—>Time and Date changed!–save it: 2-22-2015 1st DIPG Awareness Run of 2015!Across the Santa Clarita Valley 11.3 mi, 18.1k
The “Jackangel” again asks all locals to join the almost 20k run across the Santa Clarita Valley in support of encouraging the President to declare a National DIPG Awareness Day in 2015! Ribbons for DIPG children will be worn–and now all of them for children who have passed. Nathan Street, of Bakersfield, CA, and AJ Peterson, of Chicago IL both died of DIPG Tuesday, Feb. 17, 2015. Our hearts are heavy yet our legs are determined to shake the Earth for DIPG Awareness!
All of our runs this year are “free speech” for our DIPG children who have passed, and who are bravely struggling with no effective therapy developed for treating the terminal disease. We are running for more research for our kids; we believe firmly that if more people across the country are made aware of DIPG and the devastation it has exacted upon thousands of families for decades, “We the People” inevitably insist upon more research funding from our taxpayer dollars going to benefit our most vulnerable, and most precious citizens, our children.
DIPG awareness is pediatric brain tumor awareness, childhood cancer awareness, and awareness also for the inequitable amount of funding available for helping children with disabling diseases. We must have representation in our government when it comes to deciding how our taxpayer dollars are spent, but historically that doesn’t happen unless we demand it. Come on; join us! Our kids are depending on US! Link to the editorial here