A Voice of Hope, Caring, and Leadership, with Jessica Elder and the Children’s Brain Tumor Foundation

Jessica Elder, LMSW, LCSW-NY has been the Bereavement Program Manager at Children’s Brain Tumor Foundation for 11 years. Originally from Pittsburgh, PA she acquired a Master of Science degree in social work from Columbia University in 2004, and spent 5 years working as a pediatric oncology social worker in an…

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Reticence vs. Passion: The Voices of DIPG Survivors

Childhood Cancer Talk Radio Presents Jessica Ressel-Doeden and Celeste Sabagh Today we hear from two strong, resilient, beautiful women who have beat the odds for a childhood brain cancer that normally proves to be inescapable and merciless. Jessica Ressel-Doeden from St. Louis Missouri here in the USA, and Celeste Sabagh…

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Superpowers Unite: The ChadTough Defeat DIPG Foundation

Childhood Cancer Talk Radio Presents Tammi Carr and Jenny Mosier Today’s show features interviews with Tammi Carr and Jenny Mosier, leaders of their respective foundations, Chadtough, in Ann Arbor Michigan and Michael Mosier Defeat DIPG Foundation in Bethesda Maryland, recently merged into the ChadTough Defeat DIPG Foundation. Each foundation leader…

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The Fairness to Kids with Cancer Act: A Conversation with the Inspiration, Mina Carroll

Childhood Cancer Talk Radio presents a conversation with Mina Carroll, foundation leader and childhood cancer advocate. Mina Carroll with the Storm the Heavens Fund in Philadelphia, PA, literally coined the “We Must Do Better” -for children with cancer- phrase to confront the terrible reality in our society today that children…

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Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day

  FOR IMMEDIATE RELEASE: May 17, 2021 CONTACT: Mackenzie Smith Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day Dingell’s bipartisan resolution would establish a national DIPG Awareness Day on May 17 WASHINGTON, DC – Today, Congresswoman Debbie Dingell (D-MI) commemorated Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day by…

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Today on CCTR: Bexion Pharmaceuticals Introduces Phase II Clinical Trial for DIPG/DMG with BXQ-350

      Today on Childhood Cancer Talk Radio on TogiNet.com at 4pm EST,  Founder and CEO of Bexion Pharmaceuticals Dr. Ray Takigiku and Medical Affairs Consultant and Leader of the phase II clinical trial for DIPG/DMG at Cincinnati Children’s Hospital, Dr. Richard Curry.  Both scientists provide insight into the…

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Life Beyond DIPG: Inspiration and Avocation

In this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and Marcelo Ortigao (Fort Collins, CO) share their personal experiences with DIPG, one of the more common types of childhood brain cancer, and the deadliest with very few…

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Keith Desserich and The Cure Starts Now

Keith Desserich, co-founder of The Cure Starts Now worldwide charity for pediatric brain tumor research, joins us today at this hopeful new year’s beginning. When Keith and his wife Brooke found out that their beautiful daughter Elena had DIPG, a devastating pediatric brain tumor, there were no dedicated clinical trials,…

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Letter to Speaker Pelosi, Dec. 22, 2020

What’s in a day?  Everything.  For us, absolutely everything. Madam Speaker, After 5 years of advocating for the National DIPG Awareness Resolution I’ve discovered that for the third introduction in 2019, the lead sponsor never intended to fight for this bill, or these kids, to be considered with respect to…

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“Against the Odds,” with Howard Salmon

Howard Salmon comes to us from the Ronald McDonald House near the UC Davis Children’s Hospital in Sacramento, CA, where his son Liam is receiving some emergency care after having had some difficulty breathing. His wife Mary looks after him as the conversation progresses. Liam was diagnosed in January 2020…

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