For the love of Aspen, diagnosed 6/20/2020 at the age of 4 with DIPG, a terrifying childhood brain cancer, father Ryan, mother Allison, and Aunt Tristin join us to share what this journey has been like as we are precariously close to the discovery of a cure. Along with grandfather…
podcast download Arms Wide Open Childhood Cancer Foundation’s mission (AWOCCF) is to fund less toxic therapies for children with cancer so they can have a better quality of life as they battle the disease and to give families hope by bridging the funding gap and making available potentially life-saving clinical…
–The Arms Wide Open Cancer Foundation newsletter Dec. 31, 2020 Celebrating good news for the childhood cancer community! A string of successes at the federal level to wrap up 2020! Happy New Year! Though 2020 was a very challenging year, the childhood cancer community celebrated many hard-fought victories in November…
What’s in a day? Everything. For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to…
From our friends at National Brain Tumor Society: Your advocacy has made a difference! Over the last year, despite the many challenges presented by the COVID pandemic, you took action, shared your story, and helped to highlight the urgent needs of the brain tumor community. The results of that work…
Howard Salmon comes to us from the Ronald McDonald House near the UC Davis Children’s Hospital in Sacramento, CA, where his son Liam is receiving some emergency care after having had some difficulty breathing. His wife Mary looks after him as the conversation progresses. Liam was diagnosed in January 2020…
