A Class of 2020 graduate from UCLA in anthropology, Rachna Prasad is a working on a Masters program in clinical research at the University of Zurich, living her dream and honoring the legacy of her brother Mithil, who lost his life to brain cancer. She also manages the Mithil Prasad…
Two special moms, Patricia Palman and Lenore Scatton, share stories of their amazing daughters who both left legacies of inspiration from their fateful battles with DIPG. Josephine Palman and Dana Scatton each had huge community followings and an outpouring of love and grief with their passing. They both coincidentally enjoyed…
Candice Hamman and Carl Jansen VanVuuren tell the story of their son Owen who was diagnosed in June 2020 with DIPG, diffuse intrinsic pontine glioma. There are no treatment options besides the standard radiation and palliative care, and purchase of the experimental ONC201 from Germany. Candice and Carl share from…
The Shepherd Foundation is working with Congress to introduce a bill to position the rare cancer community for better outcomes. Founder and rare cancer patient David Hysong and CEO Catharine Young join us to discuss the recent virtual briefing with Congressman G.K.Butterfield (NC-1) and Gus Bilirakis (FL-12), Greg Simon, former…
March 20, 2020 Dr. Michael Prados (UCSF), leading scientist with PNOC (Pacific Pediatric Neuro-Oncology Consortium) and Dr. Adam Resnick (CHOP), leading scientist with the CBTTC (Children’s Brain Tumor Tissue Consortium) share important developments in pediatric cancer research and also a potential shift in the way research is conducted, and funded,…
Kayla Giacin, Manager, Quality of Life Programs and Marketing for Children’s Brain Tumor Foundation shares about upcoming events and current programs. Children’s Brain Tumor Foundation’s mission is to improve the treatment, quality of life and the long-term outlook for children and families affected by a brain or spinal cord tumor.…
Anjalie Bartee was a normal, healthy 17-year-old, a junior in high school in Omaha, NE when she began experiencing headaches and vision changes. Her doctor thought it might be due to recent changes in her medication, but the condition persisted and worsened; the ophthalmologist detected pressure on the brain and…
Whether it’s from a pediatric cancer or a freak accident, the loss of a child is perhaps the most devastating experience imaginable. Ernie Jackson, author of Quinton’s Messages and Quinton’s Legacy, lost his son Quinton to an accident and shares how he gained a constant and very real companion in…
DIPG Advocacy Group co-founders Elizabeth Psar and Paul Miller join us to help give the background story to the group, how it formed and why; Also joining us is Lisa Ward, a new addition to the Admins of DIPG Advocacy Group, who’s son Jace Ward, a 20 year old pre-law…
“If we cannot add days to the life of a child, we will add life to their days,” Suzanne Gwynn, nurse of 40 years, founder of LadyBug House. As a nonprofit, Ladybug House will offer intermittent stays to families who are caring for their children with life-threatening illnesses so they…
