NEWS/blog

  • Hope for Osteosarcoma Research: #BecauseofDaniel - Professionally, Theresa Beech has had 20 years of experience as a space engineer designing satellite mission ground systems. She has worked as a ground systems engineer, technical lead, subject matter expert, and program manager for a wide variety of satellite ground systems around the world. She comes to Childhood Cancer Talk Radio with the story of her son, Daniel, who's battle with osteosarcoma ended his young, beautiful life, and left his mother determined to find …

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  • May 17 is DIPG Awareness Day—A National Movement - I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita, CA—Over half of the states in the USA have had advocates working hard this year at getting a declaration of some kind for DIPG Awareness Day, …

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  • Trailblazing to a Cure: DIPG-Treatment Advisory Council (G-TAC) - G-TAC founder and Executive Director of MaxCure Foundation Jonathan Agin, and G-TAC Medical Advisory Board Member Dr. Sabine Mueller, top neuro-oncology researcher and clinical expert at UCSF, discuss a new concierge-type service for families of the newly-diagnosed with DIPG (diffuse intrinsic pontine glioma) to more expediently direct them to more effective combinatory therapeutic treatments to which they might otherwise not have access, or knowledge thereof. The current prognosis for DIPG is 9 months survival-time with …

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  • K.I.D.S. Campaign with Christine Hanlon - CCTR interviews Christine Hanlon, Executive Director of the KIDS Campaign or Kindness In Doing Service, a 501(c)3 charitable organization devoted to sharing love and service with the childhood cancer community. Christine lives in the greater Tampa Bay area in Florida with her son Dylan, a survivor of Ewings sarcoma. Melanie Crowell, also an executive board member, joins the conversation about the beginnings of the Kids Campaign and its continuing mission.
  • Mom in the Midst - A warning to listeners:  this contains emotionally sensitive material.  CCTR interviews Judith Jaimes Contreras, mom to Ruben who is suffering through the progression of DIPG, a deadly pediatric brain tumor. She candidly shares the reality that hundreds of other families in the US are facing right now: the challenge of acceptance of the terminal nature of diffuse intrinsic pontine glioma, and the agony of witnessing Ruben's decline in utter helplessness, and the urgent need for …

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  • Batten Juvenile Disease CLN3, a Genetic Nightmare - Christina Bouraimi (mother) and Nick Maroulis (nurse) join us on CCTalkRadio from Athens, Greece to tell the story of a brave young man Theodore who lives day by day with progressed symptoms of Batten Disease, CLN3.  There are 10 identified types of Batten Disease, which is itself one of approximately 50 diseases called lysosomal storage disorders (LSD), meaning that genetic mutations disrupt the cells ability to dispose of wastes. With Batten disease, cells are thrown out …

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  • Roy Wiegand: Going the Extra Mile for Kids - On April 13 2017 Childhood Cancer Talk Radio interviewed Roy Wiegand of Burbank CA, suburb of Los Angeles, a local free-lance  musician with an evolving career as ultra-distance runner and advocate for children with cancer.  Roy began running later in life in his early forties, and has been "ultra-running" for about 7 years now, prompted initially by his association through his church with an Ethiopian gentleman who was visiting to raise awareness for the urgent need …

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  • DIPG Across the Map - Jenny Mosier, Executive Director of the Michael Mosier Defeat DIPG Foundation joins us to discuss a 50-State Project for DIPG, calling for volunteers in as many states as possible to work for a gubernatorial or state legislature proclamation for May 17 2017 DIPG Awareness Day.  The 2017 National DIPG Awareness Resolution will be introduced by Congressman Steve Knight (R-CA-25) in the US House of Representatives on January 30, 2017, designating May 17 also for a …

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  • Elizabeth Psar: Mom on a Mission Against DIPG - CCTR interviews Elizabeth Psar, an attorney with a focus in Juvenile law now on a mission against DIPG with the Julia Barbara Foundation. The discussion includes the realities of DIPG and her 2 1/2 year old daughter Julia, and the unavoidable effects of the experience of losing a child to a previously unknown killer. Julia's legacy is funding for DIPG research and a nationwide effort in support of an Awareness Day for DIPG, both at …

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  • Christina Bouraimi’s fight for her son - Christina Bouraimi will join us on Childhood Cancer Talk Radio (CCTalkRadio) on April 6 2017. Author:  "Gregster60.com" Link to blog: http://www.gregster60.com/blog/face-to-face-a-fairy-tale FACE TO FACE:  A FAIRY TALE Awestruck! As the saying goes, a picture is worth a thousand words. But it is also true that some pictures leave you speechless. Both thoughts, I believe, are true when it comes to this picture. It both left me speechless but at the same time caused me to …

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