NEWS/blog

  • Barbara Salzman and The Jester- click for podcast Barbara Saltzman joins us from Palos Verdes CA, home of The Jester & Pharley™ Phund, the charity that grew out of her late son David’s best-selling children’s book, "The Jester Has Lost His Jingle." David created The Jester as his senior project at Yale before his death from cancer in 1990 at 22. David's book has been making a difference in thousands of children’s lives for 23 years. Founded in the year…
  • Curing children a goal worthy of tax credits from state- For Immediate Release: Curing children a goal worthy of tax credits from state The Issue: State Rep. Thomas R. Caltagirone hopes to spur research that finds a cure for pediatric cancer soon. Our Opinion: Incentives to promote that goal in Pennsylvania deserves to become law. March 6, 2019, Harrisburg, PA--Pennsylvanians wishing to donate all or part of income tax refunds due from the state Department of Revenue can help fight pediatric cancer. The Pediatric Cancer…
  • Research Series Part II: Osteosarcoma and the Trey Foote Foundation- click pic for podcast The second edition of Childhood Cancer Talk Radio's Research Series with Children's Cancer Therapy Development Institute features an osteosarcoma research project directed by Jin-ah Kim PhD. Originally from South Korea, Kim describes her education experience, vocational direction to cancer research, and the unique challenges and goals for the project. The second half of the show features the inspiration behind the project, which is funded by the Trey Foote Foundation of Vancouver…
  • Urgency of Need: Awareness and Research for Pediatric Brain Cancer, with Steven Healey- podcast Steven Healey shares the inspiration behind the foundation, his beautiful, forever-5 year old daughter Brooke who's life lasted just eight months post diagnosis of DIPG, a deadly pediatric brain cancer. Healey describes the harrowing experience as a parent, but also about a new-found community of families dedicated to funding research for the devastating disease, the DIPG Collaborative. The importance of awareness to an industry which categorically ignores the most vulnerable and those most needy…
  • US. House of Representatives: Regarding Vague Reference Objections to Awareness Days- 'We don't do those anymore...' Now what? This is a brief description of an occasional yet pervasive challenge which DIPG Advocacy Group has met in its visits to Congressional Offices in Washington DC regarding the legitimacy of House Resolutions designating an awareness day, as the newly introduced H. Res. 114, the DIPG Awareness Resolution to the 116th Congress. It appears on the back of the Resolution text which accompanies a letter asking for support which…
  • Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer- PRESS ADVISORYFebruary 8, 2019 Contact: DC - Tracy Manzer (202) 225-3531 (W) / (202) 538-0641 (C) tracy.manzer@mail.house.gov CA - Katrina Rill (650) 342-0300 (W) / (650) 208-7441 (C) katrina.rill@mail.house.gov Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer Washington, DC –Today, Reps. Jackie Speier (D-San Francisco/San Mateo) and David P. Joyce (R-Cleveland), along with 16 of their colleagues, introduced a bipartisan resolution to raise awareness of and advocate for increased research funding for…
  • CC-TDI Research Series I: DIPG Tumor Cell Hotel- Dr. Charles Keller, Scientific Director of the Children's Cancer Therapy Development Institute, joins us with Dr. Anju Karki, post-doctoral fellow and DIPG Tumor Cell Hotel project leader describe this creative design to affect a real solution for children diagnosed with arguably the deadliest pediatric brain cancer, diffuse intrinsic pontine glioma. Based on the concept of the humorous commercial in1978, the Black Flag Roach Motel, where, "roaches check-in but they don't check out," the project is…
  • The Pediatric Cancer Research Foundation with Jeri Wilson- Jeri Wilson, Executive Director, has been with PCRF (Pediatric Cancer Research Foundation) since September of 2011 and has taken this organization from a $1.5 million dollar operating budget to a $3.5 million dollar organization. All while keeping 84% of the funding going straight to research. Since 1982, PCRF has partnered with businesses, foundations, and individuals to improve the care, quality of life and survival rates of children with malignant diseases, and has been directly instrumental…
  • Outside the Box Part II, Jessica Doeden DIPG Survivor, Randy Hinton on Causes and Conditions- We follow-up and finish our conversation with Randy Hinton, father to Hayley who was diagnosed with DIPG (brainstem glioma-diffuse intrinsic pontine glioma) and perished to that disease some 13 years ago, regarding causes and conditions that remains the burden of parents to discover in their never-ending hunt for answers. We also discuss the world of alternative therapies and the difficulties families face when they wish to pursue treatments outside of the "box" of mainstream medicine.…
  • The Children’s Cause for Cancer Advocacy with CEO George Dahlman- As the Chief Executive Officer of Children’s Cause for Cancer Advocacy, George Dahlman is responsible for the strategic management and operations of the nation’s preeminent childhood cancer policy organization. Mr. Dahlman is responsible for identifying and advancing issues that will improve the treatment and lives of childhood cancer patients and their families with Congress, the Administration, federal agencies and state governments. He is also responsible for ensuring that families have the opportunity to participate as…

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