“Dear Mr. Speaker…” We believe we’ve got a shot at a unifying prospect for the House of Representatives. The issue is non-partisan; there is no money in the resolution. It simply shines a national spotlight on an issue affecting our most precious population which has remained in obscurity for decades,…
The Childhood Cancer Talk Radio July 25, 2024 interview features childhood brain cancer survivors Tori Moreno (DIPG) and Michael Keller (Astrocytoma grade 3), both having received treatment at the Burzynski Clinic in Houston, TX over 2 decades ago. As long-term survivors, they tell of their early memories and shared triumphs…
FOR IMMEDIATE RELEASE: May 16, 2024 CONTACT: Chip Unruh, (202) 224-4642 U.S. Senate Passes DIPG Pediatric Brain Cancer Awareness Resolution Rubio-Reed resolution recognizes May 17 as DIPG Pediatric Brain Cancer Awareness Day WASHINGTON, DC – In an effort to raise awareness about pediatric brain cancer, encourage research on diffuse intrinsic pontine glioma (DIPG)…
May 15, 2024 downloadable pdf Press Summary The DIPG Awareness Resolution H. RES. 416 (118th Congress) “Expressing support for the designation of the 17th day in May as “DIPG Awareness Day” to raise awareness and encourage research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in…
Published 11:47 AM PDT, September 19, 2023 Original Press Release Historic Scientific Meeting to Focus on the Prevention of Childhood Cancer as Incidence Rates Continue to Rise Dramatically Schedule page 1 Schedule page 2 “I am excited to convene a group of scientists, advocates, and families dedicated…
May 17, 2023, Washington, DC–Just in time for the 118th Congress, yesterday was the fifth introduction to the U.S. House of Representatives of the DIPG Awareness Resolution, which draws attention to the unmet medical needs of children with brain cancer and establishes May 17 as DIPG Awareness Day. With a…
from arpa-h.gov: arpa-h.gov/oneyear Letter from the Director, Dr. Renee Wegrzyn | Open-Office Broad Agency Announcement (BAA) March 15, 2023 One year ago, President Biden outlined his vision for a new kind of agency to speed medical breakthroughs to patients who urgently need them, calling for the creation of…
To the Greater DIPG/Childhood Brain Cancer Community of Families, Advocates, and Organizations: We have a unique opportunity to support targeted funding for DIPG and Pediatric Brain Cancer in the FY24 Funding Bill. While the DIPG/Pediatric Brain Cancer Awareness Resolutions will be re-introduced this year as a supportive measure and an…
Through March 24, the event hosted by Jack’s Angels and Charity Footprints brings attention to, and supports financially with event proceeds, the critical work of “Kids-of-Ukraine” and their work in rescuing children with cancer and their families in the war-torn country of Ukraine. We bring you once more this interview…
Khrystyna, two years old At the beginning of the Russian full-scale invasion, Khrystyna was in a village in the Vinnytsia region, where she was born. In June, her mother noticed the girl became weak, stopped standing on her feet, and started losing her orientation in space. They received a referral…
