{"id":6467,"date":"2019-04-15T15:38:03","date_gmt":"2019-04-15T22:38:03","guid":{"rendered":"https:\/\/jacksangelsfoundation.com\/?p=6467"},"modified":"2019-04-16T14:00:43","modified_gmt":"2019-04-16T21:00:43","slug":"alliance-support-letter-for-h-res-114","status":"publish","type":"post","link":"https:\/\/jacksangelsfoundation.com\/?p=6467","title":{"rendered":"Alliance Support Letter for H. Res. 114"},"content":{"rendered":"\n
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visit the Alliance!<\/a><\/figcaption><\/figure>\n\n\n\n

Please visit the <\/em>Alliance for Childhood Cancer\u00a0t<\/em><\/a>o see the full plate of legislative activity in which they engage as advocates for the childhood cancer community as a whole.<\/em><\/p>\n\n\n\n

April 15, 2018 pdf version<\/a><\/p>\n\n\n\n

The Honorable Frank Pallone, Jr. Chairman, Committee on Energy & Commerce 2107 Rayburn House Office Building Washington, DC 20515 <\/p>\n\n\n\n

The Honorable Greg Walden, Ranking Member, Committee on Energy & Commerce 2185 Rayburn House Office Building Washington, DC 20515 <\/p>\n\n\n\n

Dear Chairman Pallone and Ranking Member Walden, <\/p>\n\n\n\n

The undersigned childhood cancer organizations are members of the Alliance for Childhood Cancer, consisting of patient advocacy groups, healthcare professionals and scientific organizations, representing millions of Americans who care deeply about childhood cancer. We write in support of House Resolution 114, which would designate May 17th as \u201cDIPG Awareness Day\u201d to raise awareness and encourage research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general. <\/p>\n\n\n\n

Diffuse Intrinsic Pontine Glioma is the leading cause of childhood brain tumor deaths. Every year, 200-400\nchildren in the U.S. will be diagnosed with DIPG, and most of them will only survive nine months, or about as\nlong as the typical school year. There is currently no consistent standard of care for these kids, and few\ntreatments.\n<\/p>\n\n\n\n

The House resolution designating a DIPG Awareness Day would help spread awareness about this deadly disease, and support researchers in their efforts to find new therapies to treat DIPG. In addition, the\nresolution proposes that private and public research funding \u201celevate the consideration of the mortality rate\nof a type of cancer\u201d to ensure that research is funded to find treatments for those with the most challenging\ndiseases.\n<\/p>\n\n\n\n

While all childhood cancer is devastating, DIPG is a particularly terrible disease that leaves children and their\nfamilies with limited options and limited time. We urge you to pass this resolution to honor those children\nwhose lives have been lost, and to encourage additional research to give hope for children diagnosed in the\nfuture.\n<\/p>\n\n\n\n

Sincerely,\n<\/p>\n\n\n\n

Children’s Oncology Group
Rally Foundation for Childhood Cancer Research <\/p>\n\n\n\n

Children’s Brain Tumor Foundation
Children’s Cause for Cancer Advocacy
The Andrew McDonough B+ Foundation <\/p>\n\n\n\n

Association of Pediatric Hematology\/Oncology Nurses <\/p>\n\n\n\n

National Brain Tumor Society
American Society of Pediatric Hematology\/Oncology <\/p>\n\n\n\n

American Childhood Cancer Organization <\/p>\n\n\n\n

CureSearch for Children’s Cancer
St. Baldrick’s Foundation
Association of Pediatric Oncology Social Workers <\/p>\n\n\n\n

American Cancer Society\/Cancer Action Network <\/p>\n\n\n\n

Cc: Members of Congress\n<\/p>\n\n\n\n

2318 Mill Road Alexandria, VA 22314\/ alliance@asco.org\/ www.allianceforchildhoodcancer.org\n<\/p>\n","protected":false},"excerpt":{"rendered":"

Please visit the Alliance for Childhood Cancer\u00a0to see the full plate of legislative activity in which they engage as advocates for the childhood cancer community as a whole. April 15, 2018 pdf version The Honorable Frank Pallone, Jr. Chairman, Committee on Energy & Commerce 2107 Rayburn House Office Building Washington,\u2026<\/p>\n

Continue reading<\/i><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[240,138],"tags":[1755,522,1756],"class_list":["post-6467","post","type-post","status-publish","format-standard","hentry","category-call-to-action","category-awareness-letters","tag-childrens-brain-tumor-foundation","tag-st-baldricks-foundation","tag-the-andrew-mcdonough-b-foundation"],"_links":{"self":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/6467","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=6467"}],"version-history":[{"count":0,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=\/wp\/v2\/posts\/6467\/revisions"}],"wp:attachment":[{"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=6467"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=6467"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jacksangelsfoundation.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=6467"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}