NEWS/blog

  • Today on CCTR: Bexion Pharmaceuticals Introduces Phase II Clinical Trial for DIPG/DMG with BXQ-350 -       Today on Childhood Cancer Talk Radio on TogiNet.com at 4pm EST,  Founder and CEO of Bexion Pharmaceuticals Dr. Ray Takigiku and Medical Affairs Consultant and Leader of the phase II clinical trial for DIPG/DMG at Cincinnati Children's Hospital, Dr. Richard Curry.  Both scientists provide insight into the discovery and development of this drug and their hopes for its success in the trial for BXQ-350, Bexion's lead drug candidate, a first-in-class biologic containing…
  • Progress in Advocacy with the Children’s Cancer Cause 2021 - Visit TogiNet.com for a complete list of podcasts available, including this one. Today's show is a recap of recent advances in childhood cancer advocacy and reiterates the basic facts about childhood cancer for which we strive to provide a worldwide platform for awareness at Childhood Cancer Talk Radio. As co-founder of DIPG Advocacy Group, host Janet Demeter is in a unique position to share the latests developments for childhood brain cancer advocacy and a new…
  • Life Beyond DIPG: Inspiration and Avocation - In this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and Marcelo Ortigao (Fort Collins, CO) share their personal experiences with DIPG, one of the more common types of childhood brain cancer, and the deadliest with very few survivors.  DIPG Advocacy Group is a coalition of childhood brain cancer organizations and individual childhood cancer advocates which initially formed to support the DIPG Awareness…
  • Keith Desserich and The Cure Starts Now - Keith Desserich, co-founder of The Cure Starts Now worldwide charity for pediatric brain tumor research, joins us today at this hopeful new year's beginning. When Keith and his wife Brooke found out that their beautiful daughter Elena had DIPG, a devastating pediatric brain tumor, there were no dedicated clinical trials, no networks, no information and no parent groups. Elena’s story was the first public case of DIPG, ultimately becoming the subject of a bestselling book…
  • For the Love of Aspen: The Agnew Family - For the love of Aspen, diagnosed 6/20/2020 at the age of 4 with DIPG, a terrifying childhood brain cancer, father Ryan, mother Allison, and Aunt Tristin join us to share what this journey has been like as we are precariously close to the discovery of a cure. Along with grandfather William Agnew, this family is dedicated to raising greater public awareness for DIPG to attract a cure more quickly for all. The Agnew family is…
  • Arms Wide Open Childhood Cancer Foundation, with Mike Gillette! - podcast download Arms Wide Open Childhood Cancer Foundation’s mission (AWOCCF) is to fund less toxic therapies for children with cancer so they can have a better quality of life as they battle the disease and to give families hope by bridging the funding gap and making available potentially life-saving clinical trials that would otherwise not be available. Through its many programs, Arms Wide Open also helps families throughout the United States both financially and emotionally…
  • 2020 Ends on a High Note with Hope on the Horizon - --The Arms Wide Open Cancer Foundation newsletter Dec. 31, 2020 Celebrating good news for the childhood cancer community! A string of successes at the federal level to wrap up 2020! Happy New Year! Though 2020 was a very challenging year, the childhood cancer community celebrated many hard-fought victories in November and December. These wins include: A 4-year extension of the Creating Hope Act, which incentivizes the pharmaceutical industry to develop drugs for children with cancer…
  • Letter to Speaker Pelosi, Dec. 22, 2020 - What’s in a day?  Everything.  For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to the current legislative protocol regarding exceptions for commemoratives.  From what I gathered from her staff, from our request she introduced it for my Congressman who…
  • Advocacy Win! Congress Passes Omnibus and COVID-19 Relief Legislation - From our friends at National Brain Tumor Society: Your advocacy has made a difference! Over the last year, despite the many challenges presented by the COVID pandemic, you took action, shared your story, and helped to highlight the urgent needs of the brain tumor community. The results of that work are clear today. We are pleased to share that as Congress wraps up its session, it has passed an all-encompassing omnibus bill including the Fiscal…
  • “Against the Odds,” with Howard Salmon - Howard Salmon comes to us from the Ronald McDonald House near the UC Davis Children's Hospital in Sacramento, CA, where his son Liam is receiving some emergency care after having had some difficulty breathing. His wife Mary looks after him as the conversation progresses. Liam was diagnosed in January 2020 with DIPG, diffuse intrinsic pontine glioma, a deadly and prevalent form of childhood brain cancer. Liam is Howard and Mary's only child, a miracle baby,…

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