Home Posts tagged "Neuroblastoma"

Tag: Neuroblastoma

Arms Wide Open Childhood Cancer Foundation with Dena Sherwood, Founder

  On July 6, 2008, the lives of Dena and Billy Sherwood changed forever when their then 13-month-old son, Billy Jr., was diagnosed with Neuroblastoma, a very aggressive cancer of the sympathetic nervous system that most commonly occurs in infants and children under the age of five. In August of…

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Hope Over Despair: Mariah Olson, Neuroblastoma Survivor

Mariah Olson was diagnosed in 1980 with neuroblastoma at the age of one year, and is a living testament as a survivor to the difficulties that so many children with cancer endure as a result of toxic, out-dated treatments they receive. She also attests to the pycho-social challenges of growing…

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Portrait of a Mom: Quality of Life and Neuroblastoma, with Sarah Brewer

click to download podcast

Sarah Brewer knows the fear; through years of experience with her son Ben, diagnosed with Neuroblastoma at 2 years of age, her daughter Madeline just born, hers is a story of the most pervasive power of all:  love. Her family changed forever, but love and caring remain intact and reign supreme.

Hearing Sarah’s story of commitment and faith in the face of perilous uncertainty, for so long, is a testament to the preciousness of her son Ben in his brave fight, and to the importance of embracing the best in each moment–and insisting on it.
Sarahs blog documenting Ben’s awesome survival is at www.strongerthanilook.com, a must-read for parents of children with cancer.

The podcast can be found online at:  http://bit.ly/CCTR12-14-17.  (our podcast links are always case-sensitive)

You can listen to live TogiNet radio at www.TogiNet.com.  Childhood Cancer Talk Radio airs every Thursday at 4pm Eastern time, 1pm Pacific.

Advocacy, Research, and TNCI with Beth Anne Baber

“Eight years ago, a 15 month-old little boy with platinum blond ringlets and bright blue eyes was diagnosed with high-risk neuroblastoma, a childhood cancer that results in around 255 deaths/year in the United States. Based on the size, location and maturity of his tumor, the toddler had less than 50%…

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Letter from Gabriella Miller Kids First Program

Dear friends and followers, We would like to share information with you from the Gabriella Miller “Kids First” Pediatric Research Program, inspired of course by the late great, very young yet highly mighty Gabriella Miller, DIPG warrior, and childhood cancer activist.  There is also the opportunity here to subscribe to…

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