NEWS/blog

  • Paul Daugherty: Hero is an overused term, but not in the case of Lauren Hill -  Paul Daugherty original article: Cincinnati Enquirer View Comments “Hero’’ is an overripe word in sports. Loose use has trampled its meaning, its precision, its special-ness. “The hero of the game’’ is an oxymoron. Lauren Hill was not a basketball-playing hero. She was a hero who happened to play basketball. The difference is enduring and profound. *************** “An angel taking flight is never cause for weeping.’’ I wrote that more than seven years ago, at the memorial service…
  • Pallone & Eshoo Applaud House Passage of Bill to Authorize President Biden’s Groundbreaking ARPA-H Initiative - FOR IMMEDIATE RELEASE June 22, 2022 CONTACT  CJ Young (202) 225-5735 Pallone & Eshoo Applaud House Passage of Bill to Authorize President Biden’s Groundbreaking ARPA-H Initiative Washington, D.C. – Energy and Commerce Committee Chairman Frank Pallone, Jr. (D-NJ) and Health Subcommittee Chairwoman Anna G. Eshoo (D-CA) released the following joint statement today after the House of Representatives passed the H.R. 5585, the Advanced Research Projects Agency-Health Act to establish ARPA-H, an independent agency to accelerate…
  • It’s All In The Numbers, with Marcelo Ortigao and Paul Miller - Approaching a personal record (200) for platelet donation at Children's Hospital Colorado, Paul Miller shares his nearly two decades of experience advocating for kids with cancer and donating his own blood and platelets to the cause, and what he has witnessed in terms of childhood cancer prevalence. In a field where numbers are used to justify almost anything and mobilize needed funds for research, Marcelo Ortigao PhD, an associate professor of Preventive Medicine and Emerging…
  • BXQ-350 Neuroprotective Outcomes in Chemotherapy Induced Peripheral Neuropathy (CIPN) Patients - from Bexionpharma.com During Bexion’s Phase 1 study of BXQ-350 in adult patients with advanced solid tumors, a patient self-reported complete resolution of long term, persistent Chemotherapy Induced Peripheral Neuropathy (CIPN).  Due to this unexpected reporting, Bexion elected to explore this finding further by reviewing data from a cohort of patients who had entered the study with peripheral neuropathy, largely due to prior chemotherapy treatments. Peripheral Neuropathy: Anecdotal Results from Phase 1 Cohort1 Highlights of Study…
  • Bexion Pharmaceuticals, Inc. to Present at the 2022 International Symposium on Pediatric Neuro-Oncology (IPSNO) Annual Conference - FOR IMMEDIATE RELEASE [Covington, KY---June 13, 2022 download the pdf Bexion Pharmaceuticals, Inc., a mid-stage clinical biopharmaceutical company, announced today that two abstracts submitted for an in-person session at the IPSNO annual meeting to be held in Hamburg, Germany, June 12-15, 2022 has been chosen for poster presentation. ISPNO is the largest international scientific meeting of multidisciplinary professionals in research, diagnosis, treatment, and rehabilitation of children and adolescents with tumors of the Central Nervous System. The program will include…
  • Now Is The Time: “Moonshot4Kids” Congressional and White House OSTP Briefing Asserts Urgency for Childhood Brain Cancer - May 17 panel assembles to alert the Federal Government of the suffering and deaths of children with brain cancer, a leading killer of children in the USA downloadable pdf version "Now is the time for a Moonshot for Children." --Michelle LeBeau, CSO Cancer Prevention Research Institute of Texas WASHINGTON, DC, USA, May 3, 2022/EINPresswire.com/ -- DIPG Advocacy Group announces the Moonshot4Kids Congressional & OSTP Briefing for childhood brain cancer, scheduled for 9:00am on Tuesday, May…
  • Part II: Living with DMG, Xavier’s Story with Philip Tan - This podcast is a continuation of our March 3 show, "Living with DMG: Scientist Father Philip Tan blazes a Trail for Xavier", where Xavier's father Philip gave us and extensive window into the life of his family and how it had changed since the diagnosis of a deadly brain tumor.  In part 2 we address more closely the restrictive nature of clinical trials, and the fact that using drugs off trial allows flexibility to use…
  • YOUR ANGELS ARE REAL 1st Edition, “Hearing From Lucy” with Raegen Sieck and Heather Murison - Today’s show marks the beginning of our Spring-Summer 2022 Series, “Your Angels Are Real,” every third Thursday, where I’ll be interviewing a number of gifted intuitive healers of a wide variety of experience and use of different healing modalities. Today’s show, "Hearing From Lucy" features Heather Murison, Registered Nurse and intuitive healer in a side-by-side interview with Raegen Sieck, looking to hear from her daughter Lucy, and seeking development of her own intuitive gifts for…
  • Tracy Ryan: Saving Sophie, Helping Find Real Cures for Kids with NKORE - When Tracy and Josh Ryan’s daughter Sophie was diagnosed with a low-grade brain tumor at just 8 ½ months old, they knew they had to take action. Their wellness journey began when Tracy’s family became a featured family in the Ricki Lake produced Netflix documentary, Weed the People. This led the Ryans to become leading trailblazers in the use of cannabis for pediatric disease through their brand CannaKids, and their global advocacy efforts.  Through Tracy’s…
  • Living with DMG: Scientist Father Philip Tan Blazes a Trail for Xavier - In our many discussions with parents of children afflicted with brain cancer, perhaps the most telling are those of scientist parents who, like all other parents, are left to their own devices to try to save their children. Philip Tan's son Xavier, who was a in his prime as a college athlete when diagnosed, is limited in his mobility and suffers other mentally debilitating conditions associated with complications from his brain cancer. Phil discusses with…

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