NEWS/blog

  • A Voice of Hope, Caring, and Leadership, with Jessica Elder and the Children’s Brain Tumor Foundation - Jessica Elder, LMSW, LCSW-NY has been the Bereavement Program Manager at Children’s Brain Tumor Foundation for 11 years. Originally from Pittsburgh, PA she acquired a Master of Science degree in social work from Columbia University in 2004, and spent 5 years working as a pediatric oncology social worker in an NYC Hospital. She then earned a post graduate training certificate in child and adolescent psychotherapy from IPTAR in NYC. In 2009 she began her role…
  • Out of the Box: Looking for Answers with Rich Schiff - Retired SFPD Police Captain Rick Schiff joins us to share his experience in the mid 1990s with his daughter Chrissy, one of twins, who was diagnosed with a rare and deadly form of brain cancer. Since losing her to the effects of her original lethal-dose conventional treatments, he has tirelessly advocated for patients seeking treatment at the Burzynksi clinic in Houston, TX. The fundamental question is, why do the terminally diagnosed not all have access…
  • Reticence vs. Passion: The Voices of DIPG Survivors - Childhood Cancer Talk Radio Presents Jessica Ressel-Doeden and Celeste Sabagh Today we hear from two strong, resilient, beautiful women who have beat the odds for a childhood brain cancer that normally proves to be inescapable and merciless. Jessica Ressel-Doeden from St. Louis Missouri here in the USA, and Celeste Sabagh in Cordoba Argentina have not only DIPG in common as long-term survivors, but a success with treatment from Dr. Burzynski in Houston, TX. Their paths…
  • Superpowers Unite: The ChadTough Defeat DIPG Foundation - Childhood Cancer Talk Radio Presents Tammi Carr and Jenny Mosier Today's show features interviews with Tammi Carr and Jenny Mosier, leaders of their respective foundations, Chadtough, in Ann Arbor Michigan and Michael Mosier Defeat DIPG Foundation in Bethesda Maryland, recently merged into the ChadTough Defeat DIPG Foundation. Each foundation leader has trailblazed on her own, and in collaboration with others, research in pediatric neuro-oncology and in raising needed awareness for the urgent, unmet needs of…
  • From Tragedy to Leadership, Information, and Hope: Gerry Tye, DIPG Dad - Childhood Cancer Talk Radio Presents Gerry Tye with updates from Down Under After losing his precious son Talin to brain cancer, Gerry Tye of Sydney, Australia took a leadership role in creating support and networking for the childhood cancer community, specifically for DIPG and childhood brain cancer during a critical period of growth between 2012 and present. Founder of the DIPG Research Group and administrator for DIPG Awareness for Family and Friends groups on Facebook,…
  • Hope Over Despair: Mariah Olson, Neuroblastoma Survivor - Mariah Olson was diagnosed in 1980 with neuroblastoma at the age of one year, and is a living testament as a survivor to the difficulties that so many children with cancer endure as a result of toxic, out-dated treatments they receive. She also attests to the pycho-social challenges of growing up with severe medical issues which affect children with cancer. Most importantly, she is a testament to the power of hope and positivity amid these…
  • The Fairness to Kids with Cancer Act: A Conversation with the Inspiration, Mina Carroll - Childhood Cancer Talk Radio presents a conversation with Mina Carroll, foundation leader and childhood cancer advocate. Mina Carroll with the Storm the Heavens Fund in Philadelphia, PA, literally coined the “We Must Do Better” -for children with cancer- phrase to confront the terrible reality in our society today that children are, for all practical purposes, neglected for research funding by the system in place. Mina's beautiful daughter Philomena was afflicted with DIPG, the killer childhood…
  • RUBIO APPLAUDS PASSAGE OF RESOLUTION TO DESIGNATE MAY 17 AS DIPG PEDIATRIC BRAIN CANCER AWARENESS DAY  - For Immediate Release Contact: Dan Holler, 202-224-3041 May 25, 2021 Washington, D.C. — U.S. Senator Marco Rubio (R-FL) applauded the passage of his resolution to designate May 17 as DIPG Pediatric Brian Cancer Awareness Day (S.Res.231), which raises awareness of, and encourages research on Diffuse Intrinsic Pontine Glioma (DIPG) tumors and other pediatric cancers. DIPG is not only the deadliest form of pediatric brain cancer, it also remains the second most common form of pediatric brain cancer and…
  • Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day -   FOR IMMEDIATE RELEASE: May 17, 2021 CONTACT: Mackenzie Smith Dingell Honors Ann Arbor's Chad Carr, Commemorates DIPG Awareness Day Dingell's bipartisan resolution would establish a national DIPG Awareness Day on May 17 WASHINGTON, DC - Today, Congresswoman Debbie Dingell (D-MI) commemorated Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day by introducing a resolution with Rep. David Joyce (R-OH) to establish May 17th as DIPG Awareness Day and to support expanded research for treatments and care…
  • Childhood Brain Cancer: PNOC Foundation Informational Webinars - PNOC Foundation Administrators Allyn Campbell and Rachael Cassells join us to discuss the May 1 DIPG/DMG webinar and how people can register at www.PNOCF.events, and other upcoming webinars for the special month of May.  For Brain Tumor Awareness Month, we share childhood brain cancer statistics and facts, and why awareness for childhood brain cancer is so important for research, and outcomes. AND! The May 1 webinar on DIPG/DMG will repeat, so be sure to visit…

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