This podcast is a continuation of our March 3 show, “Living with DMG: Scientist Father Philip Tan blazes a Trail for Xavier“, where Xavier’s father Philip gave us and extensive window into the life of his family and how it had changed since the diagnosis of a deadly brain tumor. …
Our show features a window into the experience of a father, Mark Hyde, who literally chose to go to the ends of the earth for his daughter, honoring her life with a journey to the north pole. While she was fighting rhabdomyosarcoma, Juliet went with her dad, sister, and mom…
Working Toward Greater Precision in Childhood Cancers Francis Collins, March 6, 2018 posted on NIH website, direct link above Each year, more than 15,000 American children and teenagers will be diagnosed with cancer. While great progress has been made in treating many types of childhood cancer, it remains the leading cause…
Christina Bouraimi (mother) and Nick Maroulis (nurse) join us on CCTalkRadio from Athens, Greece to tell the story of a brave young man Theodore who lives day by day with progressed symptoms of Batten Disease, CLN3. There are 10 identified types of Batten Disease, which is itself one of approximately 50…
CCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 9-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the deadliest cancers which is almost exclusively pediatric. Her pioneering journey into the unknown includes treatments in Germany and the UK. Lisa Spedale, who’s daughter Kira was the…
