Letter to the President

December 25, 2014 Dear President Obama and First Lady Michelle Obama, Please accept my deepest thanks for your replies to my letter last summer about D.I.P.G. (diffuse intrinsic pontine glioma), and the darkness of the experience that so many families have endured, and continue to face each day.  I consider …

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors.  Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that …

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Potential Therapy Found

From Northwestern University Feinberg School of Medicine Potential Therapy Found for Incurable Pediatric Brain Tumor Share on facebookShare on googleShare on twitterShare on emailMore Sharing Services44 by Nora Dunne on Nov 17, 2014 Diffuse intrinsic pontine glioma (DIPG) is inoperable because of the tumor’s vital location on the brainstem. Northwestern …

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