NEWS/blog

  • So, let me ask you America…can’t we do better than that? - Hello, My name is Harold Mike Junge.  My friends and family call me Mike…so let’s stick with that.  It’s a pleasure to meet you!  I’m reaching out to you to discuss something very important…and I hope you will give me just a few minutes of your valuable time.  Hear me out because you are more important in this situation than you will ever know.  And by-the-way…you have my permission to share this critical story with…
  • CAC2 March 2020 Webinar - For CAC2 Membership. --If you or your organization would like to become a member, please visit the website membership portal. Last week CAC2 Board members presented our Spring All-Member Webinar.  Every March we offer this webinar so that our members have a better understanding of what we are doing, why we are doing it, and how we can improve the ways we work together. You can view the entire presentation here:2020 CAC2 Spring All-Member Webinar…
  • DIPG as Ambassador to Congress and the Public for Childhood Cancer - The Public needs powerful examples attain sufficient awareness to ensure accountability from Congress. If we want childhood cancer legislation like STAR and RACE to truly be supported, to have their respective allocations approved, to build upon and allow greater development and support for pediatric research, the Public must be aware--this is paramount to accountability. Help us get H. Res. 114 over the finish line! "...To this day it is not unusual for parents to hear…
  • A New Day for Pediatric Brain Cancer Research - click picture for podcast March 20, 2020 Dr. Michael Prados (UCSF), leading scientist with PNOC (Pacific Pediatric Neuro-Oncology Consortium) and Dr. Adam Resnick (CHOP), leading scientist with the CBTTC (Children's Brain Tumor Tissue Consortium) share important developments in pediatric cancer research and also a potential shift in the way research is conducted, and funded, particularly with regard to a novel NIH/NCI SPORE grant. Dr. Resnick spoke at a recent congressional briefing, "DIPG, Pediatric Brain Cancer,…
  • Children’s Brain Tumor Foundation with Kayla Giacin - Click pic for podcast Kayla Giacin, Manager, Quality of Life Programs and Marketing for Children's Brain Tumor Foundation shares about upcoming events and current programs. Children's Brain Tumor Foundation's mission is to improve the treatment, quality of life and the long-term outlook for children and families affected by a brain or spinal cord tumor. During its 31-year history, CBTF has awarded over 75 research grants totaling $10.5 million to leading doctors and researchers at top…
  • SPORE Grant Sample Support Letter - Please submit letters to PNOC/CBTTC by 3-30-2020 Directions What is the novel SPORE Grant? March 15, 2020 To NCI/NIH Leadership: I’m writing in support of the NIH Pediatric Brain Tumor SPORE grant proposal to be submitted by Dr. Resnick and Dr. Prados on behalf of PNOC and CBTTC multi-institutional research organizations.  A grant of this kind would be crucial to the forward progress of identifying and developing viable treatment options for pediatric brain cancer, the…
  • Game Changer: Moonshot4Kids Congressional Briefing Brings Hope, New Research Opportunities to Pediatric Brain Cancer - Progress forward has come only from a collaborative effort by those who...could not turn away from this urgent, unmet need.  How much larger the effort would be...if more people were aware, and more people and resources joined us in this fight.Dr. Michelle Monje, Associate Professor of Neurology, and by courtesy, Pediatrics, Pathology, Neurosurgery and Psychology; Stanford University, Palo Alto, CA Community Moment, "DIPG, Pediatric Brain Cancer, and the Importance of H. Res. 114" -A Congressional…
  • Support the SPORE Grant - Sample Letter (Janet Demeter) Graphic created by Jace Ward #Tough2gether Letters of Support Needed for the CBTTC/PNOC NIH Pediatric Brain Cancer SPORE Grant FAQs From PNOC and CBTTC (download letter below) We are reaching out to you to request a letter of support for our NIH Pediatric Brain Tumor SPORE grant proposal. After discussing our initial plans with the NCI, we have been strongly encouraged to apply given the unique approach in an area that has…
  • In Support of H. Res. 114 - DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOC Foundation In support of H. Res 114 - the DIPG Awareness Resolution, experts from around the world will testify in a briefing to members of…
  • Defying the Odds: Anjalie’s Miraculous Journey - click pic for podcast 🙂 Anjalie Bartee was a normal, healthy 17-year-old, a junior in high school in Omaha, NE when she began experiencing headaches and vision changes.  Her doctor thought it might be due to recent changes in her medication, but the condition persisted and worsened; the ophthalmologist detected pressure on the brain and sent them to the ER. The diagnosis was diffuse midline glioma DMG, an inoperable, grade 4 brain tumor; she was…

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