Laurel Simer: 20+ Years with DIPG

For this special edition of Childhood Cancer Talk Radio, our guest is a childhood cancer survivor of a diagnosis which, statistically speaking, takes most every life afflicted.  Numbers and statistics guide our perspective when we’re in uncertain territory.  Those who do survive against unbelievable odds bring us all hope, traversing…

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Scott Carter Foundation and CureSearch fund Clinical Trial for DIPG

Paula Carter, founder of the Scott Carter Foundation in Tulsa, OK, joins us with Caitlyn Barrett, National Director of Research and Programs for CureSearch, to discuss their collaboration in supporting a new clinical trial for DIPG. The Scott Carter Foundation has been supporting childhood cancer research for three decades in…

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Shepherd Foundation and the Cancer Patient Equity Act of 2021

Catharine Young, Executive Director of the Shepherd Foundation (Alexandria, VA) visits with us to give history and background to the Cancer Patient Equity Act of 2021, H. R. 5377, newly introduced to the US House of Representatives. With a focus on equity for patients with rare cancers, which comprise a…

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Braving the Controversy of Cancer Success: Pioneering Scientist and Physician Dr. Stanislaw Burzynski

Dr. Burzynski’s cancer research and patient care has been inspired by the philosophy of the physician Hippocrates: ‘First, do no harm’. The Burzynski Clinic (Houston, TX) approach to treatment is ‘personalized’ in an attempt to maximize effectiveness and minimize side effects for each cancer patient.  However the success of his…

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Arms Wide Open Childhood Cancer Foundation with Dena Sherwood, Founder

  On July 6, 2008, the lives of Dena and Billy Sherwood changed forever when their then 13-month-old son, Billy Jr., was diagnosed with Neuroblastoma, a very aggressive cancer of the sympathetic nervous system that most commonly occurs in infants and children under the age of five. In August of…

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1Voice Foundation with Mary Ann Massolio

1Voice Foundation, based in Brandon, Florida has been innovating and implementing helpful programs for children with cancer for over 2 decades. We have the unique opportunity to hear from Founder and CEO Mary Ann Massolio, who shares with us her dedication, from her own tragic loss, to serving the childhood…

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BOOK LAUNCH: Candy Cotton Clouds, with Kristena Kitchen

Kristena Kitchen joins us from Maryland and Bryanna’s Love Foundation to share her upcoming book launch for “Cotton Candy Clouds” on Thursday, September 9th at 7pm ET Live on Facebook. Kristena’s daughter Bryanna tragically lost her life in 2018 to ETP-ALL, a rare type of childhood leukemia for which there…

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Tori Moreno, DIPG Survivor

  Twenty-three year old Tori Moreno is fortunate not to remember too much of her early diagnosis with DIPG, but she remembers enough. Treated at the controversial Burzynski Clinic in Houston, TX, Tori did well on the treatments as an infant, and she is now a long-term survivor of the…

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Taking on The System with Randy Hinton

With Randy Hinton   Without adequate national awareness of the urgent, unmet needs of children with cancer, the failure of the medical research system to address childhood cancer will continue as progress remains a high-grade uphill battle. Randy Hinton is a childhood cancer advocate from South Carolina, and father to…

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Jacob’s Legacy: National Monument Honoring Children with Cancer

On January 4, 2021, 6 year-old Jacob Senediak of Pittsburgh, PA died due to complications from his fight with DIPG, a deadly childhood brain cancer which spares mercilessly few of its victims.  His father, Mark Senediak, joins us on Childhood Cancer Talk Radio to begin a discussion about efforts his…

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