Batten Juvenile Disease CLN3, a Genetic Nightmare

Christina Bouraimi (mother) and Nick Maroulis (nurse) join us on CCTalkRadio from Athens, Greece to tell the story of a brave young man Theodore who lives day by day with progressed symptoms of Batten Disease, CLN3.  There are 10 identified types of Batten Disease, which is itself one of approximately 50 …

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Christina Bouraimi’s fight for her son

Christina Bouraimi will join us on Childhood Cancer Talk Radio (CCTalkRadio) on April 6 2017. Author:  “Gregster60.com” Link to blog: http://www.gregster60.com/blog/face-to-face-a-fairy-tale FACE TO FACE:  A FAIRY TALE Awestruck! As the saying goes, a picture is worth a thousand words. But it is also true that some pictures leave you speechless. …

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