NEWS/blog

  • Presenting: ENDURE, with Jay Korff - Emmy award-winning journalist Jay Korff of WJLA Washington DC joins us to talk about his new documentary film just released, Endure, featuring "Tattoo Tom" Mitchell and his crew taking on the challenge of the Tahoe 200 ultra-distance trail race in support of childhood cancer awareness. The runners' odyssey is punctuated by the personal stories of several childhood cancer victims and their families, exposing the reality which so many face on a daily basis. Tom Mitchell …

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  • Kids First 2.0 with Ellyn Miller - Ellyn Miller joins us to discuss the Gabriella Miller Kids First Research Act, originally signed into law by President Obama in 2014. The original bill ensured that a special fund was created at National Institutes of Health for research into pediatric disease, which historically receives inadequate funding for research. We're fortunate to hear about her daughter Gabriella, whos fight with brain cancer inspired the Smashing Walnuts Foundation as well as the naming of this very …

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  • A Pioneering Journey, with Emma Wrenn - Emma Wrenn joins us to share her experience with her daughter Keira, who just passed away this last August as a result of her battle with DIPG, diffuse intrinsic pontine glioma. Keira's case was public, and many of us around the world followed her story. Emma shares candidly what life is like now, what remain to be the greatest challenges to the DIPG experience, and the hope that her daughter's life has given to research …

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  • Real Solutions for Research Funding: NC3 Leads in Pennsylvania - Christopher Winters, President of NC3, the National Childhood Cancer Coalition, shares with us his work at the state level culminating 10/25 in the passage of HB46 in the Pennsylvania Legislature.  The bill creates the option for individuals to donate from their state income tax refund to pediatric cancer research.  In a less than ideal political climate, change is slow going for raising awareness to the urgent need for greater funding for pediatric cancer at the federal …

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  • Outside the Box: Solutions for Kids with Target Pediatric AML - Julie Guillot and Dr. Soheil Meshinchi, an attending physician at Seattle Children’s Hospital treating children with high-risk leukemias, join us to discuss the innovative and exciting Target Pediatric AML program which promises genomic sequencing for targeted, effective treatment. Dr. Meshinchi oversees the world’s largest pediatric AML tissue repository, located at Seattle’s Fred Hutchinson Cancer Research Center. He is also a full faculty member at Fred Hutch, a professor at University of Washington, and he is …

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  • Tamlin Hall’s Journey with BPDCN; Queensland, AUS - Kerrilee Hall and her 13 year old daughter Tamlin visit with us today from Queensland, Australia. Tamlin is at the 100 day mark post bone-marrow transplant or BMT for BPDCN treatment, or Blastic Plasmacytoid Dendritic Cell Neoplasm, a disease difficult to diagnose as it exhibits traits of leukemia and lymphoma, and exceedlingly rare as a childhood cancer. Only 2 other children in the world are known to be actively combating the disease, the other being …

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  • “My Dog Named Hope” Comforts Children and Supports Research - The new children's book "My Dog Named Hope" is about a special girl, her amazing dog, and a family's journey through childhood cancer. The story was based on a compilation of the experiences of many childhood cancer families by the author, Joe Dean during his time working for the US Senate; the book was illustrated by Lauren Curwick.  Joe was a business executive as well as an executive US Senate staffer and founded the Stars …

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  • ‘Champion of Change in Precision Medicine’ Amanda Haddock, President of DragonMaster Foundation - Amanda Haddock spent 11 years of her working career in the non-profit sector and 12 years working in the technology industry, a self-proclamed "serial volunteer" whose son, David, succumbed to GBM in 2012 at the age of 18.  The doctors and researchers they encountered on that journey led her to become a passionate advocate for brain cancer research. Amanda was named a White House Champion of Change for Precision Medicine because of her work with …

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  • A Jog Around the Block for Brian Jones Becomes a National Sensation - The Run for the White House is a grassroots movement of runners and workout enthusiasts all rallying with their personal brand of activism to support awareness for childhood cancer, using the social media platform of Facebook to share their activities and motivations.  Brian Jones's mission  with the Run for the White House quickly emerged to be making childhood cancer research a national priority.  The rise of this movement which spans 2013 to present, was perfectly …

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  • American Childhood Cancer Organization, CEO Ruth Hoffman - The gold ribbon and the childhood cancer awareness movement started with a few good moms (and dads) in the 1970s...  Ruth Hoffman, CEO of the American Childhood Cancer Organization, walks us through the journey to today and Amazon's million gold ribbon boxes!  "Still, there's a long way to go..." says Hoffman, long time advocate for children with cancer.  ACCO is unparalleled with its information and service to families across the country, and in collaboration with …

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