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The Shepherd Foundation is working with Congress to introduce a bill to position the rare cancer community for better outcomes. Founder and rare cancer patient David Hysong and CEO Catharine Young join us to discuss the recent virtual briefing with Congressman G.K.Butterfield (NC-1) and Gus Bilirakis (FL-12), Greg Simon, former Director of the Cancer Moonshot and President of the Biden Cancer Initiative and others regarding a pivotal legislative measure to be introduced before the end of 2020.
The Rare Cancer Awareness, Research and Treatment Act of 2020 1, sets the federal incidence definition of rare cancer as there is no current global standard as such, 2, increases research and development funding, and 3, mandates coverage for molecular diagnostics and genetic counseling at diagnosis for Medicare patients.
