How did we get here, with a medical research system teaming with money and activity, but so few solutions and options for deadly cancers, especially pediatric cancers? Randy Hinton, of Cross Hill South Carolina, is a childhood cancer advocate and father to Hayley who died of DIPG in 2006, diagnosed…
Following the death of his daughter Shayla in 2009 from Hodgkin’s Lymphoma Tom dedicated his entire life to providing non-medical support to children with cancer and their families. He’s also committed to raising awareness of the need for more research funding and safer, less toxic treatments for children with cancer.…
June 7, 2019 | Mia Brozovich Nacke COMMUNITY OUTREACH, EVENTS, PEDIATRICS, RESEARCH AND INNOVATION. Families who have lost children to Diffuse Intrinsic Pontine Glioma, a fatal brain tumor with a median survival of 9-10 months, met with Stanford pediatric neuro-oncologist Michelle Monje to learn about new clinical trials and express…
Our show features a window into the experience of a father, Mark Hyde, who literally chose to go to the ends of the earth for his daughter, honoring her life with a journey to the north pole. While she was fighting rhabdomyosarcoma, Juliet went with her dad, sister, and mom…
Sandra Brown joins us on Childhood Cancer Talk Radio from Dillon, South Carolina to share the story of her beautiful, 10 year old granddaughter who is fighting brain cancer like a champion. Involved in an ongoing clinical trial for DIPG, Kendal was an honor student this past year, and is…
May 2019 has witnessed important advances in pediatric brain cancer awareness, advocacy, and the fulfillment of a life-time dream by a dedicated brother and his friends for Kayne Finley of Ormond Beach FL, deceased 18 months ago to DIPG. DIPG is the second most common but deadliest pediatric brain cancer,…
Cynthia Martucci and Angelina Shao begin internships at cc-TDI, Children’s Cancer Therapy Development Institute as undergraduates for the summer of 2019, and we learn about their projects, mentorships, and what it is like to work as a scientist in a progressive biotech lab devoted to pediatric cancer research. Cynthia Martucci…
A recent graduate of Syracuse University’s School of Photo-Journalism, Moriah Ratner tells the story of the lovely Lola Munoz, a thirteen year old girl afflicted with the deadliest pediatric cancer, DIPG, published within the last year, is truly a work of distinction. Moriah shares with us the process of discovery…
Chance Mazzell and his wife Heather share with us the story of their daughter Olivia and the places that DIPG, diffuse intrinsic pontine glioma, has led them. Olivia was diagnosed with DIPG on August 28th of 2018; her journey was particularly difficult out of the gate. The Mazzells, from Lexington,…
H. Res. 114, the DIPG Awareness Resolution Out of sight and out of mind, the suffering and the tragedy continues, exemplified in a most horrific way by the experience of DIPG, which, out of the blue, robs the child of the use of their body until finally respiration ceases, retaining…
