BethAnn Telford, an endurance athlete and brain cancer survivor, advocate for brain cancer patients–especially children, made a special delivery for the DIPG Advocacy Group this past week on Capitol Hill. A letter to the leadership of the Energy and Commerce Committee in the House of Representatives, the Speaker of the…
BethAnn Telford, an endurance athlete and brain cancer survivor, advocate for brain cancer patients–especially children, made a special delivery for the DIPG Advocacy Group this past week on Capitol Hill. A letter to the leadership of the Energy and Commerce Committee in the House of Representatives, the Speaker of the…
From Denver Colorado we bring to you Jill and Cam Morin, who established in their son Luke’s honor a fund for DIPG Research at Children’s Hospital Colorado raising over $230,000 at 22% of their goal. They are gearing up for the Goddard Cares Fall Fest 5k in honor of Luke…
On Friday, Sept. 20 this new bill, H. R. 4429, the Fairness to Kids with Cancer Act of 2019, was introduced to the House of Representatives by Brian Fitzpatrick of Pennsylvania’s 1st District. Two years prior the Congressman had attended a gala hosted by Storm the Heavens Foundation in Philadelphia,…
Thursday, Sept. 26 show features interviews with key individuals with important information about CureFest, the rise of childhood cancer awareness, and issues facing childhood cancer families today. The episode marks the passing of the 10th Anniversary of the Childhood Cancer Caucus Summit (9/19/2019), for which Congresswoman and Co-Chairman Jackie Speier…
The title of our podcast is a loving tribute to our guest’s son Zach’s spirited and inspirational fight against Acute Myeloid Leukemia. From TARGET Pediatric AML to the new Children’s Initiative with Leukemia Lymphoma Society, this literal AML dynamic duo, Julie Guillot, patient advocate, and Michael Copley, national chairman of…
Upon the diagnosis of his daughter in 2015 with the deadliest pediatric brain cancer DIPG, Philip Manduca, a financier residing in London, UK, was supplied with the standard of care “death sentence” by the medics. He realized that he was on his own in the mission to prolong and even…
Amanda Haddock, DragonMaster Foundation on Medium 8-20-2019 That may seem like a bold headline, but it isn’t click bait. This is a real problem facing many Americans (adults and children) in their most dire moments of need. The best way I can illustrate this is by telling you a story. It’s…
The Hood-to-Coast Relay 2019 quickly approaches (August 23-24) and for this special event we are hearing from the MaxCure Foundation Team and beneficiary, the Children’s Cancer Therapy Development Institute (cc-TDI). Jonathan Agin, Executive Director of the MaxCure Foundation joins us in the first segment, giving background to the childhood cancer…
Larry Perfetti, President of Kier’s Kidz, a 501(c)3 charitable organization in Highland Park, NJ, dedicated to helping children with cancer and their families and supporting childhood cancer research, joins us along with Caroline Kratka, Genetics major at Rutger’s University Honors College, who serves on Kier’s Kids Advisory Board and shares…
