{"id":6279,"date":"2018-11-11T04:29:50","date_gmt":"2018-11-11T12:29:50","guid":{"rendered":"https:\/\/jacksangelsfoundation.com\/?p=6279"},"modified":"2018-11-11T10:59:49","modified_gmt":"2018-11-11T18:59:49","slug":"a-closer-look-with-ellyn-miller","status":"publish","type":"post","link":"https:\/\/jacksangelsfoundation.com\/?p=6279","title":{"rendered":"A Closer Look with Ellyn Miller"},"content":{"rendered":"<div id=\"attachment_6280\" style=\"width: 416px\" class=\"wp-caption alignleft\"><a href=\"http:\/\/bit.ly\/CCTR11-08-18\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-6280\" class=\"wp-image-6280\" src=\"https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2018\/11\/EllynMiller11-08-18-1024x636.png\" alt=\"\" width=\"406\" height=\"252\" srcset=\"https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2018\/11\/EllynMiller11-08-18-1024x636.png 1024w, https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2018\/11\/EllynMiller11-08-18-300x186.png 300w, https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2018\/11\/EllynMiller11-08-18-768x477.png 768w, https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2018\/11\/EllynMiller11-08-18-150x93.png 150w, https:\/\/jacksangelsfoundation.com\/wp-content\/uploads\/2018\/11\/EllynMiller11-08-18.png 1152w\" sizes=\"auto, (max-width: 406px) 100vw, 406px\" \/><\/a><p id=\"caption-attachment-6280\" class=\"wp-caption-text\">podcast download<\/p><\/div>\n<p>The Gabriella Miller Kids First Research Act, first signed into law in 2014, is perhaps one of the most important pieces of legislation and resulting research and data-resource programs for pediatric disease, to date. It begins to fill the void left by the industry of medical research and its biggest players: pharmaceutical companies, the larger cancer charities and research investors, and the NIH, when it comes to pediatric disease.<\/p>\n<p>All childhood cancers are considered rare with that label are immediately placed on a sort of indefinite hold of irrelevance. This new pediatric research and data-resource program at the NIH is the game changer for children who face deadly disease and an uncertain future.<\/p>\n<p>Ellyn Miller, mother of Gabriella who was diagnosed with DIPG&#8211;diffuse intrinsic pontine glioma&#8211;at the tender age of 9 and who died almost a year later in 2013, joins us to discuss developments in this program, it&#8217;s Kids First 2.0 continuation, and Gabriella&#8217;s legacy of strong advocacy for children with cancer and for the most relevant and transformative scientific research.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Gabriella Miller Kids First Research Act, first signed into law in 2014, is perhaps one of the most important pieces of legislation and resulting research and data-resource programs for pediatric disease, to date. It begins to fill the void left by the industry of medical research and its biggest\u2026<\/p>\n<p class=\"continue-reading-button\"> <a class=\"continue-reading-link\" href=\"https:\/\/jacksangelsfoundation.com\/?p=6279\">Continue reading<i class=\"crycon-right-dir\"><\/i><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-6279","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/6279","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=6279"}],"version-history":[{"count":0,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/6279\/revisions"}],"wp:attachment":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=6279"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=6279"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=6279"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}