Letter to the President

There is a specialized killer on the loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. September 6, 2016 Dear President Obama, I’ve written to you a…

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Letter to President Obama, 9/10/2016

There is a specialized killer loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. Dear President Obama,                    …

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Step UP! Action and Awareness with Neal Rourke and Jesse Robinson

CCTR talks with Neal Rourke and Jesse Robinson about the Childhood cancer Awareness Movement and the upcoming September, Childhood Cancer Awareness Month.  Lighting, “Going Gold”, the Maggie Project, and Tyler Robinson Foundations’s Project CANCO are featured.  CANCO is a bike ride planned to begin Sept. 1 from Niagra Falls, Canada…

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Creating HOPE: Nancy Goodman

CCTR interviews foremost advocate for children with cancer, lawyer, and mom to Jacob, forever 10, 2009, Nancy Goodman.  Nancy brings us news of the RACE for Children Act, a reform of the Pediatric Cancer Research Equity Act or PREA which she champions, and it’s to go to both House and…

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Today! 6-11 #AngelsStadium #KatherineTheBrave #HRes586

June 11, 2016 Los Angeles CA–This Afternoon the Angel Runner hits the pavement of Anaheim to arrive at Angel’s Stadium at approximately 3pm.  She’ll circle three times in memory of Katie King, aka Katherine the Brave, a little 7-yr old girl from Placentia who succumbed to DIPG on 6/6/2016 around 7:30pm in her…

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Long Live Katherine the Brave

#KatherinetheBrave  #runforDIPG  #HRes586  #LosAngeles For immediate release June 7, 2016 Los Angeles CA–Today the Angel Runner hits the pavement of downtown Los Angeles in memory of Katie King, aka Katherine the Brave, a little 7-yr old girl from Placentia who, sadly, succumbed to DIPG last evening 6/6/2016 around 7:30pm in…

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Relay for Jack: Local Communities come together in support of National DIPG Awareness Week

For immediate release Relay for Jack: Local Communities come together in support of National DIPG Awareness Week May 24, 2016, Santa Clarita, CA—HRes586 was introduced to the House of Representatives Energy and Commerce Committee on January 13, 2016, by Congressman Steve Knight (R-CA-25) the day after the Moonshot Initiative was…

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Letter to President Obama

To President Barack Obama:                                                                                       Thursday May 5, 2016 I had the pleasure of meeting with Fae Jencks in the Office of Science and Technology this last Tuesday regarding an Awareness Resolution currently in the House of Representatives, HRes586, designating the 4th week of May to be National DIPG Awareness Week. …

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What if?

Childhood Cancer Advocacy 101 What if it were your child?  God help you…you’d discover very quickly that the medical research system doesn’t consider your child’s life investment-worthy, that no therapies have been developed for this disease for decades, and that urgency of need and potential years of life lost are…

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