May 17, 2023, Washington, DC–Just in time for the 118th Congress, yesterday was the fifth introduction to the U.S. House of Representatives of the DIPG Awareness Resolution, which draws attention to the unmet medical needs of children with brain cancer and establishes May 17 as DIPG Awareness Day. With a…
What’s in a day? Everything. For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to…
The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions. Thank you for considering this and the attached information being distributed among all members of the House of Representatives. Your…
January 4, 2019, Agua Dulce, CA–I sent this note to Ryan Gosling on Facebook, hoping that somehow it would reach him: Hi Ryan, hoping this is actually your page. I just wanted you to know about an important awareness movement for the childhood cancer community, specifically for brainstem glioma–DIPG, the…
Chase Jones is a survivor of childhood brain cancer, founder of Vs. Cancer Foundation, and is organizing community leadership around the country for the September 21 Biden Cancer Summit. He discusses his own experience with brain cancer at 18 and its personal ramifications, including survivor guilt and how he overcame…
There is a specialized killer on the loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. September 6, 2016 Dear President Obama, I’ve written to you a…
CCTR interviews Raphael Rousseau MD, PhD,the global franchise head of the innovative pediatric drug development group at Genentech. Considered the founder of the biotech industry, Genentech, a member of the Roche Group, has headquarters in South San Francisco, California. Genentech has been delivering on the promise of biotechnology for over…
There is a specialized killer loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. Dear President Obama, …
Cancer Moonshot Summit Report—Regional, Jack’s Angels Foundation, Santa Clarita, CA SCVTV Around Town Report On June 29, 2016, we were a group of 17 convening at The Master’s College in Santa Clarita for one of the few Southern California Regional Moonshot Summits, from a diversity of backgrounds and experience with…
If we find effective ways to treat these children, we will have solved one of the most challenging and lethal cancers. Those findings could apply to other difficult cancers and could have a large impact on the field.” Taken from “STAT News” https://www.statnews.com/2016/06/30/cure-one-cancer-dipg-way-cure/ By ANIL ADYANTHAYA @AnilAdyanthaya JUNE 30, 2016 The…
