NEWS/blog

  • A U.S. Congress United: Resolution Spotlights Childhood Brain Cancer, Establishes May 17 as DIPG Awareness Day - May 17, 2023, Washington, DC–Just in time for the 118th Congress, yesterday was the fifth introduction to the U.S. House of Representatives of the DIPG Awareness Resolution, which draws attention to the unmet medical needs of children with brain cancer and establishes May 17 as DIPG Awareness Day.  With a 7-year track record in the House, the resolution attained an unprecedented 220 signatures last Congress to acknowledge DIPG and childhood brain cancer–the leading cause of…
  • ARPA-H releases funding opportunities, site selection process, and idea competition - from arpa-h.gov: arpa-h.gov/oneyear Letter from the Director, Dr. Renee Wegrzyn    |    Open-Office Broad Agency Announcement (BAA) March 15, 2023 One year ago, President Biden outlined his vision for a new kind of agency to speed medical breakthroughs to patients who urgently need them, calling for the creation of the Advanced Research Projects Agency for Health (ARPA-H). Last week, the President reaffirmed that commitment with release of the budget, which calls for additional funding…
  • DEADLINE for signatures March 22, Dear Colleague letter for FY24 language for targeted funding of DIPG/Childhood Brain Cancer - To the Greater DIPG/Childhood Brain Cancer Community of Families, Advocates, and Organizations: We have a unique opportunity to support targeted funding for DIPG and Pediatric Brain Cancer in the FY24 Funding Bill.  While the DIPG/Pediatric Brain Cancer Awareness Resolutions will be re-introduced this year as a supportive measure and an ongoing campaign for greater awareness of the urgent, unmet medical needs of children with brain cancer, this is an opportunity to directly accelerate innovation, collaboration…
  • Jack’s Heart for Ukraine Supports Kids-of-Ukraine, with US Outreach Coordinator Devan Tatlow - Through March 24, the event hosted by Jack's Angels and Charity Footprints brings attention to, and supports financially with event proceeds, the critical work of "Kids-of-Ukraine" and their work in rescuing children with cancer and their families in the war-torn country of Ukraine.  We bring you once more this interview with Devan Tatlow, two-time childhood cancer survivor and US Outreach coordinator for Kids-of-Ukraine, once more just after the year anniversary of the war to bring…
  • Kids-of-Ukraine, Stories of Children with Cancer - Khrystyna, two years old At the beginning of the Russian full-scale invasion, Khrystyna was in a village in the Vinnytsia region, where she was born. In June, her mother noticed the girl became weak, stopped standing on her feet, and started losing her orientation in space. They received a referral from the local doctor to the regional hospital, and from there, they were already referred to the oncology center in Kyiv (Okhmatdyt Children's Hospital). In…
  • Shining A Light on Grief with Susan Lataille, Author - Susan Lataille joins us today live to share her book series with the latest edition, Shining a Light on Grief, real women sharing real stories of love and loss, coming in April 2023.  Susan has been producing professional events for the wellness industry in and around her community in Rhode Island for over 12 years.  Since the passing of her son Nathan in 2017, she has been guided to help others through the grieving process,…
  • Our Nation’s Best: A Kid Again, with Kathy Derr - Today's show features an interview with Kathy Derr, Co-Founder and Director of Family Engagement for A Kid Again, a national organization with a mission to foster hope, happiness and healing for children with life-threatening health conditions and their families. The organization provides cost-free, consistent, year-round activities that create meaningful shared experiences and joy-filled memories. A Kid Again serves families in all 50 states, growing and enrolling families, and providing support resources and connections to help…
  • Full Interview, Chief Mission Officer Andy Woods with cc-TDI - From contented stone mason living the dream with his family in beautiful Montana, to scientific investigator at the leading US biotech institute for childhood cancer research, here is an amazing story! Today's show brings to you the complete interview with Andy Woods, Chief Mission Officer with Children's Cancer Therapy Development Institute in the outlying western suburbs of Portland Oregon. Andy gives us generous insight into family life before a life threatening diagnosis for his daughter,…
  • Songs of Love: Inspiration in Service of Children - John Beltzer, CEO and Founder of "Songs of Love" Foundation shares with Childhood Cancer Talk Radio the personal inspiration behind the Foundation, based in New York City. As a way of providing sick children with an ongoing source of comfort and joy, and a therapeutic tool for healing, he set out to create personalized, one-of-a-kind songs for them beginning in 1996. The Songs of Love Foundation is a 501(c)(3) charitable organization which creates personalized songs…
  • Texas Leads with the Carson Leslie Foundation, CPRIT, and Congressman McCaul for a Cancer Moonshot for Kids - Congressman Michael McCaul (R-TX-10) is the Founder and Co-Chairman of the Childhood Cancer Caucus, and has been attendant upon the accelerated progress in the childhood cancer community over the last 13 years in legislation and overall awareness for the #1 disease-related killer of children in the United States.  Featured in this episode which opens Childhood Cancer Awareness Month 2022, is Congressman McCaul's opening remarks to the Moonshot4Kids Childhood Brain Cancer Briefing on May 17, 2022.…

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