A U.S. Congress United: Resolution Spotlights Childhood Brain Cancer, Establishes May 17 as DIPG Awareness Day

May 17, 2023, Washington, DC–Just in time for the 118th Congress, yesterday was the fifth introduction to the U.S. House of Representatives of the DIPG Awareness Resolution, which draws attention to the unmet medical needs of children with brain cancer and establishes May 17 as DIPG Awareness Day.  With a…

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Texas Leads with the Carson Leslie Foundation, CPRIT, and Congressman McCaul for a Cancer Moonshot for Kids

Congressman Michael McCaul (R-TX-10) is the Founder and Co-Chairman of the Childhood Cancer Caucus, and has been attendant upon the accelerated progress in the childhood cancer community over the last 13 years in legislation and overall awareness for the #1 disease-related killer of children in the United States.  Featured in…

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If No One Knows, No One Cares: #Moonshot4Kids Delivers Urgent Message to President Biden at the White House

“…This is the reality for childhood cancer; we all assume–even the President!–that if we invest in something it will of course trickle down to our children. This is the wake up call of #Moonshot4Kids: medical research investment into cures for children is one area where our priorities as Americans are completely upside-down. You don’t know it until it directly affects you. We spend more dollars on potato chips annually than our government invests into childhood cancer…”

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Progress in Advocacy with the Children’s Cancer Cause 2021

Visit TogiNet.com for a complete list of podcasts available, including this one. Today’s show is a recap of recent advances in childhood cancer advocacy and reiterates the basic facts about childhood cancer for which we strive to provide a worldwide platform for awareness at Childhood Cancer Talk Radio. As co-founder…

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Life Beyond DIPG: Inspiration and Avocation

In this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and Marcelo Ortigao (Fort Collins, CO) share their personal experiences with DIPG, one of the more common types of childhood brain cancer, and the deadliest with very few…

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Advocacy Group Hosts Demonstration at US Capitol for Dismissed Measure Supporting Children Facing A Cruel Death

  The DIPG Awareness Resolution brings attention to children fighting for their lives; House leadership continues to dismiss them on a technicality. Oct. 31, 2020, Santa Clarita, CA– DIPG Advocacy Group, a coalition of pediatric brain cancer foundations and individual childhood cancer advocates, formed in late 2017 expressly for the…

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#Moonshot4Kids: To House Committee Leadership

To Chairman Pallone, Ranking Member Walden, Chairwoman Eshoo, and Ranking Member Dr. Burgess: DIPG Advocacy Group and the undersigned are asking for your attention to the leading cause of cancer-related death in children, pediatric brain cancer, and H. Res. 114, the DIPG Awareness Resolution.  We are asking for its process…

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In Support of H. Res. 114

DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOC…

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DIPG Advocacy Group Letter to House Leadership

re:  H. Res. 69 House Vote before the end of Session II, 115th Congress                                       November 28, 2018 To: The Honorable Speaker of the House of Representatives Paul Ryan (WI-1), The Honorable Majority Leader Kevin McCarthy, Minority Leader Nancy Pelosi (CA-12); The Honorable Chairman of the Energy…

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Appeal for a Presidential Proclamation for the Deadliest Pediatric Brain Cancer

On Day 23 of Brain Tumor Awareness Month in 2018, it seemed apropos to share this appeal: The Honorable Donald J. Trump President of the United States The White House Office of Proclamations 1600 Pennsylvania Avenue NW Washington, DC 20500   Dear President Trump,   On behalf of the DIPG…

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