\u00a0 It raises awareness to the realities of pediatric brain cancer, and requests greater consideration for pediatric and high mortality rate cancers with our US government resources for cancer research. Introduced on January 30th<\/sup> to the House Energy and Commerce Committee by Representative Steve Knight (R-CA-25) and co-sponsored by Jackie Speier (D-CA-14), it requires a vote in the House of Representatives only, and designates May 17 as National DIPG Awareness Day.<\/p>\n

Jack\u2019s Angels is a 501(c)3 charitable organization in Agua Dulce CA dedicated to awareness and research for DIPG, and advocacy for children with cancer, inspired by the life of little Jack Demeter (8\/30\/08 \u2013 7\/30\/12). \u201cThe most difficult part of the experience, after being certain he would die, was learning that there was inadequate research funding and activity for DIPG because the relative numbers of DIPG children were insignificant to research investors.\u00a0 The silence and lack of awareness was unbelievable,\u201d says Janet Demeter, founder of Jack\u2019s Angels; \u201cWe are asking the greater childhood cancer community for support because the bill was intended in part to exemplify, with the case of DIPG, the marginalization of childhood cancer for research despite the urgent need for solutions for so many children with cancer.\u201d<\/p>\n

A Little Local History, Action Days and the Virtual Event<\/strong><\/p>\n

Locally this year, Jack\u2019s Angels \u201cRun the Rocks!\u201d<\/a> event April 30, 2016 in Agua Dulce CA celebrates community support in raising awareness to DIPG which began with then CA State Assemblyman Scott Wilk (currently CA State Senator) with ACR151 in 2014, then declaring the 4th<\/sup> week of May to be DIPG Awareness Week in California. \u00a0\u201cRun the Rocks!\u201d consists of a 5k, 10k, 20k Relay for Jack, and a kids 1k, supporting a research project for DIPG at Children\u2019s Cancer Therapy Development Institute in Beaverton, OR.\u00a0 The event heralds May, Brain Tumor Awareness Month, National DIPG Awareness Day, May 17, and celebrates Congressman Knight\u2019s contribution to the DIPG and pediatric cancer community.<\/p>\n

<\/a>

medallion design<\/p><\/div>\n

Registration is now open<\/strong> for \u201cVirtual Relay for Jack\u201d<\/a>, a running\/walking event (5k, 10k, 20k) in which anyone, anywhere in the world, can participate in support of DIPG research, also serves as a rallying point for H.Res.69 for those who wish by encouraging participation on or around the 17th<\/sup> of each month, and of course May 1-17<\/em>.\u00a0 Runners\/walkers are encouraged to post pictures and results on Facebook and share the advocacy campaign for H.Res.69<\/a>, which can be found at www.hres69.org<\/a>.<\/p>\n

Hosted by Virtual Uberthons<\/a> and sponsored by Jack\u2019s Angels<\/a>, those who register receive a commemorative medallion, stop-watch, and official race bib with number. \u00a0\u00a0Those acquainted with the \u201cRun for the Whitehouse\u201d events may be familiar with last year\u2019s Virtual Uberthon; Jack\u2019s Angels takes it a step further, asking that people\u2014who are so inclined\u2014help advocate for H.Res.69 on social media with the event, using designated hashtags #CureDIPG, #runforDIPG, #defeat DIPG, and #HRes69.\u00a0 Both the local \u201cRun the Rocks\u201d and \u201cVirtual Relay for Jack\u201d comprise Jack\u2019s Angels Relay for Research 2017<\/a><\/em>, supporting research and advocating for H.Res.69.<\/p>\n

Partners in DIPG Awareness; why May 17?<\/strong><\/p>\n

Michael Mosier Defeat DIPG Foundation<\/a> in Bethesda, MD, has taken on the monumental effort of the \u201cDIPG Across the Map\u201d project with the ambitious goal of creating a proclamation in as many of the states as possible for a DIPG Awareness Day of May 17, 2017.\u00a0 In support of this effort, Jack\u2019s Angels is working with CA State officials for a Proclamation in California, and has adapted last year\u2019s draft of the National Resolution to designate May 17 as National DIPG Awareness Day for H.Res.69.<\/p>\n

Intention<\/strong><\/p>\n

For years, parents in the childhood cancer community have been asking for a conversation about United States tax dollars purposed for cancer research, and the annual amount that is designated for pediatric cancer research\u2014a question met by silence or denial of the issue for the most part, Demeter contends.<\/p>\n

\u201cWe hope DIPG awareness encourages discussion about our federal funds for cancer research, and ultimately, transparency and greater representation of public interest,\u201d continues Demeter as she admits that the Resolution may be edited at Committee vote to please all supporters. \u00a0\u00a0She concludes, \u201cwe will do what we can for it to succeed in its basic intention, to raise awareness for DIPG, to support those currently fighting, and to honor the tens of thousands of children who have bravely faced an untimely death with little to no attention, or hope.\u00a0 It is written for them.\u00a0 Their lives matter.\u201d<\/p>\n

Please sent comments and inquiries to jacksangels1@gmail.com<\/a>, or 661-977-3125.<\/p>\n

 <\/p>\n

Virtual \u201cRelay for Jack\u201d Information:\u00a0 http:\/\/CureDIPG.info<\/a><\/p>\n

Registration: \u00a0http:\/\/www.virtualuberthons.com\/draft-jack-s-angels<\/a><\/p>\n

\u201cRun the Rocks!\u201d 4\/30\/2017 in Agua Dulce, CA, information:\u00a0 http:\/\/runtherocks.info<\/a><\/p>\n

 <\/p>\n

Information about H.Res.69:\u00a0 http:\/\/hres69.org<\/a><\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

Jack\u2019s Angels Inc<\/p>\n

32520 Wagon Wheel Rd.<\/p>\n

Agua Dulce, CA 91390<\/p>\n

661-977-3125 \/ 818-400-2724 cell\/txt<\/p>\n

Jacksangels1@gmail.com<\/a><\/p>\n

www.jacksangels.org<\/a><\/p>\n

501(c)3 tax ID:\u00a0 46-1320003<\/p>\n","protected":false},"excerpt":{"rendered":"

Rally-On for H.Res.69!\u00a0 Help End Obscurity for DIPG and Pediatric Cancer February 19, 2017, Agua Dulce, CA\u2014Jack\u2019s Angels Foundation is calling on the Childhood Cancer Community for support in rallying Congress for the 2017 National DIPG Awareness Resolution, H.Res.69.\u00a0\u00a0 It raises awareness to the realities of pediatric brain cancer, and\u2026<\/p>\n

Continue reading<\/i><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[240,72,160,701],"tags":[155,74,1056,1055,477,363,9,1013,77,1033,1053,20,1034,536,1032,1054,1037],"class_list":["post-5453","post","type-post","status-publish","format-standard","hentry","category-call-to-action","category-editorial","category-press-release","category-response-invitation","tag-acr151","tag-assemblyman-scott-wilk","tag-brain-tumor-awareness-month","tag-ca-state-senator","tag-childrens-cancer-therapy-development-institute","tag-congresswoman-jackie-speier","tag-dipg","tag-dipg-across-the-map","tag-dipg-awareness-week-in-california","tag-h-res-69","tag-hres69-org","tag-jacks-angels","tag-may-17","tag-michael-mosier-defeat-dipg-foundation","tag-representative-steve-knight","tag-run-the-rocks","tag-virtual-relay-for-jack"],"_links":{"self":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/5453","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5453"}],"version-history":[{"count":0,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/5453\/revisions"}],"wp:attachment":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5453"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=5453"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=5453"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}