On Friday, Sept. 20 this new bill, H. R. 4429, the Fairness to Kids with Cancer Act of 2019, was introduced to the House of Representatives by Brian Fitzpatrick of Pennsylvania’s 1st District. Two years prior the Congressman had attended a gala hosted by Storm the Heavens Foundation in Philadelphia,âŚ
Thursday, Sept. 26 show features interviews with key individuals with important information about CureFest, the rise of childhood cancer awareness, and issues facing childhood cancer families today. The episode marks the passing of the 10th Anniversary of the Childhood Cancer Caucus Summit (9/19/2019), for which Congresswoman and Co-Chairman Jackie SpeierâŚ
The title of our podcast is a loving tribute to our guest’s son Zach’s spirited and inspirational fight against Acute Myeloid Leukemia. From TARGET Pediatric AML to the new Children’s Initiative with Leukemia Lymphoma Society, this literal AML dynamic duo, Julie Guillot, patient advocate, and Michael Copley, national chairman ofâŚ
Upon the diagnosis of his daughter in 2015 with the deadliest pediatric brain cancer DIPG, Philip Manduca, a financier residing in London, UK, was supplied with the standard of care “death sentence” by the medics. He realized that he was on his own in the mission to prolong and evenâŚ
Amanda Haddock, DragonMaster Foundation on Medium 8-20-2019 That may seem like a bold headline, but it isnât click bait. This is a real problem facing many Americans (adults and children) in their most dire moments of need. The best way I can illustrate this is by telling you a story. ItâsâŚ
The Hood-to-Coast Relay 2019 quickly approaches (August 23-24) and for this special event we are hearing from the MaxCure Foundation Team and beneficiary, the Children’s Cancer Therapy Development Institute (cc-TDI). Jonathan Agin, Executive Director of the MaxCure Foundation joins us in the first segment, giving background to the childhood cancerâŚ
Larry Perfetti, President of Kier’s Kidz, a 501(c)3 charitable organization in Highland Park, NJ, dedicated to helping children with cancer and their families and supporting childhood cancer research, joins us along with Caroline Kratka, Genetics major at Rutger’s University Honors College, who serves on Kier’s Kids Advisory Board and sharesâŚ
How did we get here, with a medical research system teaming with money and activity, but so few solutions and options for deadly cancers, especially pediatric cancers? Randy Hinton, of Cross Hill South Carolina, is a childhood cancer advocate and father to Hayley who died of DIPG in 2006, diagnosedâŚ
Following the death of his daughter Shayla in 2009 from Hodgkinâs Lymphoma Tom dedicated his entire life to providing non-medical support to children with cancer and their families. Heâs also committed to raising awareness of the need for more research funding and safer, less toxic treatments for children with cancer.âŚ
June 7, 2019 | Mia Brozovich Nacke COMMUNITY OUTREACH, EVENTS, PEDIATRICS, RESEARCH AND INNOVATION. Families who have lost children to Diffuse Intrinsic Pontine Glioma, a fatal brain tumor with a median survival of 9-10 months, met with Stanford pediatric neuro-oncologist Michelle Monje to learn about new clinical trials and expressâŚ
