NEWS/blog

  • “Help and Hope Happen Here,” a New Podcast with Mark Levine - Mark Levine is one of those special people who are moved from an inner conscience and love for all children. Mark and his wife Debbie live in Stoughton, MA and have two children and two grandchildren. Retired from managing a small business for many years, Mark now devotes his life’s work to advocacy and activism for children afflicted with cancer. He began volunteering for the Jimmy Fund in 2007, working events in area high schools…
  • All In To Win Foundation with Christina Wascher - Christina Wascher, a long-time childhood cancer advocate, is the President and founder of the All-In-to-Win Foundation based in Miami Florida since 2013. Christina has been a philanthropist and an entrepreneur in US and European project developments for Claridon International since 1982, specializing in start-up projects and bringing them to completion. She brings her expertise to the field of pediatric neuro-oncology in support of pharmaceutical interests needing greater support to meet the clinical needs of children,…
  • The Difference of a Decade: A Conversation with Childhood Cancer Advocate Jonathan Agin - This edition of Childhood Cancer Talk Radio gives a personal look at the landscape of childhood cancer advocacy over recent years, between parents of children afflicted with brain cancer.  For this, I have the honor of sharing conversation and perspective with fellow advocate Jonathan Agin, whose participation in the childhood cancer community spans this past decade and beyond; the great legislative advances made, the grassroots development of resources for families, and the wealth of leadership…
  • Today on CCTR: Bexion Pharmaceuticals Introduces Phase II Clinical Trial for DIPG/DMG with BXQ-350 -       Today on Childhood Cancer Talk Radio on TogiNet.com at 4pm EST,  Founder and CEO of Bexion Pharmaceuticals Dr. Ray Takigiku and Medical Affairs Consultant and Leader of the phase II clinical trial for DIPG/DMG at Cincinnati Children's Hospital, Dr. Richard Curry.  Both scientists provide insight into the discovery and development of this drug and their hopes for its success in the trial for BXQ-350, Bexion's lead drug candidate, a first-in-class biologic containing…
  • Progress in Advocacy with the Children’s Cancer Cause 2021 - Visit TogiNet.com for a complete list of podcasts available, including this one. Today's show is a recap of recent advances in childhood cancer advocacy and reiterates the basic facts about childhood cancer for which we strive to provide a worldwide platform for awareness at Childhood Cancer Talk Radio. As co-founder of DIPG Advocacy Group, host Janet Demeter is in a unique position to share the latests developments for childhood brain cancer advocacy and a new…
  • Life Beyond DIPG: Inspiration and Avocation - In this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and Marcelo Ortigao (Fort Collins, CO) share their personal experiences with DIPG, one of the more common types of childhood brain cancer, and the deadliest with very few survivors.  DIPG Advocacy Group is a coalition of childhood brain cancer organizations and individual childhood cancer advocates which initially formed to support the DIPG Awareness…
  • Keith Desserich and The Cure Starts Now - Keith Desserich, co-founder of The Cure Starts Now worldwide charity for pediatric brain tumor research, joins us today at this hopeful new year's beginning. When Keith and his wife Brooke found out that their beautiful daughter Elena had DIPG, a devastating pediatric brain tumor, there were no dedicated clinical trials, no networks, no information and no parent groups. Elena’s story was the first public case of DIPG, ultimately becoming the subject of a bestselling book…
  • For the Love of Aspen: The Agnew Family - For the love of Aspen, diagnosed 6/20/2020 at the age of 4 with DIPG, a terrifying childhood brain cancer, father Ryan, mother Allison, and Aunt Tristin join us to share what this journey has been like as we are precariously close to the discovery of a cure. Along with grandfather William Agnew, this family is dedicated to raising greater public awareness for DIPG to attract a cure more quickly for all. The Agnew family is…
  • Arms Wide Open Childhood Cancer Foundation, with Mike Gillette! - podcast download Arms Wide Open Childhood Cancer Foundation’s mission (AWOCCF) is to fund less toxic therapies for children with cancer so they can have a better quality of life as they battle the disease and to give families hope by bridging the funding gap and making available potentially life-saving clinical trials that would otherwise not be available. Through its many programs, Arms Wide Open also helps families throughout the United States both financially and emotionally…
  • 2020 Ends on a High Note with Hope on the Horizon - --The Arms Wide Open Cancer Foundation newsletter Dec. 31, 2020 Celebrating good news for the childhood cancer community! A string of successes at the federal level to wrap up 2020! Happy New Year! Though 2020 was a very challenging year, the childhood cancer community celebrated many hard-fought victories in November and December. These wins include: A 4-year extension of the Creating Hope Act, which incentivizes the pharmaceutical industry to develop drugs for children with cancer…

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