Run with us!–for our kids 2.22, 12pm-NOON
—>Time and Date changed!–save it: 2-22-2015 1st DIPG Awareness Run of 2015! Across the Santa Clarita Valley 11.3 mi, 18.1k The “Jackangel” again asks all locals to join the almost 20k…
Update: 1st DIPG Awareness Run of 2015, Sunday 2/22 at noon
Jan. 26, 2015 Santa Clarita, CA On Sunday, February 22, 2015, (2/22/2015) at 12pm, the first DIPG Awareness Run will begin across the Santa Clarita Valley. The Run starts at the entrance to Six Flags Magic Mountain, at the Old Road and Magic Mountain Parkway and the entrance to Interstate 5,…
Letter to the President
December 25, 2014 Dear President Obama and First Lady Michelle Obama, Please accept my deepest thanks for your replies to my letter last summer about D.I.P.G. (diffuse intrinsic pontine glioma), and the darkness of the experience that so many families have endured, and continue to face each day. I consider…
Letter to Congressmen McCaul and Van Hollen
The same letter with personalized content was sent to each of the Chairmen of the Congressional Caucus for Childhood Cancer, Michael McCaul (TX) and Chris Van Hollen (MD) Dear Congressman McCaul, …
Mathias Law
State of Virginia Steps Up for Childhood Cancer Awareness A friend posted this on my facebook page, by Glennon Doyle Melton, award-winning author; wanted it to be here as well as an example of the urgent need for research into all pediatric cancer, which in unconscionably underfunded in our country.…
Definition of Terms-a Journey in Awareness
A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or “DIPG”, a pediatric brainstem tumor with no survivors. Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that…
Potential Therapy Found
From Northwestern University Feinberg School of Medicine Potential Therapy Found for Incurable Pediatric Brain Tumor Share on facebookShare on googleShare on twitterShare on emailMore Sharing Services44 by Nora Dunne on Nov 17, 2014 Diffuse intrinsic pontine glioma (DIPG) is inoperable because of the tumor’s vital location on the brainstem. Northwestern…
NCI Brain Spore teams
From the National Cancer Institute, National Institutes of Health (www.cancer.gov) Translational Research Program, DCTD Division of Cancer Treatment and Diagnosis Organ Site-Specific SPOREs By State By Organ Location Last Updated: 11/04/14 Brain SPOREs It is estimated that in 2013 there will be 23,130 new cases of cancer of the brain…
Our Mission 2014
This post is a repeat of our home page, the content of which is very important yet is often overlooked. Here the links are kept intact for easy reference. Also, our literature is offered here as well. PRWeb press release LEAFLET brochure DESCRIPTION of Purpose Did You Know?…
Reliving it without knowing.
Oct. 26, 2015The past few weeks I’ve fought depression, anxiety, jumping heart, breathlessness. Tried to whip myself into shape by keeping running–even doing a race last weekend, which physically I dreaded knowing how hard it would be. No heart attack, stroke; same depression, desire to sit and stare. While sitting…
