“Mr. BLUNT, from the Committee on Appropriations, submitted the following R E P O R T…”

Excerpt taken from p. 90 – 91 of the REPORT DEPARTMENTS OF LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION, AND RELATED AGENCIES APPROPRIATION BILL, 2020 Childhood Cancer Data Initiative.—The Committee strongly supports the budget request to focus $50,000,000 a year toward pediatric cancer research over the next 10 years. The…

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Goodbye Little Dude, with Rebecca Trotsky and Marie Smyth

Goodbye Little Dude is the remarkable story about seven-year-old Jonathan, his classmates, and a pet turtle named Little Dude. While Jonathan is unable to care for his beloved turtle on his own, Little Dude thrives and grows under the tender care of Jonathan’s classmates. Together, they all learn that kindness,…

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Dr. Vibhakar at Children’s Hospital Colorado; Morin Family Braves the Holidays after Recent Loss

“After symptoms that appeared suddenly and two visits to the pediatrician, Luke Morin was taken to the Emergency Department at Children’s Hospital Colorado. On April 8, 2018, Luke’s family received devastating news that there was an inoperable and very aggressive tumor in his brain called DIPG (Diffuse Intrinsic Pontine Glioma).…

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No Time To Lose: Pediatric Brain Cancer and the DIPG Fast-Track with Lisa and Jace Ward

“While we wait,” declared Jace Ward from Wamego Kansas, to an NIH Symposium on genomic data sharing in September, 2019, “DIPG won’t wait! It won’t wait to take my mobility, my sight, my speech and my life…” With an extraordinary opportunity to shine a light on one of the darkest…

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Oncoheroes: Advancing New Therapies for Childhood Cancer

Ricardo Garcia, CEO, Cesare Spadoni, COO, and Jonathan Agin, Head of Patient Advocacy for Oncoheroes Biosciences join us to discuss this relatively new company, founded in 2017, and it’s unique and thoughtful approach to childhood cancer research. The families of each of the three gentlemen have each been affected directly…

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