Jacob’s Legacy: National Monument Honoring Children with Cancer

On January 4, 2021, 6 year-old Jacob Senediak of Pittsburgh, PA died due to complications from his fight with DIPG, a deadly childhood brain cancer which spares mercilessly few of its victims.  His father, Mark Senediak, joins us on Childhood Cancer Talk Radio to begin a discussion about efforts his…

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Josephine and Dana

Two special moms, Patricia Palman and Lenore Scatton, share stories of their amazing daughters who both left legacies of inspiration from their fateful battles with DIPG. Josephine Palman and Dana Scatton each had huge community followings and an outpouring of love and grief with their passing. They both coincidentally enjoyed…

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“Our Amazing Fighters” with LeAnna Headley

Meet LeAnna Headley, Childhood Cancer Talk Radio’s Hero of the Week! Our Amazing Fighters started as a simple instagram page in August of 2014 by now 19-year-old LeAnna Headley from Richmond, VA to raise awareness for childhood cancer. Since then it has evolved into so much more than a social…

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Portrait of a Mom: Quality of Life and Neuroblastoma, with Sarah Brewer

click to download podcast

Sarah Brewer knows the fear; through years of experience with her son Ben, diagnosed with Neuroblastoma at 2 years of age, her daughter Madeline just born, hers is a story of the most pervasive power of all:  love. Her family changed forever, but love and caring remain intact and reign supreme.

Hearing Sarah’s story of commitment and faith in the face of perilous uncertainty, for so long, is a testament to the preciousness of her son Ben in his brave fight, and to the importance of embracing the best in each moment–and insisting on it.
Sarahs blog documenting Ben’s awesome survival is at www.strongerthanilook.com, a must-read for parents of children with cancer.

The podcast can be found online at:  http://bit.ly/CCTR12-14-17.  (our podcast links are always case-sensitive)

You can listen to live TogiNet radio at www.TogiNet.com.  Childhood Cancer Talk Radio airs every Thursday at 4pm Eastern time, 1pm Pacific.

Roy Wiegand: Going the Extra Mile for Kids

On April 13 2017 Childhood Cancer Talk Radio interviewed Roy Wiegand of Burbank CA, suburb of Los Angeles, a local free-lance  musician with an evolving career as ultra-distance runner and advocate for children with cancer.  Roy began running later in life in his early forties, and has been “ultra-running” for about…

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Christina Bouraimi’s fight for her son

Christina Bouraimi will join us on Childhood Cancer Talk Radio (CCTalkRadio) on April 6 2017. Author:  “Gregster60.com” Link to blog: http://www.gregster60.com/blog/face-to-face-a-fairy-tale FACE TO FACE:  A FAIRY TALE Awestruck! As the saying goes, a picture is worth a thousand words. But it is also true that some pictures leave you speechless.…

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Virtual Running Event Benefits Pediatric Cancer Research and offers Global Support for the 2017 National DIPG Awareness Resolution

From anywhere in the world, all are welcome to participate in the “Virtual Relay for Jack” event, supporting a research project for DIPG, the leading cause of death in children with brain cancer.  The event also provides a rallying point for the groundbreaking National DIPG Awareness Resolution which addresses the…

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Relay for Jack: Local Communities come together in support of National DIPG Awareness Week

For immediate release Relay for Jack: Local Communities come together in support of National DIPG Awareness Week May 24, 2016, Santa Clarita, CA—HRes586 was introduced to the House of Representatives Energy and Commerce Committee on January 13, 2016, by Congressman Steve Knight (R-CA-25) the day after the Moonshot Initiative was…

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200 Mile Activist Run for HRes586 Makes History for DIPG, Childhood Cancer Awareness, and the State of California

For Immediate Release pdf. version April 19, 2016 Santa Clarita, CA—Ultra-distance runner and activist for children with cancer Everett Smith of Redlands, CA and Janet Demeter of Jack’s Angels in Agua Dulce, CA team up to promote “Action Days” for HRes586 in support of children currently afflicted with DIPG and…

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CCTR Presents 1/28/2016

Lisa Solis DeLong, Author of “Blood Brothers”–a memoir of loss and faith while raising two sons with cancer Lisa’s book, “Blood Brothers” http://bit.ly/LisaDelong  /  Lisa’s Tedx talk on “Death Cafe” http://bit.ly/lisadelong Lisa Solis DeLong, author, nurse, bereavement facilitator, patient advocate, and last but not least–mom!–joins us for a candid discussion…

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