Letter to the President

December 25, 2014 Dear President Obama and First Lady Michelle Obama, Please accept my deepest thanks for your replies to my letter last summer about D.I.P.G. (diffuse intrinsic pontine glioma), and the darkness of the experience that so many families have endured, and continue to face each day.  I consider…

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Mathias Law

State of Virginia Steps Up for Childhood Cancer Awareness A friend posted this on my facebook page, by Glennon Doyle Melton, award-winning author; wanted it to be here as well as an example of the urgent need for research into all pediatric cancer, which in unconscionably underfunded in our country.…

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Definition of Terms-a Journey in Awareness

A Journey in Awareness Everything changed after October 28, 2011 when my son Jack was diagnosed with diffuse intrinsic pontine glioma, or ‚ÄúDIPG‚ÄĚ, a pediatric brainstem tumor with no survivors.¬† Though I lost my precious 3 year old boy to this practically unknown monster, I knew at the time that‚Ķ

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Potential Therapy Found

From Northwestern University Feinberg School of Medicine Potential Therapy Found for Incurable Pediatric Brain Tumor Share on facebookShare on googleShare on twitterShare on emailMore Sharing Services44 by Nora Dunne on Nov 17, 2014 Diffuse intrinsic pontine glioma (DIPG) is inoperable because of the tumor’s vital location on the brainstem. Northwestern…

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NCI Brain Spore teams

From the National Cancer Institute, National Institutes of Health (www.cancer.gov) Translational Research Program, DCTD Division of Cancer Treatment and Diagnosis Organ Site-Specific SPOREs By State By Organ Location Last Updated: 11/04/14 Brain SPOREs It is estimated that in 2013 there will be 23,130 new cases of cancer of the brain…

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Our Mission 2014

This post is a repeat of our home page, the content of which is very important yet is often overlooked.  Here the links are kept intact for easy reference.  Also, our literature is offered here as well.   PRWeb press release    LEAFLET brochure    DESCRIPTION of Purpose   Did You Know?…

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Reliving it without knowing.

Oct. 26, 2015The past few weeks I’ve fought depression, anxiety, jumping heart, breathlessness. ¬†Tried to whip myself into shape by keeping running–even doing a race last weekend, which physically I dreaded knowing how hard it would be. ¬†No heart attack, stroke; same depression, desire to sit and stare. ¬†While sitting‚Ķ

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Awareness Runs 2014

Awareness Walks &¬†Runs ‚Ķfor DIPG Awareness! ¬†Press Release¬†(click link) ‚ÄďWhy is it important? Pediatric Cancer research as a whole is underfunded‚Äďonly 4% of the NCI‚Äôs annual budget for cancer research goes to pediatric cancers. ¬†DIPG is an example of a pediatric cancer that has been marginalized as rare, yet is‚Ķ

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Children’s Choir with Center Stage Opera

CENTER STAGE OPERA and Jack’s Angels Foundation Present: OUR REHEARSAL LOCATION HAS CHANGED–¬†Acton Mainstage, MPR Acton-Agua Dulce Unified School District, 32248 Crown Valley Rd, Acton, CA 93510 A¬†wonderful idea is coming to fruition!¬† We are collaborating with Center Stage Opera to develop, beginning Fall 2014,¬†the beginnings of a¬†versatile children’s choir‚Ķ

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