McCaul, Van Hollen, Speier, Reed, and Capito Introduce Bipartisan Childhood Cancer STAR Act link to press release WASHINGTON, DC – Today Congressman Michael McCaul introduced the bipartisan, bicameral Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act of 2015. Congressman McCaul was joined by his fellow co-chair of the Childhood…
“They were told it was a ‘rare’ brain tumor, and that nothing had been done for decades, in research, because the ‘numbers’ weren’t great enough for investors. After his death, they came to learn that DIPG is one of the more common pediatric brain tumors(12% incidence), and responsible for roughly…
This letter is being sent to California State Representatives 8/3/2015 Dear Senator Runner, As you may very well know, currently there is a National Movement for greater Childhood Cancer Awareness. The leading disease-cause of death for children in our country, pediatric cancer, is one of the least-funded areas of…
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The DIPG Awareness Run on May 25, 2015 marked the beginning of the first celebrated DIPG Awareness Week in the State of California. Declared in June of 2014 by the California State Assembly, thanks to the work of Assemblyman Scott Wilk, a national statement and achievement was made for DIPG,…
Wednesday, May 20, Santa Clarita, CA–DIPG, diffuse intrinsic pontine glioma, is a pediatric brain tumor that is invariably terminal with no progress made to that effect in over 35 years of clinical record. DIPG is responsible for roughly 80% of pediatric brain tumor deaths annually[1], the leading cause of cancer-related…
Lauren Hill, 19, died on Friday, April 10 2014 after a very public, 16-month battle with DIPG. In her fight, she began the victory against indifference to childhood cancer, and for awareness for DIPG–diffuse intrinsic pontine glioma–an invariably terminal pediatric brain tumor, in the midst of which thousands of…
Jan. 26, 2015 Santa Clarita, CA On Sunday, February 22, 2015, (2/22/2015) at 12pm, the first DIPG Awareness Run will begin across the Santa Clarita Valley. The Run starts at the entrance to Six Flags Magic Mountain, at the Old Road and Magic Mountain Parkway and the entrance to Interstate 5,…
State of Virginia Steps Up for Childhood Cancer Awareness A friend posted this on my facebook page, by Glennon Doyle Melton, award-winning author; wanted it to be here as well as an example of the urgent need for research into all pediatric cancer, which in unconscionably underfunded in our country.…
