NEWS/blog

  • Childhood Cancer Caucus Summit 10th Anniversary Special Edition - click pic for podcast download Thursday, Sept. 26 show features interviews with key individuals with important information about CureFest, the rise of childhood cancer awareness, and issues facing childhood cancer families today. The episode marks the passing of the 10th Anniversary of the Childhood Cancer Caucus Summit (9/19/2019), for which Congresswoman and Co-Chairman Jackie Speier (CA-14) shares her experience; Donna Speckard, producer of The Promise docuseries witnessed the beginnings of CureFest, and comments on progress…
  • “Fry and Die, AML!”-with Julie Guillot and Michael Copley - The title of our podcast is a loving tribute to our guest's son Zach's spirited and inspirational fight against Acute Myeloid Leukemia. From TARGET Pediatric AML to the new Children's Initiative with Leukemia Lymphoma Society, this literal AML dynamic duo, Julie Guillot, patient advocate, and Michael Copley, national chairman of the Harry T. Mangurian, Jr. Foundation -- Beat AML campaign, have created an unprecedented partnership to cure pediatric AML. They come by it honestly; each…
  • The House that Hope Built in Zurich, with Philip Manduca - click pic for podcast download or stream, depending on your device Upon the diagnosis of his daughter in 2015 with the deadliest pediatric brain cancer DIPG, Philip Manduca, a financier residing in London, UK,  was supplied with the standard of care "death sentence" by the medics. He realized that he was on his own in the mission to prolong and even save his daughter’s life. He pioneered experimental treatment schedules, and he argued that dosages…
  • The Clinical Trial System is failing America’s Children - Amanda Haddock, DragonMaster Foundation on Medium 8-20-2019 That may seem like a bold headline, but it isn’t click bait. This is a real problem facing many Americans (adults and children) in their most dire moments of need. The best way I can illustrate this is by telling you a story. It’s not fictional. This story is playing out right now, as I type. There is a 20 year old young man, named Jace, who was just…
  • Move the Mountain with the 2019 Hood to Coast Relay - click pic for podcast! The Hood-to-Coast Relay 2019 quickly approaches (August 23-24) and for this special event we are hearing from the MaxCure Foundation Team and beneficiary, the Children's Cancer Therapy Development Institute (cc-TDI). Jonathan Agin, Executive Director of the MaxCure Foundation joins us in the first segment, giving background to the childhood cancer awareness movement and the urgent need for greater funding of research activity into childhood cancers. Brian Jones, ultra-distance runner activist for…
  • Kier’s Kidz and Songs of Love - click pic for podcast Larry Perfetti, President of Kier's Kidz, a 501(c)3 charitable organization in Highland Park, NJ, dedicated to helping children with cancer and their families and supporting childhood cancer research, joins us along with Caroline Kratka, Genetics major at Rutger's University Honors College, who serves on Kier's Kids Advisory Board and shares about youth engagement and advocacy with the foundation. Kier's Kids was inspired by the hopes and dreams of Larry's daughter Kiersten…
  • The Pepper-Neely Act of 1946 and the Fitzgerald Report of 1953, with Randy Hinton - click pic for podcast How did we get here, with a medical research system teaming with money and activity, but so few solutions and options for deadly cancers, especially pediatric cancers? Randy Hinton, of Cross Hill South Carolina, is a childhood cancer advocate and father to Hayley who died of DIPG in 2006, diagnosed in 2005 at just 5 years of age. He brings us an in depth report of the early years of the…
  • Meet “Tattoo Tom” Mitchell: Father, Activist, Founder of Still Brave Foundation - click for podcast! Following the death of his daughter Shayla in 2009 from Hodgkin’s Lymphoma Tom dedicated his entire life to providing non-medical support to children with cancer and their families. He’s also committed to raising awareness of the need for more research funding and safer, less toxic treatments for children with cancer. An extreme runner, he completed a 200 mile run at Lake Tahoe in 2015, and has been featured in an award-winning documentary…
  • “Moonshot4Kids” at Monje Lab: DIPG Families Advocate for Increased Pediatric Cancer Research Funds - June 7, 2019 | Mia Brozovich Nacke COMMUNITY OUTREACH, EVENTS, PEDIATRICS, RESEARCH AND INNOVATION. Families who have lost children to Diffuse Intrinsic Pontine Glioma, a fatal brain tumor with a median survival of 9-10 months, met with Stanford pediatric neuro-oncologist Michelle Monje to learn about new clinical trials and express optimism that accelerated funding will yield treatment results. DIPG families visit the Monje Lab. From left to right, Marisa Martinez, Xavia Martinez-Lusinchi, Kirsten Finley, Zach…
  • To the Ends of the Earth: Juju’s Journey with Mark Hyde - click pic for podcast! Our show features a window into the experience of a father, Mark Hyde, who literally chose to go to the ends of the earth for his daughter, honoring her life with a journey to the north pole. While she was fighting rhabdomyosarcoma, Juliet went with her dad, sister, and mom on quick, day-trip excursions into the beautiful German countryside, as time and hospital proximity would permit. Mark had been contracted to…

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