The story behind The Fairness to Kids with Cancer Act of 2019

On Friday, Sept. 20 this new bill, H. R. 4429, the Fairness to Kids with Cancer Act of 2019, was introduced to the House of Representatives by Brian Fitzpatrick of Pennsylvania’s 1st District. Two years prior the Congressman had attended a gala hosted by Storm the Heavens Foundation in Philadelphia,…

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Childhood Cancer Caucus Summit 10th Anniversary Special Edition

Thursday, Sept. 26 show features interviews with key individuals with important information about CureFest, the rise of childhood cancer awareness, and issues facing childhood cancer families today. The episode marks the passing of the 10th Anniversary of the Childhood Cancer Caucus Summit (9/19/2019), for which Congresswoman and Co-Chairman Jackie Speier…

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The Clinical Trial System is failing America’s Children

Amanda Haddock, DragonMaster Foundation on Medium 8-20-2019 That may seem like a bold headline, but it isn’t click bait. This is a real problem facing many Americans (adults and children) in their most dire moments of need. The best way I can illustrate this is by telling you a story. It’s…

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Kier’s Kidz and Songs of Love

Larry Perfetti, President of Kier’s Kidz, a 501(c)3 charitable organization in Highland Park, NJ, dedicated to helping children with cancer and their families and supporting childhood cancer research, joins us along with Caroline Kratka, Genetics major at Rutger’s University Honors College, who serves on Kier’s Kids Advisory Board and shares…

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Meet “Tattoo Tom” Mitchell: Father, Activist, Founder of Still Brave Foundation

Following the death of his daughter Shayla in 2009 from Hodgkin’s Lymphoma Tom dedicated his entire life to providing non-medical support to children with cancer and their families. He’s also committed to raising awareness of the need for more research funding and safer, less toxic treatments for children with cancer.…

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“Moonshot4Kids” at Monje Lab: DIPG Families Advocate for Increased Pediatric Cancer Research Funds

June 7, 2019 | Mia Brozovich Nacke COMMUNITY OUTREACH, EVENTS, PEDIATRICS, RESEARCH AND INNOVATION. Families who have lost children to Diffuse Intrinsic Pontine Glioma, a fatal brain tumor with a median survival of 9-10 months, met with Stanford pediatric neuro-oncologist Michelle Monje to learn about new clinical trials and express…

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