{"id":5952,"date":"2018-01-30T15:06:37","date_gmt":"2018-01-30T23:06:37","guid":{"rendered":"https:\/\/jacksangelsfoundation.com\/?p=5952"},"modified":"2018-01-30T16:15:06","modified_gmt":"2018-01-31T00:15:06","slug":"congressman-knight-champions-awareness-legislation-for-children-with-cancer","status":"publish","type":"post","link":"https:\/\/jacksangelsfoundation.com\/?p=5952","title":{"rendered":"Congressman Knight Champions Awareness Legislation for Children with Cancer"},"content":{"rendered":"

\"\"<\/a><\/i><\/b><\/p>\n

January 30, 2018, Santa Clarita, CA–<\/i><\/b>One year ago today, Congressman Steve Knight (R-CA-25) introduced with Congresswoman Jackie Speier (D-CA-14) H.Res.69, the National DIPG Awareness Resolution to the House Energy and Commerce Committee. \u00a0The Resolution persists today, amid an intensive political landscape in 2018, for children with the deadliest pediatric brain cancer, DIPG: \u00a0diffuse intrinsic pontine glioma. \u00a0Not only does the bill call for an Awareness Day for these children and their families, May 17, it asks that our medical research industry take into greater consideration research funding for pediatric and high-risk cancers. \u00a0Brain cancer is the leading cause of death in children afflicted with cancer, and DIPG is responsible for the majority of those deaths annually in the United States,<\/span> yet it remains one of the least funded areas of cancer research. \u00a0<\/span><\/p>\n

In this way, DIPG epitomizes the experience of a pediatric cancer diagnosis: there are few options because \u201cthe numbers aren\u2019t great enough for investors.\u201d \u00a0\u00a0Families are left to watch and wait in utter helplessness as their child fades from this earthly existence, not knowing exactly when, how, or ultimately why. \u00a0\u201cIf there were one thing I could help to change, it would be that experience,\u201d relates Janet Demeter, a local mom and activist for DIPG and children with cancer.<\/span><\/p>\n

Congressman Knight\u2019s attention to his constituent\u2019s activism for children with cancer and specifically for DIPG led to the writing of H.Res.69.<\/span> \u00a0Jack\u2019s Angels Foundation is local to his district and President Janet Demeter first worked with Steven Knight when he was CA State Senator, along with then CA State Assemblyman Scott Wilk (now CA State Senator) in 2014 for the writing of ACR151, which declared the fourth week of May to be DIPG Awareness week. \u00a0This was the first appearance of DIPG Awareness in the realm of legislation. \u00a0In this last year 2017, 21 States declared an Awareness Day for DIPG, including California thanks to current Assemblyman Dante Acosta, all concurring on May 17 as written in H.Res.69. \u00a02017 Santa Clarita Mayor Cameron Smyth graciously added the City of Santa Clarita to the list of observing cities and states of May 17 as DIPG Awareness Day.<\/span><\/p>\n

Just this last December 2017, the DIPG Advocacy Group, a creation of Jack\u2019s Angels, took its first trip to Washington DC in support of the Resolution to encourage activity within the House Energy and Commerce Committee where it was introduced. \u00a0\u201cOur children with cancer have been falling through the cracks and loopholes of the system for decades; H.Res.69 at least brings it to national awareness with the hope of some real conversation about solutions. \u00a0We have Steve Knight to thank for that, for championing a bill that lends a voice to thousands of children who will never have one,\u201d maintains Demeter, who has managed to attract volunteer support for the DIPG Advocacy Group from across the United States. <\/span><\/p>\n

For more information about H.Res.69, the DIPG Awareness Resolution, the DIPG Advocacy Group, and Jack\u2019s Angels Foundation, visit <\/span>www.hres69.org<\/span><\/a>, an advocacy website for H.Res.69, and <\/span>www.jacksangels.org<\/span><\/a>, Jack\u2019s Angels home website. \u00a0The DIPG Advocacy Group also can be found on Facebook for news, updates and conference calls.<\/span><\/p>\n

 <\/p>\n

Jack\u2019s Angels Foundation,\u00a0<\/span>Writing Staff,\u00a0<\/span>32520 Wagon Wheel Rd.,\u00a0<\/span>Agua Dulce, CA 91390;\u00a0<\/span>661-977-3125 office,\u00a0<\/span>818-400-2724 mobile\/txt;\u00a0<\/span>jacksangels1@gmail.com,\u00a0\u00a0\u00a0<\/span><\/a>www.jacksangels.org<\/span><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

January 30, 2018, Santa Clarita, CA–One year ago today, Congressman Steve Knight (R-CA-25) introduced with Congresswoman Jackie Speier (D-CA-14) H.Res.69, the National DIPG Awareness Resolution to the House Energy and Commerce Committee. \u00a0The Resolution persists today, amid an intensive political landscape in 2018, for children with the deadliest pediatric brain\u2026<\/p>\n

Continue reading<\/i><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[72,140],"tags":[1019,373,27,112,1369,9,1332,532,1033,376,20,290,1365,1034,1371,961,1368,25,1366,26,295,1370,1364],"class_list":["post-5952","post","type-post","status-publish","format-standard","hentry","category-editorial","category-newsflash","tag-assemblyman-dante-acosta","tag-california","tag-children","tag-congressman-steve-knight","tag-conversation","tag-dipg","tag-dipg-advocacy-group","tag-dipg-awareness-resolution","tag-h-res-69","tag-house-energy-and-commerce-committee","tag-jacks-angels","tag-janet-demeter","tag-marginalized","tag-may-17","tag-mayor-cameron-smyth","tag-medical-research-industry","tag-national-awareness","tag-pediatric-cancer","tag-rare","tag-research-funding","tag-santa-clarita-ca","tag-senator-scott-wilk","tag-steven-knight"],"_links":{"self":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/5952","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5952"}],"version-history":[{"count":0,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/5952\/revisions"}],"wp:attachment":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5952"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=5952"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=5952"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}