McCaul, Van Hollen, Speier, Reed, and Capito Introduce Bipartisan Childhood Cancer STAR Act link to press release WASHINGTON, DC – Today Congressman Michael McCaul introduced the bipartisan, bicameral Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act of 2015. Congressman McCaul was joined by his fellow co-chair of the Childhood…
“They were told it was a ‘rare’ brain tumor, and that nothing had been done for decades, in research, because the ‘numbers’ weren’t great enough for investors. After his death, they came to learn that DIPG is one of the more common pediatric brain tumors(12% incidence), and responsible for roughly…
Please help us get a National Day for our DIPG heroes! This could seriously help our kids and childhood cancer research. That’s right, you really do have the power to create change! All it takes is clicking a button, but you have to actually do it for it to work,…
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The DIPG Awareness Run on May 25, 2015 marked the beginning of the first celebrated DIPG Awareness Week in the State of California. Declared in June of 2014 by the California State Assembly, thanks to the work of Assemblyman Scott Wilk, a national statement and achievement was made for DIPG,…
Wednesday, May 20, Santa Clarita, CA–DIPG, diffuse intrinsic pontine glioma, is a pediatric brain tumor that is invariably terminal with no progress made to that effect in over 35 years of clinical record. DIPG is responsible for roughly 80% of pediatric brain tumor deaths annually[1], the leading cause of cancer-related…
Lauren Hill, 19, died on Friday, April 10 2014 after a very public, 16-month battle with DIPG. In her fight, she began the victory against indifference to childhood cancer, and for awareness for DIPG–diffuse intrinsic pontine glioma–an invariably terminal pediatric brain tumor, in the midst of which thousands of…
—>Time and Date changed!–save it: 2-22-2015 1st DIPG Awareness Run of 2015! Across the Santa Clarita Valley 11.3 mi, 18.1k The “Jackangel” again asks all locals to join the almost 20k…
Breaking News Santa Clarita 6/5/2014 1:17pm–Today, through the efforts of California State Assemblyman Scott Wilk, a resolution has passed to declare a DIPG Awareness Week in the State of California. Respectfully, the statistics exposed regarding DIPG incidence are perhaps the most conservative, and notably DIPG comprises roughly 10-12% incidence…
