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FOR IMMEDIATE RELEASE:
\nMay 17, 2021
\nCONTACT:
\nMackenzie Smith<\/p>\n
Dingell’s bipartisan resolution would establish a national DIPG Awareness Day on May 17<\/em><\/p>\n WASHINGTON, DC – Today, Congresswoman Debbie Dingell (D-MI) commemorated Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day by introducing a resolution with Rep. David Joyce (R-OH) to establish May 17th as DIPG Awareness Day and to support expanded research for treatments and care for DIPG. Rep. Dingell\u2019s constituent, five-year-old Chad Carr of Ann Arbor, lost his battle with DIPG in 2015.<\/p>\n \u201cNo family should have to experience the devastating disease that is DIPG,\u201d said Rep. Dingell. \u201cIn Michigan, we witnessed the strength and courage of the Carr family as five-year-old Chad Carr lost his battle with this rare form of pediatric brain cancer. Along the way Chad inspired our community to work together to fight this devastating disease, and his family continues to fight so others don\u2019t have to experience this pain. This resolution establishing May 17th as National DIPG Awareness Day is one step in the battle by helping to educate the public and ensure critical funding for research and treatment so we may one day find a cure.\u201d<\/p>\n \u201cI\u2019m proud to join Congresswoman Dingell in introducing this bipartisan resolution to increase awareness of one of the deadliest forms of pediatric cancer and call for increased funding to support the research needed to fight it,\u201d said Congressman Joyce. \u201cWe must continue to work together on behalf of every child, parent and family affected by this devastating disease until no child has to hear the heartbreaking words \u2018you have cancer\u2019 ever again.\u201d<\/p>\n Dingell\u2019s resolution aims to raise awareness and support efforts by the Carr family, who launched the Chad Tough Foundation in 2015 in honor of Chad and his battle with DIPG. The Chad Tough Foundation supports pediatric brain tumor research and studies nationwide. The resolution, if passed, would officially establish a national \u201cDIPG Awareness Day\u201d on May 17 to raise awareness for the disease, which is responsible for the most pediatric brain tumor deaths each year and has maintained one of the lowest survival rates.<\/p>\n DIPG is one of the more common pediatric brain tumors, and less than one percent of its victims live more than five years after diagnosis. In fact, the median survival time for children diagnosed with DIPG is only nine months. Despite its prevalence, the cancer has not garnered significant attention from the media, government agencies, or research investors, and as a result parents are regularly told there is nothing outside of palliative care they can do for their children. This bill would help change this by shining national attention on DIPG and urging the National Institutes of Health to adjust its criteria for considering grants so that research into diseases like DIPG can receive adequate funding.<\/p>\n <\/p>\n The full text of the resolution is available\u00a0here<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":" FOR IMMEDIATE RELEASE: May 17, 2021 CONTACT: Mackenzie Smith Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day Dingell’s bipartisan resolution would establish a national DIPG Awareness Day on May 17 WASHINGTON, DC – Today, Congresswoman Debbie Dingell (D-MI) commemorated Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day by\u2026<\/p>\n