NEWS/blog

  • Scott Carter Foundation and CureSearch fund Clinical Trial for DIPG - Paula Carter, founder of the Scott Carter Foundation in Tulsa, OK, joins us with Caitlyn Barrett, National Director of Research and Programs for CureSearch, to discuss their collaboration in supporting a new clinical trial for DIPG. The Scott Carter Foundation has been supporting childhood cancer research for three decades in honor of Scott Carter (Paula's son)and his 3 year battle with bone cancer from which he perished in 1996. CureSearch has for its mission the…
  • Shepherd Foundation and the Cancer Patient Equity Act of 2021 - Catharine Young, Executive Director of the Shepherd Foundation (Alexandria, VA) visits with us to give history and background to the Cancer Patient Equity Act of 2021, H. R. 5377, newly introduced to the US House of Representatives. With a focus on equity for patients with rare cancers, which comprise a whopping 95% of cancer diagnoses in the United States, the Shepherd Foundation has created a campaign to unite the public and Congress around this idea…
  • DIPG Advocacy Group Policy in Grassroots Advocacy Work - Awareness Campaign Agenda for H. Res. 404 and legislation for childhood cancer/disease. DIPG Advocacy Group is not a legally incorporated entity, but a coalition or alliance (unofficial corporate body) of childhood cancer organizations and individual advocates supporting the National DIPG Awareness Resolution, which has had 3 Senate and 4 House of Representatives introductions on its pathway to success.  It is not a law to be signed or a measure which authorizes funding; it has no…
  • Braving the Controversy of Cancer Success: Pioneering Scientist and Physician Dr. Stanislaw Burzynski - Dr. Burzynski’s cancer research and patient care has been inspired by the philosophy of the physician Hippocrates: ‘First, do no harm’. The Burzynski Clinic (Houston, TX) approach to treatment is ‘personalized’ in an attempt to maximize effectiveness and minimize side effects for each cancer patient.  However the success of his specialized treatments with many patients has evoked controversy from the conventional treatment world as viable low-toxicity therapies have consistently done over the last century.  In…
  • Arms Wide Open Childhood Cancer Foundation with Dena Sherwood, Founder -   On July 6, 2008, the lives of Dena and Billy Sherwood changed forever when their then 13-month-old son, Billy Jr., was diagnosed with Neuroblastoma, a very aggressive cancer of the sympathetic nervous system that most commonly occurs in infants and children under the age of five. In August of 2009, in the midst of their son’s aggressive treatment, Dena and Billy founded Arms Wide Open Childhood Cancer Foundation. Through the foundation's Emmy-Award winning documentaries…
  • 1Voice Foundation with Mary Ann Massolio - 1Voice Foundation, based in Brandon, Florida has been innovating and implementing helpful programs for children with cancer for over 2 decades. We have the unique opportunity to hear from Founder and CEO Mary Ann Massolio, who shares with us her dedication, from her own tragic loss, to serving the childhood cancer community and research community with multiple innovative programs to support the many aspects of the lives of children with cancer and their families. Recent…
  • BOOK LAUNCH: Candy Cotton Clouds, with Kristena Kitchen - Kristena Kitchen joins us from Maryland and Bryanna's Love Foundation to share her upcoming book launch for "Cotton Candy Clouds" on Thursday, September 9th at 7pm ET Live on Facebook. Kristena's daughter Bryanna tragically lost her life in 2018 to ETP-ALL, a rare type of childhood leukemia for which there are not yet targeted treatments. Bryanna's Love Foundation provides programs to support kids fighting cancer and their siblings, as well as supporting urgently needed ETP-ALL…
  • Tori Moreno, DIPG Survivor -   Twenty-three year old Tori Moreno is fortunate not to remember too much of her early diagnosis with DIPG, but she remembers enough. Treated at the controversial Burzynski Clinic in Houston, TX, Tori did well on the treatments as an infant, and she is now a long-term survivor of the deadliest pediatric brain cancer. Tori generously discusses with us what survivorship is like today, and what it was like at various other times in her…
  • Taking on The System with Randy Hinton - With Randy Hinton   Without adequate national awareness of the urgent, unmet needs of children with cancer, the failure of the medical research system to address childhood cancer will continue as progress remains a high-grade uphill battle. Randy Hinton is a childhood cancer advocate from South Carolina, and father to Haley who he lost in the 2000s to DIPG, a deadly and prevalent brain tumor in children. Despite advances in advocacy to change and instate…
  • Jacob’s Legacy: National Monument Honoring Children with Cancer - On January 4, 2021, 6 year-old Jacob Senediak of Pittsburgh, PA died due to complications from his fight with DIPG, a deadly childhood brain cancer which spares mercilessly few of its victims.  His father, Mark Senediak, joins us on Childhood Cancer Talk Radio to begin a discussion about efforts his family and others connected with "Jacob's Fight," the fledgling foundation developing through this mission, are undertaking to build a one-of-a-kind monument to all children present,…

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