It’s with great joy and anticipation that this article was entitled. CCTR interviews Emma Wrenn who’s daughter Keira is a survivor of DIPG, diffuse intrinsic pontine glioma, a virtually unheard-of experience. Emma shares with us the realities of diagnosis and experimental treatment, and the inevitable challenges of living with the…
Dear friends and followers, We would like to share information with you from the Gabriella Miller “Kids First” Pediatric Research Program, inspired of course by the late great, very young yet highly mighty Gabriella Miller, DIPG warrior, and childhood cancer activist. There is also the opportunity here to subscribe to…
November 13, 2016 Re: SOS; American Children Dying Daily #CureDIPG #JacksAngels DIPG Report Letter to President Obama 9/6/2016 H.Res.586 To the Honorable President-Elect Trump and his Staff: I write to you with great hope in my heart that indeed the change you represent…
CCTR interviews Ann Graham, founder and CEO of MIB Agents, an organization devoted to making the lives of children and young people with osteosarcoma better. A groundbreaking conference, FACTOR, is scheduled for 2/24-25 of 2017 including experts, clinicians, patients, and families of children who have perished or who are currently…
CCTR interviews Emily Belcher, advocate, event planner, mother of a childhood cancer survivor, and CureFest volunteer, who tells us about the early days of CureFest, the events goals and influence, and the direction of the Childhood Cancer Awareness Movement. Emily discloses her daughter’s frightening experience with PNET, a pediatric brain…
This link will take you to the Scientific American article online about DIPG. Though technically a rare disease, DIPG is arguably significant. By Esther Landhuis on October 28, 2016, Scientific American online Scientists Tackle Lethal Childhood Brain Cancer In precision medicine era legacy gifts of patient brain tissue reveal disease mechanisms…
CCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 9-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the deadliest cancers which is almost exclusively pediatric. Her pioneering journey into the unknown includes treatments in Germany and the UK. Lisa Spedale, who’s daughter Kira was the…
CCTR interviews Caitlin Lee (12) and her mom, Kelly about Caitlin’s recent diagnosis with BPDCN and course of treatment. Blastic plasmacytoid dentritic cell neoplasm is a rare, especially among children, acute leukemia subtype with no therapeutic protocol because it is so rare and newly categorized. Stories of hope and unparalleled…
Eric David is writing a memoir about his son, Dylan David, aka “Super Dylan.” For more information about the memoir, and why it is so important, please visit: https://www.gofundme.com/RememberJustToLove Eric’s Facebook page: www.facebook.com/10155082671476754 Please visit his website http://dylan.ericdavid.info for the full story of Dylan’s history; here is an excerpt: “In late…
THE WHITE HOUSE Office of the Vice President FOR IMMEDIATE RELEASE October 17, 2016 FACT SHEET: Vice President Biden Delivers Cancer Moonshot Report, Announces Public and Private Sector Actions to Advance Cancer Moonshot Goals Today, Vice President delivers the Cancer Moonshot report to the President and American public. The report…
