DIPG parents must watch and wait in terror as their child disappears from this world knowing that to our current system they don’t matter. How many more of them have to die before they are a priority? This is why I’m running for a National Day. On PRWeb For Immediate…
Most of the cases on the news this year of terminally diagnosed children have been DIPG, but no one knows it… Wednesday, September 2, 2015 Santa Clarita, CA—Event #2, the LA Beach Run of the “Just Say It!”—DIPG, the Run for a National Day begins this Sunday Sept. 6 at…
A friend shared this with me and it was so exquisitely written and her experience so sensitively described I felt it was imperative that I share it, here. This is why we do the work that we do. And I thank Ms. Morita for sharing her gift publicly, and being…
This has been re-submitted to California Governor Jerry Brown –“Thank you Governor Brown, for your consideration and time, which I know is limited to very urgent matters. I must emphasize that my reaching out to you in full knowledge of this is due to the fact that I am aware of…
“Just Say It!”—A Local Mom’s National Campaign for DIPG Awareness August 17, 2015, Santa Clarita, CA—Janet Demeter is running on the heels of good fortune, the local leadership of our very own CA State Assemblyman Scott Wilk who, touched by the story of Jacks Angels Foundation, authored ACR151 which…
Jack’s Angels is gearing up for a busy Childhood Cancer Awareness Month, September 2015! At home, in Agua Dulce, our float in the Country Fair Parade September 19 will be full of angels raising awareness for childhood cancer and DIPG, locally, while our runner will be in Washington DC with…
McCaul, Van Hollen, Speier, Reed, and Capito Introduce Bipartisan Childhood Cancer STAR Act link to press release WASHINGTON, DC – Today Congressman Michael McCaul introduced the bipartisan, bicameral Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act of 2015. Congressman McCaul was joined by his fellow co-chair of the Childhood…
“They were told it was a ‘rare’ brain tumor, and that nothing had been done for decades, in research, because the ‘numbers’ weren’t great enough for investors. After his death, they came to learn that DIPG is one of the more common pediatric brain tumors(12% incidence), and responsible for roughly…
This letter is being sent to California State Representatives 8/3/2015 Dear Senator Runner, As you may very well know, currently there is a National Movement for greater Childhood Cancer Awareness. The leading disease-cause of death for children in our country, pediatric cancer, is one of the least-funded areas of…
This important article is featured in Frontiers in Oncology, part of the research topic, “Advances in Diffuse Intrinsic Pontine Glioma”, accessible here giving full credit to sources; the article appears here as it was written. Link to Article MINI REVIEW ARTICLE Front. Oncol., 01 July 2015 | http://dx.doi.org/10.3389/fonc.2015.00148 Future clinical…
