Every Voice Matters: The Power of Initiative in Advocacy

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Wendy and Dean Fachon of Rhode Island join us to talk about state legislation, national resolutions and the legacy of their son Neil, making a strong case for “Right to Try.” Paul Miller from Colorado shares about the power of social media and the magic of belief, with 2 successful campaigns granting the requests of children wanting to meet their heroes. Paul also has had a knack for blooming childhood cancer community facebook groups. Elizabeth Psar from Knoxville TN talks about bringing an experience of utter darkness national attention, and the beginnings of DIPG Advocacy Group. All of these differing experiences and the ideas thus inspired have found their common ground in a public request for greater research consideration for pediatric cancers, for which there are few, if any, actual solutions. See how a simple piece of populist legislation incorporates all of these efforts in the plea for national discussion and acknowledgment, and the pathway to a more responsive medical research system.

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