Anjalie Bartee was a normal, healthy 17-year-old, a junior in high school in Omaha, NE when she began experiencing headaches and vision changes. Her doctor thought it might be due to recent changes in her medication, but the condition persisted and worsened; the ophthalmologist detected pressure on the brain and…
Whether it’s from a pediatric cancer or a freak accident, the loss of a child is perhaps the most devastating experience imaginable. Ernie Jackson, author of Quinton’s Messages and Quinton’s Legacy, lost his son Quinton to an accident and shares how he gained a constant and very real companion in…
DIPG Advocacy Group co-founders Elizabeth Psar and Paul Miller join us to help give the background story to the group, how it formed and why; Also joining us is Lisa Ward, a new addition to the Admins of DIPG Advocacy Group, who’s son Jace Ward, a 20 year old pre-law…
“If we cannot add days to the life of a child, we will add life to their days,” Suzanne Gwynn, nurse of 40 years, founder of LadyBug House. As a nonprofit, Ladybug House will offer intermittent stays to families who are caring for their children with life-threatening illnesses so they…
Bryanna’s Love was founded in honor of Bryanna Kitchen, who was diagnosed with Early T-cell Precursor Acute Lymphoblastic Leukemia (ETP-ALL) only 3 weeks after her 9th birthday. One of the few things that gave her the strength to smile during this time was the many stuffed animals and the blanket…
Excerpt taken from p. 90 – 91 of the REPORT DEPARTMENTS OF LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION, AND RELATED AGENCIES APPROPRIATION BILL, 2020 Childhood Cancer Data Initiative.—The Committee strongly supports the budget request to focus $50,000,000 a year toward pediatric cancer research over the next 10 years. The…
Noah Berlow received his PhD in electrical engineering following undergraduate studies in electrical engineering, computer science, and mathematics. His graduate work grew into a long-term collaboration with Dr. Charles Keller, then at Oregon Health & Sciences University. Upon graduating, he joined the non-profit mission-based biotech start-up, the Children’s Cancer Therapy…
Noah Berlow received his PhD in electrical engineering following undergraduate studies in electrical engineering, computer science, and mathematics. His graduate work grew into a long-term collaboration with Dr. Charles Keller, then at Oregon Health & Sciences University. Upon graduating, he joined the non-profit mission-based biotech start-up, the Children’s Cancer Therapy…
jackangel 27 December, 2019 Uncategorized click picture for podcast Goodbye Little Dude is the remarkable story about seven-year-old Jonathan, his classmates, and a pet turtle named Little Dude. While Jonathan is unable to care for his beloved turtle on his own, Little Dude thrives and grows under the tender care…
December 14, 2019dipgadvocate Thursday, Dec. 12, 2019, Santa Clarita, CA–Today a 2nd Hearing Request Letter was sent by the DIPG Advocacy Group to the Energy and Commerce Committee in US Congress for Jace Ward, a 20 year-old pre-law student from Wamego KS, diagnosed on May 17 of 2019 with DIPG, notorious for…
