Awareness Runs 2014

Awareness Walks & Runs

helpfightDIPG…for DIPG Awareness!  Press Release (click link)

John Bradley Thompson

–Why is it important?

Pediatric Cancer research as a whole is underfunded–only 4% of the NCI’s annual budget for cancer research goes to pediatric cancers.  DIPG is an example of a pediatric cancer that has been marginalized as rare, yet is a common pediatric brain tumor, responsible for 80% of pediatric brain tumor deaths annually in the US.  We are running for awareness of this fact, and also for the unacceptable reality that governs decision-making for research investment:  short-term corporate profits  tend to precede our children’s lives as matter of priority.

Elena Desserich

Why are we running?  AWARENESS for DIPG and pediatric brain tumors, and the unacceptable reality that the leading cause of cancer-related death in children (brain tumors) remains one of the least-funded areas of cancer research.  DIPG has no survivors, and no significant progress to that effect in over 30 years.

Talin Tye

The Washington D.C. RUN for DIPG Awareness will be on Wednesday, September 17th at 4pm starting at the Capitol Building!–

Click MAP to see!

AND the Walk, Saturday September 20th, begins at the White House at 2pm travelling to the National Stadium, and then the return begins at 6pm to the White House for the Vigil at 7:30pm.  More details TBA right here, September 12th.

Aimee Dickey

For Whom are we angelrunnerwalking/running?   John Bradley Thompson, Naithan Sizemore, James-William “Jack” Demeter, Cole Marshall, and Jessie Rees, Aimee Dickey; a partial list can be found below.  All of these children have succumbed to the current fate that DIPG children face with their families, hence the angel wings are worn.

Naithan Sizemore

Orange–John Bradley Thompson  www.thinkjohnbradley.com

Camouflage, Gator’s orange and blue--Naithan Sizemorehttp://www.caringbridge.com/visit/natedog
Yellow–James-William “Jack” Demeter 08/30/08–7/30/12
Red–Cole Marshall
Light Blue–Jessie Rees http://www.jessie.org
Pink–Aimee Dickey http://www.aimeesarmy.com
Deep Pink–Tiara Caleb
Dark Blue–Chase Kerr
Blue–Chase Cross 5/30/01–4/25/12; he was 10
Very Orange–Sammy
Sparkly Pink–Elena (Inspired The Cure Starts Now Foundation)
Yellow–Talin Tye –loved gold and yellow
Green–Sam
Orange–Nicole
Blue–Brandon
Yellow–Paul Coleman
Cinderella Blue, turquoise blue-– Tatumn (was just 4 when she passed)
Chloe-Marie–pink and purple
Zoey–pink, purple, and red
Kera Noelle Goar–purple
**All of these precious children died of DIPG, Kera Noelle Goar 5/25/14–and John Bradley Thompson April 9, 2014, among many others this year.  He was diagnosed and first treated at Children’s Hospital Boston, under the care of Dr. Mark Kieran, director of the neuro-oncology center, before his treatment began at St. Jude’s Children’s Hospital.  John was beloved by his family, community, and the world online community viahttp://www.thinkjohnbradley.com.  His story remains an inspiration, and we walk with them in their grief.   We will be running with an orange flag for John–his favorite color.
 The Boston Run was dedicated to John 6/8/2014.  This run in Washington is for all.
DONATIONS
We are not running for money!  However, if you would like to support DIPG research at your regional children’s research hospital, near whichever city we are running, simply let us know in the memo.    We encourage the support around the country of children’s research hospitals with active research in neuro-oncology, hopeful to initiate and/or support already existing funds for DIPG research.  We are based in Los Angeles County, and support the DIPG research fund at Children’s Hospital Los Angeles.
If we are running in your city, and you want to help fight DIPG, contact us and/or donate with the memo for the pediatric research institution you wish to support, or, if you already have that information, donate directly.  For those institutions without a fund specific to DIPG research, we encourage the formation of such a fund.

Our first Awareness Runs and Walks

IMG_1950The “First Ever” Jack’s Angels City Run  for DIPG Awareness was the Boston Run Sunday June 8, 2014, to make a start, with the hopes of traveling to Washington D.C. for Childhood Cancer Awareness Month in September.

IMG_1241The Los Angeles City Walk for DIPG awareness traveled from the Federal Building on Wilshire Blvd, to end  at  the Santa Monica Pier, on Saturday August 30th.  This just happens to be Jack’s birthday, Jack’s Angels’ namesake, and we celebrated with cake and playing at Pacific Park on the Pier!

 

Boston Run

http://snippets.mapmycdn.com/routes/view/embedded/433767644?width=600&height=400&&line_color=E60f0bdb&rgbhex=DB0B0E&distance_markers=1&unit_type=metric&map_mode=ROADMAP&last_updated=2014-06-03T11:14:23-07:00

Create Maps or search from 80 million at MapMyRun
Time of Run:  Sunday, June 8, 5pm Eastern Standard Time/   Who’s Running?  Janet Demeter, and possibly some runners from a local running club–hoping anyway!  Starting at:  44 Commonwealth Ave, right above Berkeley St. in front of the Public Gardens, and finishing at:  Boston Marathon Finish at Copley.  Distance, approximately 5.1 miles.

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