NEWS/blog

  • Project Haystack Part II - Molly Lindquist, CEO of Children's Cancer Therapy Development Institute in Beaverton OR, joins us to share her personal story of cancer survival and the importance of the parent-funded research at cc-TDI. We continue exploring the research Project Haystack for rhabdomyosarcoma, and hear from two more foundations helping to fund this project, first Vanessa Lendvay with Team Naomi, from Saskatoon Saskatchewan, Canada. Team Naomi began in the family living room between Vanessa, a pharmacist, and her …
  • NCI Director Ned Sharples Addresses the STAR Act, Now Fully Funded -   News From Congressman Michael McCaul, Co-Chairman and Founder of the Congressional Caucus for Childhood Cancer: Dear Friends, Last week, I hosted the 9th Annual Childhood Cancer Summit at the U.S. Capitol Visitors Center. At the summit, we celebrate our accomplishments while reinvigorating our drive to eradicate the number one killer of our children. We have come a long way and have a lot of good stories to tell since I started the Congressional Childhood Cancer Caucus …
  • With-Purpose Foundation: Kid-Power in Awareness and Fundraising - The charitable organization With Purpose, in Minneapolis MN, was founded by Erin Benson in loving memory and trust of her son Sam Lee who perished to brain cancer at a very young age, and who exhibited exceptional clarity and faith in our ability to create and enjoy our own happiness, together.  The organization is dedicated to inspiring today’s youth and engaging their creativity through education about the realities of childhood cancer and the challenges to …
  • Part I: “Project Haystack” at Children’s Cancer Therapy Development Institute - Dr. Charles Keller, Scientific Director of the Children's Cancer Therapy Development Institute, describes for us in opening the show, the ongoing work at the Institute funded by parent-led foundations in its quest to make all forms of childhood cancer survivable, specifically Project Haystack, an international collaboration in rhabdomyosarcoma research. In partnership with 10 family communities around the world, the Children's Cancer Therapy Development Institute is embarking on a drug discovery project for rhabdomyosarcoma through an …
  • Celebrating a Win for Childhood Cancer Advocacy! - St. Baldrick's Foundation, perhaps our greatest leader in advocacy today, brings us this amazing news about the STAR Act.  Because of the support of so many individual advocates across the country, and so many supporting organizations for pediatric cancer, STAR is "getting the money" from the Senate Appropriations Committee!  This is the biggest win since President Bush signed into law the Caroline Pryce Walker Conquer Childhood Cancer Act, which called for the same amount of …
  • “The Heart of Luminous”, by Luna Zin: Debut of an Author - Luna Zin joins us from her Utah home to discuss her first book, "The Heart of Luminous", inspired by her research in the childhood cancer community, and by a special little boy in particular who lost his life to brain cancer. Luna takes us on a personal journey of discovery and inspiration as a writer and advocate for children with cancer which continues today, as "Luminous" is but the first story in a volume of …
  • Ellie Waters: Beating Alveolar Rhabdomyosarcoma, Surviving Teen Life - Ellie Waters visits with us from the UK to give us an update on her progress, cancer-free, and also gives a clear picture of the realities of teen life, having survived cancer. Team Ellie's blog is prolific and her helpful influence on other children and teens is significant. Ellie speaks out about bullying, yes even as a cancer patient, and shares her experience, strength, and smarts with others.
  • Update from the Alliance - Dear Friends, As we write, Alliance advocates around the country are working on the next crucial step to enacting legislation recently signed into law.  As many of you may well know. the Caroline Pryce Walker Conquer Childhood Cancer Act of 2008, though signed into law, never had it allocations respected, nor was it's Re-authorization signed into law in 2013.  STAR is in a sense the resurrection of these past attempts, with even more important provisions …
  • Chase Jones and the Biden Cancer Initiative - Chase Jones is a survivor of childhood brain cancer, founder of Vs. Cancer Foundation, and is organizing community leadership around the country for the September 21 Biden Cancer Summit. He discusses his own experience with brain cancer at 18 and its personal ramifications, including survivor guilt and how he overcame that to find greater purpose in his life. The greater need for research funding consideration for pediatric and deadly disease is an issue for a …
  • Tamlin Hall (AUS) Beating BPDCN, and her Blog at BraveryBox - Tamlin Hall and her mum Kerrilee visit with us to share Tamlin's story of surviving BPDCN, and the new network of hope and support that has grown from their experience with this rare but deadly disease. Tamlin's writing, at 14, shows subtlety and power beyond her years, but more importantly shares the realities of her battle with cancer and the hope and strength of her survival. You can find it at bit.ly/cctr-tamlin, at BraveryBox.com. Mum …

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