DIPG Awareness Day—A National Movement

(H.Res.69 asks for a date henceforth, not just for this year, and retroactively–that May 17th be National DIPG Awareness Day.  The importance of the Resolution is with the raising of awareness to the negelect of pediatric cancer research in our medical research system, and the unacceptable realities that parents across …

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Swifty Foundation: Cure Pediatric Brain Cancer

Al Gustafson is on the Advisory Council of the Children’s Brain Tumor Tissue Consortium and serves on the Board of Swifty Foundation, among several others; in addition to his work in ministry, Al is the president of the Gustafson Family Foundation, a private foundation promoting the development and education of young …

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BPDCN Update with Caitlin and Kelly Lee

Caitlin joins us with her mom Kelly to update her progress since treatement for BPDCN, Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare and aggressive form of leukemia.  Caitlin describes as best she can her experience with chemotherapy, radiation, bone marrow transplant, and the tough decisions a very young girl has had …

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With Love and Hope from Mexico

From Monterrey Mexico, childhood cancer advocate Christina Wascher joins the show with Kristoffer Nordstrom, father to 5-year-old Linnea who is currently undergoing treatment there for DIPG, with hopeful success 6 weeks into treatment. The Nordstrom family is from Sweden and they are prepared to remain at least six months in …

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Advocacy, Research, and TNCI with Beth Anne Baber

“Eight years ago, a 15 month-old little boy with platinum blond ringlets and bright blue eyes was diagnosed with high-risk neuroblastoma, a childhood cancer that results in around 255 deaths/year in the United States. Based on the size, location and maturity of his tumor, the toddler had less than 50% …

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America’s Foremost Runner-Advocates for Children with Cancer

Live from Roy’s 100 mi Run for Christopher in Santa Clarita, CA, Roy Wiegand joins us for news on his progress, the support of the local community for his efforts to raise funds for the Michael Hoefflin Foundation.  We are joined by BethAnn Telford, veteran of the World Marathon Challenge, …

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