It’s with great joy and anticipation that this article was entitled. CCTR interviews Emma Wrenn who’s daughter Keira is a survivor of DIPG, diffuse intrinsic pontine glioma, a virtually unheard-of experience. Emma shares with us the realities of diagnosis and experimental treatment, and the inevitable challenges of living with the…
Dear friends and followers, We would like to share information with you from the Gabriella Miller “Kids First” Pediatric Research Program, inspired of course by the late great, very young yet highly mighty Gabriella Miller, DIPG warrior, and childhood cancer activist. There is also the opportunity here to subscribe to…
November 13, 2016 Re: SOS; American Children Dying Daily #CureDIPG #JacksAngels DIPG Report Letter to President Obama 9/6/2016 H.Res.586 To the Honorable President-Elect Trump and his Staff: I write to you with great hope in my heart that indeed the change you represent…
CCTR interviews Ann Graham, founder and CEO of MIB Agents, an organization devoted to making the lives of children and young people with osteosarcoma better. A groundbreaking conference, FACTOR, is scheduled for 2/24-25 of 2017 including experts, clinicians, patients, and families of children who have perished or who are currently…
CCTR interviews Emily Belcher, advocate, event planner, mother of a childhood cancer survivor, and CureFest volunteer, who tells us about the early days of CureFest, the events goals and influence, and the direction of the Childhood Cancer Awareness Movement. Emily discloses her daughter’s frightening experience with PNET, a pediatric brain…
This link will take you to the Scientific American article online about DIPG. Though technically a rare disease, DIPG is arguably significant. By Esther Landhuis on October 28, 2016, Scientific American online Scientists Tackle Lethal Childhood Brain Cancer In precision medicine era legacy gifts of patient brain tissue reveal disease mechanisms…
