Ana-Mari Carr (Miami, FL) and Bonnie Woodworth (Brandon, FL), an experienced advocate and legislative director of 1 Voice Foundation, join us to discuss their vocational work as advocates for children with cancer–notably DIPG and pediatric brain cancer. The Florida contingency of advocates with DIPG Advocacy Group this year helped to ensure that S. Res. 587, the National DIPG/Pediatric Brain Cancer Awareness Resolution passed the Senate, and that the House Resolution or #Moonshot4Kids, H. Res. 114, got several more Florida representatives signed-on in support.
We were joined by Christina Wascher, also from Miami, and Director of the “All in to Win” Foundation, who lent an equally powerful voice for children to DIPG Advocacy Group. Both Ana and Bonnie lost their children Dean and Tatumn, respectively, to DIPG, and Christina is a long-time DIPG advocate and foundation leader as a concerned citizen. They share their different experiences and serve as an example of how to work together as a group to raise awareness to the urgent, unmet needs of children with brain cancer in our society today.