Scott Carter Foundation and CureSearch fund Clinical Trial for DIPG

Paula Carter, founder of the Scott Carter Foundation in Tulsa, OK, joins us with Caitlyn Barrett, National Director of Research and Programs for CureSearch, to discuss their collaboration in supporting a new clinical trial for DIPG. The Scott Carter Foundation has been supporting childhood cancer research for three decades in…

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Braving the Controversy of Cancer Success: Pioneering Scientist and Physician Dr. Stanislaw Burzynski

Dr. Burzynski’s cancer research and patient care has been inspired by the philosophy of the physician Hippocrates: ‘First, do no harm’. The Burzynski Clinic (Houston, TX) approach to treatment is ‘personalized’ in an attempt to maximize effectiveness and minimize side effects for each cancer patient.  However the success of his…

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Tori Moreno, DIPG Survivor

  Twenty-three year old Tori Moreno is fortunate not to remember too much of her early diagnosis with DIPG, but she remembers enough. Treated at the controversial Burzynski Clinic in Houston, TX, Tori did well on the treatments as an infant, and she is now a long-term survivor of the…

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Taking on The System with Randy Hinton

With Randy Hinton   Without adequate national awareness of the urgent, unmet needs of children with cancer, the failure of the medical research system to address childhood cancer will continue as progress remains a high-grade uphill battle. Randy Hinton is a childhood cancer advocate from South Carolina, and father to…

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Jacob’s Legacy: National Monument Honoring Children with Cancer

On January 4, 2021, 6 year-old Jacob Senediak of Pittsburgh, PA died due to complications from his fight with DIPG, a deadly childhood brain cancer which spares mercilessly few of its victims.  His father, Mark Senediak, joins us on Childhood Cancer Talk Radio to begin a discussion about efforts his…

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A Voice of Hope, Caring, and Leadership, with Jessica Elder and the Children’s Brain Tumor Foundation

Jessica Elder, LMSW, LCSW-NY has been the Bereavement Program Manager at Children’s Brain Tumor Foundation for 11 years. Originally from Pittsburgh, PA she acquired a Master of Science degree in social work from Columbia University in 2004, and spent 5 years working as a pediatric oncology social worker in an…

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Reticence vs. Passion: The Voices of DIPG Survivors

Childhood Cancer Talk Radio Presents Jessica Ressel-Doeden and Celeste Sabagh Today we hear from two strong, resilient, beautiful women who have beat the odds for a childhood brain cancer that normally proves to be inescapable and merciless. Jessica Ressel-Doeden from St. Louis Missouri here in the USA, and Celeste Sabagh…

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Superpowers Unite: The ChadTough Defeat DIPG Foundation

Childhood Cancer Talk Radio Presents Tammi Carr and Jenny Mosier Today’s show features interviews with Tammi Carr and Jenny Mosier, leaders of their respective foundations, Chadtough, in Ann Arbor Michigan and Michael Mosier Defeat DIPG Foundation in Bethesda Maryland, recently merged into the ChadTough Defeat DIPG Foundation. Each foundation leader…

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The Fairness to Kids with Cancer Act: A Conversation with the Inspiration, Mina Carroll

Childhood Cancer Talk Radio presents a conversation with Mina Carroll, foundation leader and childhood cancer advocate. Mina Carroll with the Storm the Heavens Fund in Philadelphia, PA, literally coined the “We Must Do Better” -for children with cancer- phrase to confront the terrible reality in our society today that children…

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Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day

  FOR IMMEDIATE RELEASE: May 17, 2021 CONTACT: Mackenzie Smith Dingell Honors Ann Arbor’s Chad Carr, Commemorates DIPG Awareness Day Dingell’s bipartisan resolution would establish a national DIPG Awareness Day on May 17 WASHINGTON, DC – Today, Congresswoman Debbie Dingell (D-MI) commemorated Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day by…

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