Today’s show features creative solutions to difficulties in treating childhood cancer with the Children’s Cancer Therapy Development Institute, cc-TDI, devoted to making all forms of childhood cancer survivable. Co-founder, advocate for kids with cancer, and writer Jonathan Agin, and Scientific Director Dr. Charles Keller talk with CCTR. Learn about a…
CCTR is on the ROAD with the RUN for HRes586! Special guest Congressman Steve Knight explains the importance of this legislation that he authored, National DIPG Awareness Week and more consideration for those in urgent need of solutions, and our kids. A reunion of runners from around the country–Brian Jones,…
Jaime King, mother to Katie(7), aka Katherine the Brave, and Mark Landis, father to Parker (5), describe the realities faced by parents of DIPG-diagnosed children today. DIPG, diffuse intrinsic pontine glioma, is an invariably terminal pediatric brain tumor with no change in treatment protocol for over 40 years. Parents discover…
CCTR presents Dr. Kathy Warren, top researcher in pediatric neuro-oncology at the Center for Cancer Research at the National Cancer Institute (NCI), who discusses the history of DIPG research and the nature of this strange and misunderstood tumor, challenges to treatment, and hopeful new lines of research for effective therapies…
Paul speaks in depth about his commitment to children with cancer, to speak for them and to carry the message that they are being systematically ignored by our medical research system. Paul volunteers for St. Baldrick’s Foundation, which gives most of it’s income to research and is the largest contributor…
Part I: Advocate for children with cancer Gerry Tye shares his experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of trusting one’s instincts regarding one’s own child when confronted with medical protocol for terminal illness. Gerry supports children diagnosed with cancer and their…
George Dahlman, CEO of the Children’s Cause for Cancer Advocacy, talks about the importance of advocacy in affecting change in legislation and the way our Administration, Congress, and Government Agencies communicate to better accommodate the needs of our children with cancer. Host Janet Demeter enjoys a rant about the “Great…
Peter Brown and Victoria Sardi-Brown tell the story of how their foundation began in 2009 after the death of their precious boy Mattie, 7, who had been diagnosed with osteosarcoma. Mattie Miracle Foundation has a powerful advocacy mission emphasizing the need for psychosocial standards of care for children with cancer…
CCTR interviews Tracy Ryan, CEO of CannaKids, an organization dedicated to providing the highest quality guidance, care, and cannabis medicine for seriously ill patients, particularly pediatric cancer patients. CannaKids was inspired by Tracy’s daughter Sophie, who was diagnosed with brain cancer at 8 1/2 months old, and is a living…
Lisa Spedale reveals the heart-wrenching motive for her involvement in one of the most genius technological advancements in the history of neuroscience. Leo Somerville of technology company Renishaw Inc was changed forever by the heart of one little girl, Kira, afflicted with terminal DIPG. Her brave fight aided the development…
