NEWS/blog

  • American Childhood Cancer Organization, CEO Ruth Hoffman - The gold ribbon and the childhood cancer awareness movement started with a few good moms (and dads) in the 1970s...  Ruth Hoffman, CEO of the American Childhood Cancer Organization, walks us through the journey to today and Amazon's million gold ribbon boxes!  "Still, there's a long way to go..." says Hoffman, long time advocate for children with cancer.  ACCO is unparalleled with its information and service to families across the country, and in collaboration with …

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  • Annette and the Carson Leslie Foundation Host the Golden Toast - Annette Leslie is a mom who has been through the harrowing experience of losing her son to medulloblastoma in 2010. His extraordinary life and character inspired the Carson Leslie Foundation's inception that same year, in Dallas Texas, and launched her into a world of advocacy for children with cancer, pediatric cancer research, and working closely with legislators to promote the prioritization of pediatric research funding in a culture that is profit motivated and often neglectful …

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  • Go4TheGoal and the Historic Golden Steps for Pediatric Cancer - Beth Stefanacci and Carina Trenka join us to share their experience and agenda with Go4theGoal, founded in 2006 shortly after 13-year-old Richard Stefanacci was diagnosed with Ewing’s Sarcoma. During his treatment, his family quickly became aware of the lack of assistance available to families battling pediatric cancers. Go4theGoal's unwavering mission is to improve the lives of children battling cancer by providing financial support, developing and implementing unique hospital programs, funding innovative research, and granting personal …

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  • The Triumph of Team Ellie - Ellie Waters was diagnosed with alveolar rhabdomyosarcoma at the age of 14 and endured the heavy-duty treatments that this frightening disease necessitates, and is now at 16 a vibrant, bigger than life personality devoted to helping other children and teens with cancer. She comes to us from Northamptonshire in the UK with her twin sister Olivia and mother Sam Waters, each contributing to this story of love,certainty of faith in the face of difficulty, powerful …

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  • Nicole Vathy and “Baby” Shawn face DIPG with the Golden Niagara Falls of September - Nicole Vathy, single mom of seven, shares her journey with her youngest, Shawn, who has been diagnosed with diffuse intrinsic pontine glioma.  Shawn is one of the few who survive past the year mark to two years with a stable tumor.  Nicole candidly shares with us this very difficult road with humor, horse sense, and a mother's love.  Go for the Goal and Punt organizations are local childhood cancer groups benefiting from the Golden Steps …

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  • More Life and Love to Remaining Days - Suzanne Gwynn has served as a critical care nurse for more than 35 years, in both the United States and Canada. During the first decade of her career, she served medically fragile patients who suffered from a variety of life limiting diseases in acute care settings. These experiences solidified her dedication to the field and encouraged her desire to specialize. She shares with us today her vision for LadyBug House, a concept and plan for …

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  • Children’s Cause July Bulletin: All Eyes on the Senate - News & Views: July 2017 Highlights in childhood cancer policy, news, events & more   RACE for Children Act Awaits a Senate Vote The RACE for Children Act passed the House by a voice vote earlier this month as part of the larger FDA user fee bill. We're now asking advocates to join us in urging Senators to support this bipartisan, life-saving legislation on the Senate floor -- without delay and without altering RACE Act provisions. The RACE Act would improve opportunities for more …

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  • NCI-COG Pediatric MATCH trial to test targeted drugs in childhood cancers - NCI article July 24, 2017 Shared by Jack's Angels Foundation Today investigators at the National Cancer Institute (NCI) and the Children’s Oncology Group (COG) announced the opening of enrollment for a unique precision medicine clinical trial. NCI-COG Pediatric Molecular Analysis for Therapy Choice (Pediatric MATCH) is a nationwide trial to explore whether targeted therapies can be effective for children and adolescents with solid tumors that harbor specific genetic mutations and have progressed during or after standard …

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  • DIPG Awareness Day—A National Movement - (H.Res.69 asks for a date henceforth, not just for this year, and retroactively--that May 17th be National DIPG Awareness Day.  The importance of the Resolution is with the raising of awareness to the negelect of pediatric cancer research in our medical research system, and the unacceptable realities that parents across the country must endure, year after year.  DIPG exemplifies this problem with pediatric cancer, and H.Res.69 (text) boldly asks that high-risk and pediatric cancers have …

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  • Swifty Foundation: Cure Pediatric Brain Cancer - Al Gustafson is on the Advisory Council of the Children’s Brain Tumor Tissue Consortium and serves on the Board of Swifty Foundation, among several others; in addition to his work in ministry, Al is the president of the Gustafson Family Foundation, a private foundation promoting the development and education of young children at risk.  His son Michael was diagnosed with medullablastoma which unfortunately recurred after treatment and a declaration of having been cancer free; he knew …

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