The Childhood Cancer Talk Radio July 25, 2024 interview features childhood brain cancer survivors Tori Moreno (DIPG) and Michael Keller (Astrocytoma grade 3), both having received treatment at the Burzynski Clinic in Houston, TX over 2 decades ago. As long-term survivors, they tell of their early memories and shared triumphs of enjoying, for all practical purposes, normal and healthy lives with a special fondness for “Dr. B”, including Michael Keller’s mom Christine who was helpful to detail their experiences as Michael was just a baby when diagnosed. A controversial doctor with a controversial therapy, Dr. Burzynski represents a sort of enigma of modern research science: a promising treatment with no government, insurance, or collaborative development support, paired with the deadliest of diseases for our most vulnerable citizens, childhood brain cancer.
Dean and Wendy Fachon join us after half-time to further explain the kinds of obstacles with which a young person and their family are confronted when attempting to navigate a pathway to desired treatment amid very few options, as they did with their late son, Neil. Their recently published book detailing many of these arduous but light-filled adventures, “DIPG”, can be found at www.dipgbook.com, and from Amazon.com as well. The recently published book has been applauded by childhood brain cancer families and by Dr. Burzynski himself, as more light needs to be shone on this issue for meaningful, effective change to come to this still-obscured space in national consciousness.
