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  • National Action Campaign for Young People Launches Fall 2024 - "Dear Mr. Speaker..." We believe we've got a shot at a unifying prospect for the House of Representatives.  The issue is non-partisan; there is no money in the resolution. It simply shines a national spotlight on an issue affecting our most precious population which has remained in obscurity for decades, and has been indirectly addressed in childhood cancer legislation. Despite all advances in such legislation, made possible only by the relentless efforts of parents and… …
  • A Day in the Sun for Childhood Brain Cancer: The Survivors, The Doctor, The Book - The Childhood Cancer Talk Radio July 25, 2024 interview features childhood brain cancer survivors Tori Moreno (DIPG) and Michael Keller (Astrocytoma grade 3), both having received treatment at the Burzynski Clinic in Houston, TX over 2 decades ago. As long-term survivors, they tell of their early memories and shared triumphs of enjoying, for all practical purposes, normal and healthy lives with a special fondness for "Dr. B", including Michael Keller's mom Christine who was helpful… …
  • 2024 US Senate DIPG Pediatric Brain Cancer Awareness Resolution - FOR IMMEDIATE RELEASE: May 16, 2024 CONTACT: Chip Unruh, (202) 224-4642 U.S. Senate Passes DIPG Pediatric Brain Cancer Awareness Resolution Rubio-Reed resolution recognizes May 17 as DIPG Pediatric Brain Cancer Awareness Day WASHINGTON, DC – In an effort to raise awareness about pediatric brain cancer, encourage research on diffuse intrinsic pontine glioma (DIPG) tumors and other pediatric cancers, and honor patients and families who have faced this disease, the U.S. Senate passed a bipartisan resolution (S.Res. 691) designating… …
  • Press Summary Update - May 15, 2024 downloadable pdf Press Summary The DIPG Awareness Resolution  H. RES. 416 (118th Congress)    “Expressing support for the designation of the 17th day in May as “DIPG Awareness Day” to raise awareness and encourage research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general…    …encourages all people of the United States to become more informed about diffuse intrinsic pontine glioma (DIPG) pediatric brain cancer, and the current… …
  • Historic Inaugural Childhood Cancer Prevention Symposium, Washington, DC, October 25 and 26, 2023 - Published 11:47 AM PDT, September 19, 2023 Original Press Release Historic Scientific Meeting to Focus on the Prevention of Childhood Cancer as Incidence Rates Continue to Rise Dramatically  Schedule page 1        Schedule page 2 “I am excited to convene a group of scientists, advocates, and families dedicated to finding new strategies to address prevention across the childhood cancer continuum – from susceptibility to outcomes”— Philip Lupo, PhD (Podcast with Jonathan Agin (Prep4Gold),… …
  • A U.S. Congress United: Resolution Spotlights Childhood Brain Cancer, Establishes May 17 as DIPG Awareness Day - May 17, 2023, Washington, DC–Just in time for the 118th Congress, yesterday was the fifth introduction to the U.S. House of Representatives of the DIPG Awareness Resolution, which draws attention to the unmet medical needs of children with brain cancer and establishes May 17 as DIPG Awareness Day.  With a 7-year track record in the House, the resolution attained an unprecedented 220 signatures last Congress to acknowledge DIPG and childhood brain cancer–the leading cause of… …
  • ARPA-H releases funding opportunities, site selection process, and idea competition - from arpa-h.gov: arpa-h.gov/oneyear Letter from the Director, Dr. Renee Wegrzyn    |    Open-Office Broad Agency Announcement (BAA) March 15, 2023 One year ago, President Biden outlined his vision for a new kind of agency to speed medical breakthroughs to patients who urgently need them, calling for the creation of the Advanced Research Projects Agency for Health (ARPA-H). Last week, the President reaffirmed that commitment with release of the budget, which calls for additional funding… …
  • DEADLINE for signatures March 22, Dear Colleague letter for FY24 language for targeted funding of DIPG/Childhood Brain Cancer - To the Greater DIPG/Childhood Brain Cancer Community of Families, Advocates, and Organizations: We have a unique opportunity to support targeted funding for DIPG and Pediatric Brain Cancer in the FY24 Funding Bill.  While the DIPG/Pediatric Brain Cancer Awareness Resolutions will be re-introduced this year as a supportive measure and an ongoing campaign for greater awareness of the urgent, unmet medical needs of children with brain cancer, this is an opportunity to directly accelerate innovation, collaboration… …
  • Jack’s Heart for Ukraine Supports Kids-of-Ukraine, with US Outreach Coordinator Devan Tatlow - Through March 24, the event hosted by Jack's Angels and Charity Footprints brings attention to, and supports financially with event proceeds, the critical work of "Kids-of-Ukraine" and their work in rescuing children with cancer and their families in the war-torn country of Ukraine.  We bring you once more this interview with Devan Tatlow, two-time childhood cancer survivor and US Outreach coordinator for Kids-of-Ukraine, once more just after the year anniversary of the war to bring… …
  • Kids-of-Ukraine, Stories of Children with Cancer - Khrystyna, two years old At the beginning of the Russian full-scale invasion, Khrystyna was in a village in the Vinnytsia region, where she was born. In June, her mother noticed the girl became weak, stopped standing on her feet, and started losing her orientation in space. They received a referral from the local doctor to the regional hospital, and from there, they were already referred to the oncology center in Kyiv (Okhmatdyt Children's Hospital). In… …

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