Amanda Haddock spent 11 years of her working career in the non-profit sector and 12 years working in the technology industry, a self-proclamed “serial volunteer” whose son, David, succumbed to GBM in 2012 at the age of 18. The doctors and researchers they encountered on that journey led her to become a passionate advocate for brain cancer research.
Amanda was named a White House Champion of Change for Precision Medicine because of her work with Dragon Master Foundation; she is the first foundation representative ever asked to be part of the Children’s Brain Tumor Tissue Consortium’s Scientific Committee. She also participated in the White House Cancer Moonshot Summit and has been invited to participate in advocacy/research efforts by The New England Journal of Medicine, Harvard’s Broad Institute, and Consumer Reports.
Amanda talks to us frankly about her experience, the formation of CBBTC/Cavatica, and how it empowers patient’s data, an exciting new clinical trial opportunity soon to open up for high-grade gliomas and DIPG, the deadliest brain cancers with no truly effective solutions to date. Amanda’s humility and dedication in her work is evident in the success of DragonMaster Foundation in its fostering effective collaborative organization in the the medical research community; she is Childhood Cancer Talk Radio’s “Hero of the Week.”