NEWS/blog

  • The Pepper-Neely Act of 1946 and the Fitzgerald Report of 1953, with Randy Hinton- click pic for podcast How did we get here, with a medical research system teaming with money and activity, but so few solutions and options for deadly cancers, especially pediatric cancers? Randy Hinton, of Cross Hill South Carolina, is a childhood cancer advocate and father to Hayley who died of DIPG in 2006, diagnosed in 2005 at just 5 years of age. He brings us an in depth report of the early years of the…
  • Meet “Tattoo Tom” Mitchell: Father, Activist, Founder of Still Brave Foundation- click for podcast! Following the death of his daughter Shayla in 2009 from Hodgkin’s Lymphoma Tom dedicated his entire life to providing non-medical support to children with cancer and their families. He’s also committed to raising awareness of the need for more research funding and safer, less toxic treatments for children with cancer. An extreme runner, he completed a 200 mile run at Lake Tahoe in 2015, and has been featured in an award-winning documentary…
  • “Moonshot4Kids” at Monje Lab: DIPG Families Advocate for Increased Pediatric Cancer Research Funds- June 7, 2019 | Mia Brozovich Nacke COMMUNITY OUTREACH, EVENTS, PEDIATRICS, RESEARCH AND INNOVATION. Families who have lost children to Diffuse Intrinsic Pontine Glioma, a fatal brain tumor with a median survival of 9-10 months, met with Stanford pediatric neuro-oncologist Michelle Monje to learn about new clinical trials and express optimism that accelerated funding will yield treatment results. DIPG families visit the Monje Lab. From left to right, Marisa Martinez, Xavia Martinez-Lusinchi, Kirsten Finley, Zach…
  • To the Ends of the Earth: Juju’s Journey with Mark Hyde- click pic for podcast! Our show features a window into the experience of a father, Mark Hyde, who literally chose to go to the ends of the earth for his daughter, honoring her life with a journey to the north pole. While she was fighting rhabdomyosarcoma, Juliet went with her dad, sister, and mom on quick, day-trip excursions into the beautiful German countryside, as time and hospital proximity would permit. Mark had been contracted to…
  • A Family Affair: Kendal Brown and her Family in South Carolina- click for podcast download Sandra Brown joins us on Childhood Cancer Talk Radio from Dillon, South Carolina to share the story of her beautiful, 10 year old granddaughter who is fighting brain cancer like a champion. Involved in an ongoing clinical trial for DIPG, Kendal was an honor student this past year, and is an All-Star softball player. Not only do we hear from her grandmother, but we are fortunate to hear from Kendal herself…
  • From Advocacy to Activism: DIPG Advocacy Group Salutes Cannonballs Across America- click-pic for podcast! May 2019 has witnessed important advances in pediatric brain cancer awareness, advocacy, and the fulfillment of a life-time dream by a dedicated brother and his friends for Kayne Finley of Ormond Beach FL, deceased 18 months ago to DIPG. DIPG is the second most common but deadliest pediatric brain cancer, and has been instrumental, for all of its horror, to raising awareness to the urgent needs of children with cancer for research…
  • Interning at Children’s Cancer Therapy Development Institute- Cynthia Martucci and Angelina Shao begin internships at cc-TDI, Children's Cancer Therapy Development Institute as undergraduates for the summer of 2019, and we learn about their projects, mentorships, and what it is like to work as a scientist in a progressive biotech lab devoted to pediatric cancer research. Cynthia Martucci just finished her freshman year and is assisting with the DIPG Tumor Cell Hotel project, her work mainly devoted to materials discovery merging oncology with…
  • Truth in Pictures, Reality in Words: The Extraordinary Photo-Journalism of Moriah Ratner- click pic for podcast A recent graduate of Syracuse University's School of Photo-Journalism, Moriah Ratner tells the story of the lovely Lola Munoz, a thirteen year old girl afflicted with the deadliest pediatric cancer, DIPG, published within the last year, is truly a work of distinction. Moriah shares with us the process of discovery in this work, as it began simply as the protocol for a class she was involved in--to tell the story of…
  • Love for Olivia, A Legacy of Hope- click image for podcast Chance Mazzell and his wife Heather share with us the story of their daughter Olivia and the places that DIPG, diffuse intrinsic pontine glioma, has led them. Olivia was diagnosed with DIPG on August 28th of 2018; her journey was particularly difficult out of the gate. The Mazzells, from Lexington, South Carolina, are extremely brave to give us this insight into their lives at a most difficult time. Sadly, Olivia passed…
  • Sara’s Cure Has Hope with CC-TDI’s Lissett Bickford Ph.D.- Sara’s Cure is a grassroots, race-against-time campaign focused on funding critical research to find a cure for Clear Cell Sarcoma. Lissett Bickford, now with Children's Cancer Therapy Development Institute, a non-profit biotech company in Beaverton Oregon dedicated to eradicating childhood cancer, earned her PhD in Bioengineering at Rice University in collaboration with MD Anderson Cancer Center where she developed rapid nanoparticle-based assays for cancer detection. Lissett’s long-term career goal is to make significant contributions in…

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