News & Views: July 2017 Highlights in childhood cancer policy, news, events & more RACE for Children Act Awaits a Senate Vote The RACE for Children Act passed the House by a voice vote earlier this month as part of the larger FDA user fee bill. We’re now asking advocates to join us in…
NCI article July 24, 2017 Shared by Jack’s Angels Foundation Today investigators at the National Cancer Institute (NCI) and the Children’s Oncology Group (COG) announced the opening of enrollment for a unique precision medicine clinical trial. NCI-COG Pediatric Molecular Analysis for Therapy Choice (Pediatric MATCH) is a nationwide trial to explore…
A warning to listeners: this contains emotionally sensitive material. CCTR interviews Judith Jaimes Contreras, mom to Ruben who is suffering through the progression of DIPG, a deadly pediatric brain tumor. She candidly shares the reality that hundreds of other families in the US are facing right now: the challenge of…
(Copied this GMail letter to our Foundation from PAC2) on Wed. Dec. 7, 2016 Dear PAC2, It’s been too long between communications, but you know we only reach out if your advocacy is really needed to help children with cancer! Yesterday, the House passed the STAR Act! You can read…
From the website of Congressman Michael McCaul, https://mccaul.house.gov/media-center/press-releases/mccaul-van-hollen-speier-childhood-cancer-bill-passes-us-house Dec 6, 2016 Press Release WASHINGTON, D.C. – Today, co-chairs of the Childhood Cancer Caucus, Congressmen Michael McCaul (TX-10) and Chris Van Hollen (MD-08), and incoming co-chair Congresswoman Jackie Speier (CA-14), applaud the U.S. House passage of H.R. 3381, Childhood Cancer STAR Act. The…
November 13, 2016 Re: SOS; American Children Dying Daily #CureDIPG #JacksAngels DIPG Report Letter to President Obama 9/6/2016 H.Res.586 To the Honorable President-Elect Trump and his Staff: I write to you with great hope in my heart that indeed the change you represent…
CCTR interviews Ann Graham, founder and CEO of MIB Agents, an organization devoted to making the lives of children and young people with osteosarcoma better. A groundbreaking conference, FACTOR, is scheduled for 2/24-25 of 2017 including experts, clinicians, patients, and families of children who have perished or who are currently…
August 1, 2016 https://cac2.org/cac2-members-reflections-national-cancer-moonshot-summit/ CAC2 member David Frazer (National Pediatric Cancer Foundation) “The Moonshot Summit was an event that gathered the principals within the oncology industry under the inspirational leadership of Vice President Biden. In my opinion, all politics aside, Mr. Biden portrayed the type of leadership necessary to conduct…
Who will be its champion??? An Angel Story Where to begin… Well, it begins with an ending. Two weeks before my son died, he was visited by angels. “Two white ghosts” he called them, and though he’d been scared, they sure did make him laugh. I assumed he was with…
(Taken from cc-TDI.org) Dr. Keller’s research focuses on the development of more effective, less toxic therapies for childhood cancers. His special interest is advanced disease that has spread beyond the initial location of the cancer. Charles co-chairs the brain tumor developmental therapeutics committee (CNS-DVL) of the Children’s Oncology Group and is…
