Pallone and Eshoo on House Passage of Ten Health Care Bills

ENERGY AND COMMERCE NEWSROOM, Chairman Frank Pallone, 116th Congress FOR IMMEDIATE RELEASE November 17, 2020 CONTACT  CJ Young (202) 225-5735 Pallone and Eshoo on House Passage of Ten Health Care Bills Washington, D.C. – Energy and Commerce Committee Chairman Frank Pallone, Jr. (D-NJ) and Health Subcommittee Chairwoman Anna G. Eshoo (D-CA) released…

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Expanded Access Program Press Release from Oncoceutics

Oncoceutics Receives Foundation Grants to Establish an Expanded Access Program for ONC201 Philadelphia, PA (November 2, 2020) – Oncoceutics, a clinical-stage drug discovery and development company, announced today that it has received grants from Michael Mosier Defeat DIPG Foundation, Dragon Master Foundation and The ChadTough Foundation to fund an Expanded…

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Advocacy Group Hosts Demonstration at US Capitol for Dismissed Measure Supporting Children Facing A Cruel Death

  The DIPG Awareness Resolution brings attention to children fighting for their lives; House leadership continues to dismiss them on a technicality. Oct. 31, 2020, Santa Clarita, CA– DIPG Advocacy Group, a coalition of pediatric brain cancer foundations and individual childhood cancer advocates, formed in late 2017 expressly for the…

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Josephine and Dana

Two special moms, Patricia Palman and Lenore Scatton, share stories of their amazing daughters who both left legacies of inspiration from their fateful battles with DIPG. Josephine Palman and Dana Scatton each had huge community followings and an outpouring of love and grief with their passing. They both coincidentally enjoyed…

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Fight for Owen, Find A Cure -from South Africa

Candice Hamman and Carl Jansen VanVuuren tell the story of their son Owen who was diagnosed in June 2020 with DIPG, diffuse intrinsic pontine glioma.  There are no treatment options besides the standard radiation and palliative care, and purchase of the experimental ONC201 from Germany.  Candice and Carl share from…

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The Rare Cancer Awareness, Research, and Treatment Act of 2020

The Shepherd Foundation is working with Congress to introduce a bill to position the rare cancer community for better outcomes. Founder and rare cancer patient David Hysong and CEO Catharine Young join us to discuss the recent virtual briefing with Congressman G.K.Butterfield (NC-1) and Gus Bilirakis (FL-12), Greg Simon, former…

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“Our Amazing Fighters” with LeAnna Headley

Meet LeAnna Headley, Childhood Cancer Talk Radio’s Hero of the Week! Our Amazing Fighters started as a simple instagram page in August of 2014 by now 19-year-old LeAnna Headley from Richmond, VA to raise awareness for childhood cancer. Since then it has evolved into so much more than a social…

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Meet Anne Beatty: Survivor, Advocate, Teacher.

Meet Anne Beatty from Prattville, Alabama. She retired in December 2019 after teaching for almost 24 years. Sadly, complications from a brain tumor–physical, and social–made retirement unavoidable. Her brain tumor journey began July 4, 2018; she had open heart surgery in February 2018 for a previously undetected congenital heart condition.…

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Tribute to DIPG Children Part III

Today’s radio broadcast is a special presentation and sneak peek of part II of a  Tribute Video, not yet seen, to DIPG children and their parents who have each contributed to the National DIPG Awareness Resolution in US Congress today through inspiration and advocacy for children with brain cancer.  The…

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