click pic to download podcast
Both parents Dean and Wendy Fachon join us to share the story of their son Neil Fachon’s diagnosis of DIPG, one of the deadliest pediatric brain cancers. Their journey included the hope of an experimental treatment at the Burzynski Clinic near Houston, TX, and what it was like to endure an FDA interruption of treatment. Neil’s bright and shining personality has been a huge loss to both the family and their community, as he had already been attending college in Boston with a future ahead–cut short by a merciless disease. The family is actively working on Right to Try legislation in Rhode Island, their home state, and also with Senator Reed concerning the federal Right to Try legislation; a story to be continued.
