NEWS/blog

  • Truth in Pictures, Reality in Words: The Extraordinary Photo-Journalism of Moriah Ratner- click pic for podcast A recent graduate of Syracuse University's School of Photo-Journalism, Moriah Ratner tells the story of the lovely Lola Munoz, a thirteen year old girl afflicted with the deadliest pediatric cancer, DIPG, published within the last year, is truly a work of distinction. Moriah shares with us the process of discovery in this work, as it began simply as the protocol for a class she was involved in--to tell the story of…
  • Love for Olivia, A Legacy of Hope- click image for podcast Chance Mazzell and his wife Heather share with us the story of their daughter Olivia and the places that DIPG, diffuse intrinsic pontine glioma, has led them. Olivia was diagnosed with DIPG on August 28th of 2018; her journey was particularly difficult out of the gate. The Mazzells, from Lexington, South Carolina, are extremely brave to give us this insight into their lives at a most difficult time. Sadly, Olivia passed…
  • Sara’s Cure Has Hope with CC-TDI’s Lissett Bickford Ph.D.- Sara’s Cure is a grassroots, race-against-time campaign focused on funding critical research to find a cure for Clear Cell Sarcoma. Lissett Bickford, now with Children's Cancer Therapy Development Institute, a non-profit biotech company in Beaverton Oregon dedicated to eradicating childhood cancer, earned her PhD in Bioengineering at Rice University in collaboration with MD Anderson Cancer Center where she developed rapid nanoparticle-based assays for cancer detection. Lissett’s long-term career goal is to make significant contributions in…
  • To the Leadership of the House of Representatives- H. Res. 114, the DIPG Awareness Resolution Out of sight and out of mind, the suffering and the tragedy continues, exemplified in a most horrific way by the experience of DIPG, which, out of the blue, robs the child of the use of their body until finally respiration ceases, retaining full cognitive awareness throughout the process.   Byron Homler (Wynadotte, OK) is forever changed by the tragic loss of his beloved son, Tyler D'Wayne April…
  • Dogs Prove to Be Kids Best Friend, with Dr. Bernard Seguin and Ulrike Szalay- podcast here According the the Genomics Institute, 84% of dog DNA has human counterparts, so we suffer many of the same diseases, including most cancers. Dogs have a higher incidence of certain tumors which are considered rare in children. By studying these tumor types in dogs, we can learn a great deal about these devastating cancers, while also helping canines to beat their cancers. Our first guest is Dr. Bernard Seguin DVM, surgical oncologist and…
  • Alliance Support Letter for H. Res. 114- visit the Alliance! Please visit the Alliance for Childhood Cancer to see the full plate of legislative activity in which they engage as advocates for the childhood cancer community as a whole. April 15, 2018 pdf version The Honorable Frank Pallone, Jr. Chairman, Committee on Energy & Commerce 2107 Rayburn House Office Building Washington, DC 20515 The Honorable Greg Walden, Ranking Member, Committee on Energy & Commerce 2185 Rayburn House Office Building Washington, DC 20515 Dear…
  • Colorado Treasures: The Morgan Adams Foundation and Cops Fighting Cancer- click here for podcast Denver CO--Morgan Adams Foundation co-founder Joan Slaughter joins us to share this organization's 20 year history of advancing the clinical trial process for pediatric cancer in the medical research system. Her daughter Morgan had been diagnosed at 5 years old with GBM in 1997, surviving 11 months past the diagnosis before succumbing to the deadly disease. The Morgan Adams Foundation funds research critical to progress in pediatric neuro-oncology, one of the…
  • To the Members of the Energy and Commerce Committee, and Sub-Committee on Health- The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions.   Thank you for considering this and the attached information being distributed among all members of the House of Representatives.  Your position on the Committee, and consideration of support for this Resolution is crucial to a five year struggle for recognition and movement out of Committee,…
  • Research Edition #3: Hepatoblastoma and the Foundation for Addie’s Research- After months of frustrating ER visits for high fevers, Adelaide 'Addie' was diagnosed in November 2015 with Hepatoblastoma, a rare pediatric liver cancer; it was just four days before her 2nd birthday. Addie fought a fast-spreading disease with grace; she shared her contagious smile and joyous spirit with everyone she met, even during the most difficult treatments. Her parents, Christina and Cody Stiverson, join us to discuss their experience and the progress of the Foundation…
  • Bill Kohler: When Suddenly There’s No Time.- click pic for podcast download 🙂 From a State Tax Measure bringing needed funds to pediatric cancer research, to leading in the country-wide movement for a DIPG Awareness Day, Pennsylvania is leading in authentic grassroots advocacy for children with cancer and their families. Bill Kohler is a highly respected and decorated veteran of the Iraq war, father, and now Executive Director of 4AydenStrong Foundation. He shares the story of his son Ayden, his tragic loss…

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