Welcome, and thank you for visiting our site.
Jack’s Angels is a public charity under section 501(c)3 of the Internal Revenue Code, 46-1320003. Our mission is solidifying in our first year, and we are very grateful for the support of the communities of Santa Clarita, Acton, and Agua Dulce California for inspiring our beginnings. The other part of that inspiration came from diagnosis day, 10/28/2011, of James-William “Jack” Demeter, with Diffuse Intrinsic Pontine Glioma, or DIPG. Our passion is to raise awareness for the urgent need for research, and to support these families and dear children who are diagnosed with DIPG, in their walk down this road. Please join us in helping them. Jack lived 9 months past his diagnosis date, the median survival time for DIPG. JacksAngelsStory
Awareness, Support, and Research for Diffuse Intrinsic Pontine Glioma (DIPG) Our mission is to:
1. Support RESEARCH for DIPG, a pediatric brainstem tumor with a long-term survival rate of less than 1%.
Median survival time is 9 months. Little progress has been made in over 30 years. Research is urgently needed for the 2-300 children a year diagnosed with DIPG*. Please see “About DIPG” and “RESEARCH” pages for more information.
2. Raise AWARENESS for DIPG by supporting the arts and education for children locally.
Visit “Art for Jack” and “Music for Jack” pages on this site to learn more about our programs and special events, and our “Newsflash” blog spot with the latest updates.
3. Collaborate with other like-minded organizations to SUPPORT the quality of life of DIPG patients and their families, and increase hope for survival from a DIPG diagnosis.
We support and promote other organizations with specialized missions that raise awareness for our common need of grief support, spiritual growth, and desire to support proactive and creative research. Our children’s research institutions rely upon private sector donations. There is very little federal funding for the hospitals personnel infrastructure necessary for the progress of DIPG research. We believe in “thinking globally and acting locally”. Research of this nature is a collaborative effort. Our main goal for 2013-14 is to establish a DIPG research fund at Children’s Hospital Los Angeles. * www.curesearch.org , www.pbtfus.org
”We were told, ‘…there’s nothing we can do; we don’t know the cause, and we can only provide temporary relief with radiation; no chemotherapies have changed the terminal outcome…’, and yet, no one was taking data from us. No samples, no testing, no forms, no nothing. We got an enormous book from CureSearch of forms, that I think was standard for any child diagnosed at the hospital with some form of cancer, but nothing that addressed the urgent need for research, real research… This is an UNACCEPTABLE REALITY. All of our research hospitals across the country ought to have data programs for the families to have the opportunity to contribute their life history/lifestyle/genetic information; we could be actively looking for the “non-existent” common denominators of DIPG. All research centers ought to have the advanced genetic testing/data-collaboration capability. We have the technology; God knows the doctors would like to be able to do more. And as more and more families suffer from DIPG, it won’t be long before the status quo’s unacceptability is too strong in our collective consciousness to ignore. This is now my personal mission.” –J. Demeter, Jack’s mother
Help Jack, “COUNT TO A MILLION!”–for DIPG RESEARCH
at CHILDREN’S HOSPITAL LOS ANGELES! Jack’s Angels Inc is a Public Charity
under section 501(c)3 of the Internal Revenue Code, #46-1320003