Jacob’s Legacy: National Monument Honoring Children with Cancer

On January 4, 2021, 6 year-old Jacob Senediak of Pittsburgh, PA died due to complications from his fight with DIPG, a deadly childhood brain cancer which spares mercilessly few of its victims.  His father, Mark Senediak, joins us on Childhood Cancer Talk Radio to begin a discussion about efforts his…

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“Help and Hope Happen Here,” a New Podcast with Mark Levine

Mark Levine is one of those special people who are moved from an inner conscience and love for all children. Mark and his wife Debbie live in Stoughton, MA and have two children and two grandchildren. Retired from managing a small business for many years, Mark now devotes his life’s…

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“Our Amazing Fighters” with LeAnna Headley

Meet LeAnna Headley, Childhood Cancer Talk Radio’s Hero of the Week! Our Amazing Fighters started as a simple instagram page in August of 2014 by now 19-year-old LeAnna Headley from Richmond, VA to raise awareness for childhood cancer. Since then it has evolved into so much more than a social‚Ķ

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Dogs Prove to Be Kids Best Friend, with Dr. Bernard Seguin and Ulrike Szalay

According the the Genomics Institute, 84% of dog DNA has human counterparts, so we suffer many of the same diseases, including most cancers. Dogs have a higher incidence of certain tumors which are considered rare in children. By studying these tumor types in dogs, we can learn a great deal…

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#PeytonManningMeetJackson!

Jackson is a boy from Colorado fighting a devastating foe: DSRCT. Desmoplastic Small Round Cell Tumor (sarcoma) is a frequently misdiagnosed, rare pediatric cancer with only 200 known cases in the United States, and a poor prognosis. His father, Jason Frank, candidly discusses the monumental challenges confronting his family, and…

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DIPG Advocacy Group Letter to House Leadership

re:  H. Res. 69 House Vote before the end of Session II, 115th Congress                                       November 28, 2018 To: The Honorable Speaker of the House of Representatives Paul Ryan (WI-1), The Honorable Majority Leader Kevin McCarthy, Minority Leader Nancy Pelosi (CA-12); The Honorable Chairman of the Energy…

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Jodi Jacobs and the “Support DIPG Awareness” Petition

What is it like when there is literally nothing they can do, when your child is ok one day, but after the next might never walk again? Jodi Jacobs tells it like it is for DIPG families, discussing what happened to her 7 year old daughter, Cheyanne.  DIPG, often labeled…

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Death Sentence for 300 Children Each Year in the United States Motivates DIPG Advocacy Group Trip to Washington DC

April 14, 2018 The current medical research system…is non-apologetically and systematically divested of concern. April 12, 2018, Santa Clarita, CA–The DIPG Advocacy Group, organized by childhood cancer advocate Janet Demeter of Agua Dulce, CA is preparing a trip to Washington DC for the week of April 16, 2018 to visit‚Ķ

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Congressman Knight Champions Awareness Legislation for Children with Cancer

January 30, 2018, Santa Clarita, CA–One year ago today, Congressman Steve Knight (R-CA-25) introduced with Congresswoman Jackie Speier (D-CA-14) H.Res.69, the National DIPG Awareness Resolution to the House Energy and Commerce Committee. ¬†The Resolution persists today, amid an intensive political landscape in 2018, for children with the deadliest pediatric brain‚Ķ

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Congressman Knight Champions Awareness Legislation for Forgotten Children

January 23, 2018, Santa Clarita, CA–Amid an intensive political landscape in 2018 persists an National Awareness Resolution, H.Res.69, for children with the deadliest pediatric brain cancer, DIPG: ¬†diffuse intrinsic pontine glioma. ¬†Not only does the bill call for an Awareness Day for these children and their families, May 17, it‚Ķ

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