NEWS/blog

  • Meet Anne Beatty: Survivor, Advocate, Teacher. - Click picture for podcast Meet Anne Beatty from Prattville, Alabama. She retired in December 2019 after teaching for almost 24 years. Sadly, complications from a brain tumor--physical, and social--made retirement unavoidable. Her brain tumor journey began July 4, 2018; she had open heart surgery in February 2018 for a previously undetected congenital heart condition. On July 4th, she had a stroke due to a second undiagnosed heart condition; her brain tumor was discovered at that…
  • Tribute to DIPG Children Part III - click picture for podcast Today’s radio broadcast is a special presentation and sneak peek of part II of a  Tribute Video, not yet seen, to DIPG children and their parents who have each contributed to the National DIPG Awareness Resolution in US Congress today through inspiration and advocacy for children with brain cancer.  The Resolution is the unique contribution of the DIPG community to spearheading The Childhood Cancer Awareness Movement, a long-standing fight to raise…
  • About Juliana, with Tanja and Marcelo Ortigao - click pic for podcast Marcelo Ortigao, associate professor of Preventive Medicine and Emerging Infectious Diseases at the Uniformed Services University (USU), and his wife Tanja Hess, large animal veterinarian and associate professor of equine sciences at Colorado State University Fort Collins, join us to share their family's recent and tragic loss, and resultant advocacy for pediatric brain cancer. Juliana passed away on March 3, 2019, as a result of DIPG, diffuse intrinsic pontine glioma. Marcelo…
  • Tribute to DIPG Children, Part II - click for podcast Welcome to Part II of a special audio presentation of the DIPG Awareness Resolution Celebration and Tribute to DIPG Angels, formatted specially for Childhood Cancer Talk Radio. DIPG represents the hidden, untold story of childhood cancer, in a society informed mainly by commercials asserting that 80% of children survive cancer due to our success with certain types of leukemia.  DIPG is not the success story industry would like to promote, as it…
  • #BrainTumorAwarenessMonth: Florida Advocates Prevail for DIPG Awareness - Click for podcast Ana-Mari Carr (Miami, FL) and Bonnie Woodworth (Brandon, FL), an experienced advocate and legislative director of 1 Voice Foundation, join us to discuss their vocational work as advocates for children with cancer--notably DIPG and pediatric brain cancer. The Florida contingency of advocates with DIPG Advocacy Group this year helped to ensure that S. Res. 587, the National DIPG/Pediatric Brain Cancer Awareness Resolution passed the Senate, and that the House Resolution or #Moonshot4Kids,…
  • Mithil Prasad Foundation, with Rachna Prasad - Click for podcast The sibling perspective on childhood cancer is often the least recognized; our guest Rachna Prasad is an example of hope, inspiration, and dedication to a greater purpose. Her brother Mithil was afflicted with DIPG, the second most common and the deadliest pediatric brain cancer. As Vice President of the Mithil Prasad Foundation, and her work helping other cancer siblings with the Pediatric Brain Tumor Foundation, Rachna is an agent of hope within…
  • Ellyn Miller and Jill Morin on “Kids First!” #GMKF - click picture for podcast. The Gabriella Miller Kids First Research Act 2.0 was introduced in a bipartisan way on April 17, 2020. The original bill signed by President Obama in 2014 established a special fund and database with NIH for childhood genetic diseases and childhood cancers, an area of research which has been historically underfunded. Learn how you can support this crucial legislation which allocates funds in a most creative way; without using taxpayer dollars,…
  • Senator Rubio Applauds the Passage of his Resolution to Designate May 17 as DIPG #PediatricBrainCancer Awareness Day - News article from EIN Presswire Senator Marco Rubio (R-FL) Champion for the 2020 Senate DIPG Pediatric Brain Cancer Awareness Resolution May 19, 2020, Santa Clarita, CA--This evening, Senator Rubio’s office sent news to Janet Demeter, Organizer for the DIPG Advocacy Group and founder of Jack’s Angels, a childhood brain cancer foundation in Agua Dulce, CA, that a Senate vote had taken place and had unanimously passed the 2020 DIPG Pediatric Brain Cancer Awareness Resolution.  May…
  • NBTS Head to the Hill with Lainey Samant and Jenica Castillo-Harden - click pic for podcast Lainey Titus Samant is the Director of Government Relations at the National Brain Tumor Society.  Lainey oversees NBTS’s grassroots advocacy program that includes volunteer brain tumor advocates across the country and also works with the rest of the government relations team to monitor and influence legislation and appropriations that affect the brain tumor community. This year's NBTS "Head to the Hill" event will be conducted virtually due to the Covid-19 pandemic;…
  • #Moonshot4Kids: To House Committee Leadership - To Chairman Pallone, Ranking Member Walden, Chairwoman Eshoo, and Ranking Member Dr. Burgess: DIPG Advocacy Group and the undersigned are asking for your attention to the leading cause of cancer-related death in children, pediatric brain cancer, and H. Res. 114, the DIPG Awareness Resolution.  We are asking for its process through Committee for the possibility of a House vote this Congress.  After 4 years have passed, three introductions, and approximately 1600 more deaths from DIPG…

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