âŚfor DIPG Awareness!  Press Release (click link)
âWhy is it important?
Pediatric Cancer research as a whole is underfundedâonly 4% of the NCIâs annual budget for cancer research goes to pediatric cancers.  DIPG is an example of a pediatric cancer that has been marginalized as rare, yet is a common pediatric brain tumor, responsible for 80% of pediatric brain tumor deaths annually in the US.  We are running for awareness of this fact, and also for the unacceptable reality that governs decision-making for research investment:  short-term corporate profits  tend to precede our childrenâs lives as matter of priority.
Why are we running?  AWARENESS for DIPG and pediatric brain tumors, and the unacceptable reality that the leading cause of cancer-related death in children (brain tumors) remains one of the least-funded areas of cancer research.  DIPG has no survivors, and no significant progress to that effect in over 30 years.
The Washington D.C. RUN for DIPG Awareness will be on Wednesday, September 17th at 4pm starting at the Capitol Building!â
Click MAP to see!
AND the Walk, Saturday September 20th, begins at the White House at 2pm travelling to the National Stadium, and then the return begins at 6pm to the White House for the Vigil at 7:30pm.  More details TBA right here, September 12th.
For Whom are we walking/running?  John Bradley Thompson, Naithan Sizemore, James-William âJackâ Demeter, Cole Marshall, and Jessie Rees, Aimee Dickey; a partial list can be found below.  All of these children have succumbed to the current fate that DIPG children face with their families, hence the angel wings are worn.
OrangeâJohn Bradley Thompson  www.thinkjohnbradley.com
YellowâJames-William âJackâ Demeter 08/30/08â7/30/12
RedâCole Marshall
Deep PinkâTiara Caleb
Dark BlueâChase Kerr
BlueâChase Cross 5/30/01â4/25/12; he was 10
Very OrangeâSammy
YellowâTalin Tye âloved gold and yellow
GreenâSam
OrangeâNicole
BlueâBrandon
YellowâPaul Coleman
Cinderella Blue, turquoise blue-– Tatumn (was just 4 when she passed)
Chloe-Marieâpink and purple
Zoeyâpink, purple, and red
Kera Noelle Goarâpurple
**All of these precious children died of DIPG, Kera Noelle Goar 5/25/14âand John Bradley Thompson April 9, 2014, among many others this year.  He was diagnosed and first treated at Childrenâs Hospital Boston, under the care of
Dr. Mark Kieran, director of the neuro-oncology center, before his treatment began at St. Judeâs Childrenâs Hospital. Â John was beloved by his family, community, and the world online community via
http://www.thinkjohnbradley.com. Â His story remains an inspiration, and we walk with them in their grief. Â We will be running with an orange flag for Johnâhis favorite color.
 The Boston Run was dedicated to John 6/8/2014.  This run in Washington is for all.
DONATIONS
We are not running for money!  However, if you would like to support DIPG research at your regional childrenâs research hospital, near whichever city we are running, simply let us know in the memo.   We encourage the support around the country of childrenâs research hospitals with active research in neuro-oncology, hopeful to initiate and/or support already existing funds for DIPG research.  We are based in Los Angeles County, and support the DIPG research fund at Childrenâs Hospital Los Angeles.
If we are running in your city, and you want to help fight DIPG, contact us and/or donate with the memo for the pediatric research institution you wish to support, or, if you already have that information, donate directly. Â For those institutions without a fund specific to DIPG research, we encourage the formation of such a fund.
Our first Awareness Runs and Walks
The âFirst Everâ Jackâs Angels City Run  for DIPG Awareness was the Boston Run Sunday June 8, 2014, to make a start, with the hopes of traveling to Washington D.C. for Childhood Cancer Awareness Month in September.
The Los Angeles City Walk for DIPG awareness traveled from the Federal Building on Wilshire Blvd, to end  at the Santa Monica Pier, on Saturday August 30th.  This just happens to be Jackâs birthday, Jackâs Angelsâ namesake, and we celebrated with cake and playing at Pacific Park on the Pier!
Boston Run
http://snippets.mapmycdn.com/routes/view/embedded/433767644?width=600&height=400&&line_color=E60f0bdb&rgbhex=DB0B0E&distance_markers=1&unit_type=metric&map_mode=ROADMAP&last_updated=2014-06-03T11:14:23-07:00
Time of Run:Â Sunday, June 8, 5pm Eastern Standard Time/ Â Whoâs Running? Â Janet Demeter, and possibly some runners from a local running clubâhoping anyway! Â Starting at:Â 44 Commonwealth Ave, right above Berkeley St. in front of the Public Gardens, and finishing at: Â Boston Marathon Finish at Copley. Â Distance, approximately 5.1 miles.