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Ryan Agnew gives us a remarkable window into his beautiful home life with wife Alison, and two children, Aspen who is turning 6 years old, and her little brother not quite two. Aspen is feeling well despite unfortunate scans of progression from DIPG, and now secondary tumors, and is approaching that point when the family may very well lose their precious daughter. Ryan describes the beauty of his life as well as the torturous mental/emotional reality that comes with a DIPG diagnosis. The family generously shares their experience in support of the national DIPG Awareness Resolution, participating in Congressional Office meetings, and allowing childhood cancer as well as mainstream media to follow their story. Ryan’s honesty and generosity of heart paints a picture of hope and love which is stronger than fear, or death. Thank you Ryan. We must do better for our children, and if anyone needed a moonshot, it’s our kids with cancer.
