NEWS/blog

  • The Children’s Cause for Cancer Advocacy with CEO George Dahlman - As the Chief Executive Officer of Children’s Cause for Cancer Advocacy, George Dahlman is responsible for the strategic management and operations of the nation’s preeminent childhood cancer policy organization. Mr. Dahlman is responsible for identifying and advancing issues that will improve the treatment and lives of childhood cancer patients and their families with Congress, the Administration, federal agencies and state governments. He is also responsible for ensuring that families have the opportunity to participate as …
  • Outside the Box with No Return: The Extraordinary Story of Hayley Hinton - Randy Hinton joins us from Summerville SC to discuss the circumstances surrounding his daughter Hayley's diagnosis with brain cancer and the difficulties the family had in procuring effective and consolidated treatment for her. The controversial Burzynski Clinic in Houston TX takes center stage, as does Texas Anderson at Houston and the Children's Hospital in South Carolina where Hayley was diagnosed with diffuse intrinsic pontine glioma at the age of 5. Randy's experiences make clear 3 …
  • Facebook Post to Ryan Gosling - January 4, 2019, Agua Dulce, CA--I sent this note to Ryan Gosling on Facebook, hoping that somehow it would reach him: Hi Ryan, hoping this is actually your page. I just wanted you to know about an important awareness movement for the childhood cancer community, specifically for brainstem glioma--DIPG, the tumor Karen Armstrong died of. Ryan I should have prefaced this by saying, as an actress, and as a DIPG mom, your performance was truly …
  • Every Voice Matters: The Power of Initiative in Advocacy - Wendy and Dean Fachon of Rhode Island join us to talk about state legislation, national resolutions and the legacy of their son Neil, making a strong case for "Right to Try." Paul Miller from Colorado shares about the power of social media and the magic of belief, with 2 successful campaigns granting the requests of children wanting to meet their heroes. Paul also has had a knack for blooming childhood cancer community facebook groups. Elizabeth …
  • DIPG Reality and Research: Hopelessness and the Pathway to a Cure - Morally, rationally and in every sensible way, the experience of DIPG, diffuse intrinsic pontine glioma, inspires bereaved parents to fight for others and researchers to find a cure. Brain cancer is #1 in pediatric cancer incidence, and DIPG is the 2nd most common pediatric brain tumor.  It's also responsible for the majority of pediatric brain tumor deaths annually in the United States.  We visit first with DIPG parent Gerry Tye in Australia, who shares the …
  • To the Childhood Cancer Community - Background information on H. Res. 69 and why the #littlebillthatcould is important. H. Res. 69 info Advocacy Instructions To the Childhood Cancer Community: The privilege of being part of this community is also the responsibility to share important information, and so, I thank you all for this opportunity. My exploration into advocacy began in 2014, and I quickly discovered, during the #morethan4 movement, as a DIPG parent that this particular disease exemplifies in a powerful …
  • Thank you R-cosponsors; last chance for H. Res. 69, meeting request DIPG Advocacy Group, Dec. 3-5 - (Letter was sent to:  Barbara Comstock (VA-10), William Hurd (TX-23), Lamar Smith(TX-21), John Duncan (TN-2), Ryan Costello(PA-6), Scott Perry (PA-4), Duncan Hunter (CA-50), Andy Barr (KY-6), Daniel Donovan (NY-11), Brian Fitzpatrick (PA-8), Chris Collins (NY-27), Evan Jenkins (WV-3), Lou Barletta (PA-11), Steve Stivers, (OH-15), David Joyce (OH-14), and cc'd to Steve Knight (CA-25) author) Dear staff of Republican cosponsors of H. Res. 69, DIPG Advocacy Group is coming to Washington next week to encourage a …
  • #PeytonManningMeetJackson! - Jackson is a boy from Colorado fighting a devastating foe: DSRCT. Desmoplastic Small Round Cell Tumor (sarcoma) is a frequently misdiagnosed, rare pediatric cancer with only 200 known cases in the United States, and a poor prognosis. His father, Jason Frank, candidly discusses the monumental challenges confronting his family, and the less-spoken psychological realities that parents of children with cancer invariably face. Jackson's survival time is uncertain, though statistics indicate he may have less than …
  • DIPG Advocacy Group Letter to House Leadership - re:  H. Res. 69 House Vote before the end of Session II, 115th Congress                                       November 28, 2018 To: The Honorable Speaker of the House of Representatives Paul Ryan (WI-1), The Honorable Majority Leader Kevin McCarthy, Minority Leader Nancy Pelosi (CA-12); The Honorable Chairman of the Energy and Commerce Committee Greg Walden (OR-2), Vice Chairman Joe Barton (TX-6), and Ranking Member Frank Pallone (NJ-6); The Honorable Chairman of the Health Subcommittee Dr. …
  • “The Promise”, with Donna Speckhard - Donna Speckhard brings us a sneak-peek of the upcoming docuseries "The Promise" chronicling the experiences of children with cancer and their families and shedding light on important issues that affect us all in the childhood cancer community. The lack of viable solutions for them poses the question, why it is that we must fight so hard for awareness of their suffering, and to justify greater investment into cures for our children? The lack of solutions …

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