Pallone & Eshoo Applaud House Passage of Bill to Authorize President Biden’s Groundbreaking ARPA-H Initiative

FOR IMMEDIATE RELEASE June 22, 2022 CONTACT  CJ Young (202) 225-5735 Pallone & Eshoo Applaud House Passage of Bill to Authorize President Biden’s Groundbreaking ARPA-H Initiative Washington, D.C. – Energy and Commerce Committee Chairman Frank Pallone, Jr. (D-NJ) and Health Subcommittee Chairwoman Anna G. Eshoo (D-CA) released the following joint…

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Now Is The Time: “Moonshot4Kids” Congressional and White House OSTP Briefing Asserts Urgency for Childhood Brain Cancer

May 17 panel assembles to alert the Federal Government of the suffering and deaths of children with brain cancer, a leading killer of children in the USA downloadable pdf version “Now is the time for a Moonshot for Children.” –Michelle LeBeau, CSO Cancer Prevention Research Institute of Texas WASHINGTON, DC,…

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Hope Over Despair: Mariah Olson, Neuroblastoma Survivor

Mariah Olson was diagnosed in 1980 with neuroblastoma at the age of one year, and is a living testament as a survivor to the difficulties that so many children with cancer endure as a result of toxic, out-dated treatments they receive. She also attests to the pycho-social challenges of growing…

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In Support of H. Res. 114

DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOC…

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Outside the Box Part II, Jessica Doeden DIPG Survivor, Randy Hinton on Causes and Conditions

We follow-up and finish our conversation with Randy Hinton, father to Hayley who was diagnosed with DIPG (brainstem glioma-diffuse intrinsic pontine glioma) and perished to that disease some 13 years ago, regarding causes and conditions that remains the burden of parents to discover in their never-ending hunt for answers. We…

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The Children’s Cause for Cancer Advocacy with CEO George Dahlman

As the Chief Executive Officer of Children’s Cause for Cancer Advocacy, George Dahlman is responsible for the strategic management and operations of the nation’s preeminent childhood cancer policy organization. Mr. Dahlman is responsible for identifying and advancing issues that will improve the treatment and lives of childhood cancer patients and…

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Outside the Box with No Return: The Extraordinary Story of Hayley Hinton

Randy Hinton joins us from Summerville SC to discuss the circumstances surrounding his daughter Hayley’s diagnosis with brain cancer and the difficulties the family had in procuring effective and consolidated treatment for her. The controversial Burzynski Clinic in Houston TX takes center stage, as does Texas Anderson at Houston and…

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Facebook Post to Ryan Gosling

January 4, 2019, Agua Dulce, CA–I sent this note to Ryan Gosling on Facebook, hoping that somehow it would reach him: Hi Ryan, hoping this is actually your page. I just wanted you to know about an important awareness movement for the childhood cancer community, specifically for brainstem glioma–DIPG, the…

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Every Voice Matters: The Power of Initiative in Advocacy

Wendy and Dean Fachon of Rhode Island join us to talk about state legislation, national resolutions and the legacy of their son Neil, making a strong case for “Right to Try.” Paul Miller from Colorado shares about the power of social media and the magic of belief, with 2 successful…

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