In Loving Memory of Evylah d. 10.10.15 September was Childhood Cancer Awareness Month, but for some reason the President refused to flood-light the White House gold, even for a day, as it goes pink for breast cancer, rainbow for same-sex marriage, and the list goes on. To add insult to injury,…
pdf version letter sent to Congressional leaders President Barack Obama The White House 1600 Pennsylvania Avenue NW Washington DC, 20500 Tuesday, September 15, 2015 Dear President Obama, I cannot thank you enough for your kind replies to my previous letters about DIPG children and the desire for more effective action…
DIPG parents must watch and wait in terror as their child disappears from this world knowing that to our current system they don’t matter. How many more of them have to die before they are a priority? This is why I’m running for a National Day. On PRWeb For Immediate…
Most of the cases on the news this year of terminally diagnosed children have been DIPG, but no one knows it… Wednesday, September 2, 2015 Santa Clarita, CA—Event #2, the LA Beach Run of the “Just Say It!”—DIPG, the Run for a National Day begins this Sunday Sept. 6 at…
A friend shared this with me and it was so exquisitely written and her experience so sensitively described I felt it was imperative that I share it, here. This is why we do the work that we do. And I thank Ms. Morita for sharing her gift publicly, and being…
This has been re-submitted to California Governor Jerry Brown –“Thank you Governor Brown, for your consideration and time, which I know is limited to very urgent matters. I must emphasize that my reaching out to you in full knowledge of this is due to the fact that I am aware of…
“Just Say It!”—A Local Mom’s National Campaign for DIPG Awareness August 17, 2015, Santa Clarita, CA—Janet Demeter is running on the heels of good fortune, the local leadership of our very own CA State Assemblyman Scott Wilk who, touched by the story of Jacks Angels Foundation, authored ACR151 which…
Jack’s Angels is gearing up for a busy Childhood Cancer Awareness Month, September 2015! At home, in Agua Dulce, our float in the Country Fair Parade September 19 will be full of angels raising awareness for childhood cancer and DIPG, locally, while our runner will be in Washington DC with…
McCaul, Van Hollen, Speier, Reed, and Capito Introduce Bipartisan Childhood Cancer STAR Act link to press release WASHINGTON, DC – Today Congressman Michael McCaul introduced the bipartisan, bicameral Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act of 2015. Congressman McCaul was joined by his fellow co-chair of the Childhood…
“They were told it was a ‘rare’ brain tumor, and that nothing had been done for decades, in research, because the ‘numbers’ weren’t great enough for investors. After his death, they came to learn that DIPG is one of the more common pediatric brain tumors(12% incidence), and responsible for roughly…
