In our many discussions with parents of children afflicted with brain cancer, perhaps the most telling are those of scientist parents who, like all other parents, are left to their own devices to try to save their children. Philip Tan’s son Xavier, who was a in his prime as a…
With Randy Hinton Without adequate national awareness of the urgent, unmet needs of children with cancer, the failure of the medical research system to address childhood cancer will continue as progress remains a high-grade uphill battle. Randy Hinton is a childhood cancer advocate from South Carolina, and father to…
Retired SFPD Police Captain Rick Schiff joins us to share his experience in the mid 1990s with his daughter Chrissy, one of twins, who was diagnosed with a rare and deadly form of brain cancer. Since losing her to the effects of her original lethal-dose conventional treatments, he has tirelessly…
This edition of Childhood Cancer Talk Radio gives a personal look at the landscape of childhood cancer advocacy over recent years, between parents of children afflicted with brain cancer. For this, I have the honor of sharing conversation and perspective with fellow advocate Jonathan Agin, whose participation in the childhood…
Meet Anne Beatty from Prattville, Alabama. She retired in December 2019 after teaching for almost 24 years. Sadly, complications from a brain tumor–physical, and social–made retirement unavoidable. Her brain tumor journey began July 4, 2018; she had open heart surgery in February 2018 for a previously undetected congenital heart condition.…
H. Res. 114, the DIPG Awareness Resolution Out of sight and out of mind, the suffering and the tragedy continues, exemplified in a most horrific way by the experience of DIPG, which, out of the blue, robs the child of the use of their body until finally respiration ceases, retaining…
Denver CO–Morgan Adams Foundation co-founder Joan Slaughter joins us to share this organization’s 20 year history of advancing the clinical trial process for pediatric cancer in the medical research system. Her daughter Morgan had been diagnosed at 5 years old with GBM in 1997, surviving 11 months past the diagnosis…
re: H. Res. 69 House Vote before the end of Session II, 115th Congress November 28, 2018 To: The Honorable Speaker of the House of Representatives Paul Ryan (WI-1), The Honorable Majority Leader Kevin McCarthy, Minority Leader Nancy Pelosi (CA-12); The Honorable Chairman of the Energy…
What is it like when there is literally nothing they can do, when your child is ok one day, but after the next might never walk again? Jodi Jacobs tells it like it is for DIPG families, discussing what happened to her 7 year old daughter, Cheyanne. DIPG, often labeled…
Luna Zin joins us from her Utah home to discuss her first book, “The Heart of Luminous”, inspired by her research in the childhood cancer community, and by a special little boy in particular who lost his life to brain cancer. Luna takes us on a personal journey of discovery…
