NEWS/blog

  • DIPG Awareness Day—A National Movement - (H.Res.69 asks for a date henceforth, not just for this year, and retroactively--that May 17th be National DIPG Awareness Day.  The importance of the Resolution is with the raising of awareness to the negelect of pediatric cancer research in our medical research system, and the unacceptable realities that parents across the country must endure, year after year.  DIPG exemplifies this problem with pediatric cancer, and H.Res.69 (text) boldly asks that high-risk and pediatric cancers have …

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  • Swifty Foundation: Cure Pediatric Brain Cancer - Al Gustafson is on the Advisory Council of the Children’s Brain Tumor Tissue Consortium and serves on the Board of Swifty Foundation, among several others; in addition to his work in ministry, Al is the president of the Gustafson Family Foundation, a private foundation promoting the development and education of young children at risk.  His son Michael was diagnosed with medullablastoma which unfortunately recurred after treatment and a declaration of having been cancer free; he knew …

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  • BPDCN Update with Caitlin and Kelly Lee - Caitlin joins us with her mom Kelly to update her progress since treatement for BPDCN, Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare and aggressive form of leukemia.  Caitlin describes as best she can her experience with chemotherapy, radiation, bone marrow transplant, and the tough decisions a very young girl has had to make with her family.  Caitlin's grace and sense of hope is inspiring; she is truly a force for hope, compassion, and purpose in the …

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  • With Love and Hope from Mexico - From Monterrey Mexico, childhood cancer advocate Christina Wascher joins the show with Kristoffer Nordstrom, father to 5-year-old Linnea who is currently undergoing treatment there for DIPG, with hopeful success 6 weeks into treatment. The Nordstrom family is from Sweden and they are prepared to remain at least six months in Mexico for Linnea's treatment. With Dr.s Siller, Garcia and Rodriguez, each specializing in a different modality, a more holistic approach to brain cancer treatment is …

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  • Advocacy, Research, and TNCI with Beth Anne Baber - "Eight years ago, a 15 month-old little boy with platinum blond ringlets and bright blue eyes was diagnosed with high-risk neuroblastoma, a childhood cancer that results in around 255 deaths/year in the United States. Based on the size, location and maturity of his tumor, the toddler had less than 50% chance to live long enough to attend kindergarten... Unlike most parents of children newly diagnosed with cancer, these parents were armed with decades of knowledge …

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  • America’s Foremost Runner-Advocates for Children with Cancer - Live from Roy's 100 mi Run for Christopher in Santa Clarita, CA, Roy Wiegand joins us for news on his progress, the support of the local community for his efforts to raise funds for the Michael Hoefflin Foundation.  We are joined by BethAnn Telford, veteran of the World Marathon Challenge, to support Roy and to hear about her accomplishments and challenges, with conversation between runners, with potential planning for events in the next year. Everett …

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  • CannaKids with Tracy Ryan - Sophie Ryan, daughter of Founder and CEO of CannaKids Tracy Ryan, inspired the birth of CannaKids. Sophie was diagnosed at 8 1/2 months old with an extremely rare brain tumor called an Optic Pathway Glioma; after using cannabis oil in combination with her chemo protocol, Sophie’s tumor shrunk by over 95%, a tumor for which doctors said minimal shrinkage would be a best-case scenario. Doctors also said Sophie would have partial if not complete blindness …

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  • Roy’s Run for Christopher - Who knew so much was beginning in Santa Clarita, CA, a medium-sized community with a significant influence and leadership in caring for others.  Childhood Cancer is not a comfortable subject for anyone, yet the unspoken rule of family is ingrained in certain members of this community, and it dominates here.  I'm talking about the Michael Hoefflin Foundation; I'm referring to Roy Wiegand, ultra distance runner for children with cancer, and specifically here, Christopher Wilke.  I'm …

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  • Hope for Osteosarcoma Research: #BecauseofDaniel - Professionally, Theresa Beech has had 20 years of experience as a space engineer designing satellite mission ground systems. She has worked as a ground systems engineer, technical lead, subject matter expert, and program manager for a wide variety of satellite ground systems around the world. She comes to Childhood Cancer Talk Radio with the story of her son, Daniel, who's battle with osteosarcoma ended his young, beautiful life, and left his mother determined to find …

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  • May 17 is DIPG Awareness Day—A National Movement - I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita, CA—Over half of the states in the USA have had advocates working hard this year at getting a declaration of some kind for DIPG Awareness Day, …

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