The Clinical Trial System is failing America’s Children

Amanda Haddock, DragonMaster Foundation on MediumĀ 8-20-2019 That may seem like a bold headline, but it isnā€™t click bait. This is a real problem facing many Americans (adults and children) in their most dire moments of need. The best way I can illustrate this is by telling you a story. Itā€™sā€¦

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Kier’s Kidz and Songs of Love

Larry Perfetti, President of Kier’s Kidz, a 501(c)3 charitable organization in Highland Park, NJ, dedicated to helping children with cancer and their families and supporting childhood cancer research, joins us along with Caroline Kratka, Genetics major at Rutger’s University Honors College, who serves on Kier’s Kids Advisory Board and sharesā€¦

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Meet “Tattoo Tom” Mitchell: Father, Activist, Founder of Still Brave Foundation

Following the death of his daughter Shayla in 2009 from Hodgkinā€™s Lymphoma Tom dedicated his entire life to providing non-medical support to children with cancer and their families. Heā€™s also committed to raising awareness of the need for more research funding and safer, less toxic treatments for children with cancer.ā€¦

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ā€œMoonshot4Kidsā€ at Monje Lab: DIPG Families Advocate for Increased Pediatric Cancer Research Funds

June 7, 2019 | Mia Brozovich Nacke COMMUNITY OUTREACH, EVENTS, PEDIATRICS, RESEARCH AND INNOVATION. Families who have lost children to Diffuse Intrinsic Pontine Glioma, a fatal brain tumor with a median survival of 9-10 months, met with Stanford pediatric neuro-oncologist Michelle Monje to learn about new clinical trials and expressā€¦

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To the Ends of the Earth: Juju’s Journey with Mark Hyde

Our show features a window into the experience of a father, Mark Hyde, who literally chose to go to the ends of the earth for his daughter, honoring her life with a journey to the north pole. While she was fighting rhabdomyosarcoma, Juliet went with her dad, sister, and momā€¦

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A Family Affair: Kendal Brown and her Family in South Carolina

Sandra Brown joins us on Childhood Cancer Talk Radio from Dillon, South Carolina to share the story of her beautiful, 10 year old granddaughter who is fighting brain cancer like a champion. Involved in an ongoing clinical trial for DIPG, Kendal was an honor student this past year, and isā€¦

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From Advocacy to Activism: DIPG Advocacy Group Salutes Cannonballs Across America

May 2019 has witnessed important advances in pediatric brain cancer awareness, advocacy, and the fulfillment of a life-time dream by a dedicated brother and his friends for Kayne Finley of Ormond Beach FL, deceased 18 months ago to DIPG. DIPG is the second most common but deadliest pediatric brain cancer,ā€¦

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