Game Changer: Moonshot4Kids Congressional Briefing Brings Hope, New Research Opportunities to Pediatric Brain Cancer

Progress forward has come only from a collaborative effort by those who…could not turn away from this urgent, unmet need.  How much larger the effort would be…if more people were aware, and more people and resources joined us in this fight. Dr. Michelle Monje, Associate Professor of Neurology, and by…

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Support the SPORE Grant

Sample Letter (Janet Demeter) Letters of Support Needed for the CBTTC/PNOC NIH Pediatric Brain Cancer SPORE Grant FAQs From PNOC and CBTTC (download letter below) We are reaching out to you to request a letter of support for our NIH Pediatric Brain Tumor SPORE grant proposal. After discussing our initial plans…

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In Support of H. Res. 114

DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOC…

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Defying the Odds: Anjalie’s Miraculous Journey

Anjalie Bartee was a normal, healthy 17-year-old, a junior in high school in Omaha, NE when she began experiencing headaches and vision changes.  Her doctor thought it might be due to recent changes in her medication, but the condition persisted and worsened; the ophthalmologist detected pressure on the brain and…

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#DIPGwontWait with Lisa and Jace Ward, DIPG Advocacy Group

DIPG Advocacy Group co-founders Elizabeth Psar and Paul Miller join us to help give the background story to the group, how it formed and why; Also joining us is Lisa Ward, a new addition to the Admins of DIPG Advocacy Group, who’s son Jace Ward, a 20 year old pre-law…

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