NEWS/blog

  • Shane and Shawnee Doherty: The Story behind “Hope through Hollis” - Shane and Shawnee Doherty discuss frankly their experience with their son Hollis who was diagnosed with DIPG in March of 2016. DIPG, diffuse intrinsic pontine glioma, is for all practical considerations a death sentence. The Doherty family showed an extraordinary solidarity out of the gate to endure the experience in the hope of making the most possible wonderful days for their son, and choosing treatment plans accordingly. All treatments being experimental, see how this family …

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  • Steven and Angie Giallourakis and the Steven G. AYA Cancer Research Fund - Two-time cancer survivor Steven Giallourakis joins us with his mother Angie to share their experience which inspired the Steven G. AYA Cancer Research Fund in Avon Lake, Ohio. Angie Giallourakis is President of the organization which has programs in wellness, education, research and advocacy for young people with cancer. "AYA" is an anacronym for "Adolescents-Young Adults", a patient population faced with unique challenges including inadequate research funding, poor prognosis rates, and lingering medical issues for …

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  • Portrait of a Mom: Quality of Life and Neuroblastoma, with Sarah Brewer - Sarah Brewer knows the fear; through years of experience with her son Ben, diagnosed with Neuroblastoma at 2 years of age, her daughter Madeline just born, hers is a story of the most pervasive power of all:  love. Her family changed forever, but love and caring remain intact and reign supreme. Hearing Sarah's story of commitment and faith in the face of perilous uncertainty, for so long, is a testament to the preciousness of her …

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  • Taking it to the Hill: DIPG Advocacy Group promotes H.Res.69 - December 5, 2017, Washington, D.C.--H.Res.69, the DIPG Awareness Resolution, is a simple House Resolution which raises awareness to the realities of diffuse intrinsic pontine glioma, perhaps the most deadly pediatric brain cancer.  It also raises awareness to general pediatric cancer and brain cancer statistics, the leading cause of death in children with cancer, and the general inadequacy of our medical research system to find solutions for them after more than 50 years of clinical knowledge …

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  • H.Res.69: Crucial Awareness Supports Greater Research from the Tragic Example of DIPG - Dr. Michelle Monje-Deissiroth of Stanford University and Dr. Adam Green of University of Colorado, Denver, join us to discuss the breadth of their research as pediatric neuro-oncologists, specifically regarding DIPG, diffuse intrinsic pontine glioma. They discuss how they were inspired to study this particular disease as a focal point for much of their research, and the general state of the research landscape with regard to the challenges facing treatment and the hope of new discoveries …

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  • Presenting: ENDURE, with Jay Korff - Emmy award-winning journalist Jay Korff of WJLA Washington DC joins us to talk about his new documentary film just released, Endure, featuring "Tattoo Tom" Mitchell and his crew taking on the challenge of the Tahoe 200 ultra-distance trail race in support of childhood cancer awareness. The runners' odyssey is punctuated by the personal stories of several childhood cancer victims and their families, exposing the reality which so many face on a daily basis. Tom Mitchell …

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  • Kids First 2.0 with Ellyn Miller - Ellyn Miller joins us to discuss the Gabriella Miller Kids First Research Act, originally signed into law by President Obama in 2014. The original bill ensured that a special fund was created at National Institutes of Health for research into pediatric disease, which historically receives inadequate funding for research. We're fortunate to hear about her daughter Gabriella, whos fight with brain cancer inspired the Smashing Walnuts Foundation as well as the naming of this very …

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  • A Pioneering Journey, with Emma Wrenn - Emma Wrenn joins us to share her experience with her daughter Keira, who just passed away this last August as a result of her battle with DIPG, diffuse intrinsic pontine glioma. Keira's case was public, and many of us around the world followed her story. Emma shares candidly what life is like now, what remain to be the greatest challenges to the DIPG experience, and the hope that her daughter's life has given to research …

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  • Real Solutions for Research Funding: NC3 Leads in Pennsylvania - Christopher Winters, President of NC3, the National Childhood Cancer Coalition, shares with us his work at the state level culminating 10/25 in the passage of HB46 in the Pennsylvania Legislature.  The bill creates the option for individuals to donate from their state income tax refund to pediatric cancer research.  In a less than ideal political climate, change is slow going for raising awareness to the urgent need for greater funding for pediatric cancer at the federal …

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  • Outside the Box: Solutions for Kids with Target Pediatric AML - Julie Guillot and Dr. Soheil Meshinchi, an attending physician at Seattle Children’s Hospital treating children with high-risk leukemias, join us to discuss the innovative and exciting Target Pediatric AML program which promises genomic sequencing for targeted, effective treatment. Dr. Meshinchi oversees the world’s largest pediatric AML tissue repository, located at Seattle’s Fred Hutchinson Cancer Research Center. He is also a full faculty member at Fred Hutch, a professor at University of Washington, and he is …

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